Little Luella: Dravet Syndrome Awareness Day! 120 DAYS SEIZURE FREE

Friday, June 23, 2017

Dravet Syndrome Awareness Day! 120 DAYS SEIZURE FREE

We hope you are wearing PURPLE today for the 4th annual International Dravet Syndrome Awareness Day!! If you are wearing something purple... send us a picture!!

Today Luella is 120 Days SEIZURE FREE!!

We'd love it if you'd celebrate Luella today by donating to my "a cake 4 a cure" raffle / fundraiser! More details about the fundraiser can be found here: https://littleluella.blogspot.com/2017/05/fourth-annual-cake-4-cure-fundraiser.html and donations can be given directly to me or given online here: https://www.youcaring.com/dravetsyndromefoundation-809095
Donations will only be accepted until midnight tonight (June 23rd) and a winner will be announced tomorrow - Saturday, June 24th!! I'm SOO close to our goal... please help us out!

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About Me

My name is Heather and I am mom to Luella and three other children - Burke, Ashlyn and Ryker. Luella is our youngest and in August of 2010, when Luella was only 9 1/2 months old she had her first seizure. We were told it was probably just due to the UTI they discovered and she may or may not have another seizure. She did have another and went on to have almost 50 in the next year. Through constant doctoring we found out in July 2011 that Luella has Dravet Syndrome. This was hard news for us to hear. We are praying for the best possible outcome for Luella and we ask for your prayers as well.