tag:blogger.com,1999:blog-84950423622805842882024-03-13T22:47:00.592-05:00Little LuellaAll about our Luella and her battle with seizures and Dravet Syndrome.Heatherhttp://www.blogger.com/profile/08195762733183145670noreply@blogger.comBlogger271125tag:blogger.com,1999:blog-8495042362280584288.post-82290157999661708432023-09-10T13:30:00.002-05:002023-09-10T13:30:38.091-05:00Transitioning Away from a Public Blog - Follow us on Facebook<p><span class="x193iq5w xeuugli x13faqbe x1vvkbs x1xmvt09 x1lliihq x1s928wv xhkezso x1gmr53x x1cpjm7i x1fgarty x1943h6x xudqn12 x3x7a5m x6prxxf xvq8zen xo1l8bm xzsf02u x1yc453h" dir="auto">We've
decided to transition from a public blog to a more private Facebook
group for updates on Luella. Luella feels better about us sharing things
when we can have a little more control over who sees the information. </span></p><p><span class="x193iq5w xeuugli x13faqbe x1vvkbs x1xmvt09 x1lliihq x1s928wv xhkezso x1gmr53x x1cpjm7i x1fgarty x1943h6x xudqn12 x3x7a5m x6prxxf xvq8zen xo1l8bm xzsf02u x1yc453h" dir="auto"><b>As a nod to our "Little Luella" blog title, our new Group is "A Little About Luella" - our little girl is growing up!! </b><br /></span></p><p><span class="x193iq5w xeuugli x13faqbe x1vvkbs x1xmvt09 x1lliihq x1s928wv xhkezso x1gmr53x x1cpjm7i x1fgarty x1943h6x xudqn12 x3x7a5m x6prxxf xvq8zen xo1l8bm xzsf02u x1yc453h" dir="auto">If you'd like to follow us in a Private Facebook Group you can request to join the group here: <a href="https://www.facebook.com/groups/1343460006378305/">https://www.facebook.com/groups/1343460006378305/</a></span></p><p><span class="x193iq5w xeuugli x13faqbe x1vvkbs x1xmvt09 x1lliihq x1s928wv xhkezso x1gmr53x x1cpjm7i x1fgarty x1943h6x xudqn12 x3x7a5m x6prxxf xvq8zen xo1l8bm xzsf02u x1yc453h" dir="auto"></span></p>Luella has had a couple of seizures in the recent weeks. You can read more on Facebook. Thanks!<br />Heatherhttp://www.blogger.com/profile/08195762733183145670noreply@blogger.com0tag:blogger.com,1999:blog-8495042362280584288.post-958805918113891082023-06-23T20:34:00.000-05:002023-06-23T20:34:29.350-05:002023 a cake 4 a cure WINNERS announced! <p></p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgyBpP-mcsxZ5qWVxyhwddlhSDoEpXXAuIj0y0w3-u9kuhX_zrZvTSKhBsWE5s9gcaa4wzBVNxW5a9wEJsBB_PLhRKeq_1SOdFJUibiOMOfn6Oesngp9CDidJvKDKsTXMk_3qlokYKeIvpD3aHKIiGwPCE81R7x4jvs9SzuRX2ylU76nEfvnVmjS8QzK5B_/s3437/acake4acure_2023.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="3437" data-original-width="3055" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgyBpP-mcsxZ5qWVxyhwddlhSDoEpXXAuIj0y0w3-u9kuhX_zrZvTSKhBsWE5s9gcaa4wzBVNxW5a9wEJsBB_PLhRKeq_1SOdFJUibiOMOfn6Oesngp9CDidJvKDKsTXMk_3qlokYKeIvpD3aHKIiGwPCE81R7x4jvs9SzuRX2ylU76nEfvnVmjS8QzK5B_/s320/acake4acure_2023.jpg" width="284" /></a></div><div style="text-align: center;"><br /></div><div style="text-align: center;"> <span style="color: #351c75; font-family: helvetica; font-size: x-large;"><b>WINNERS</b></span></div><p></p><p><span style="color: #351c75; font-family: verdana; font-size: medium;">It's Dravet Syndrome Awareness Day and that means it's the end of our fundraiser! </span></p><p><span style="font-family: verdana;"><span style="color: #351c75; font-size: medium;">It's winner time!! Do you know that we actually PASSED the HUGE GOAL I set!?!?! I was completely blown away by a donor rounding out the fundraiser at the end to bring us to the goal!! I was IN TEARS!! Thank you from the very bottom of my heart to all those that donated - BIG AND SMALL - it ALL helps!! We have the best friends, family, neighbors and community! </span></span></p><p><span style="font-family: verdana;"><br /></span></p><p></p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjVh2NFQmFm6LyEY4vxSy8e-FKHNR2hFccOPTb_e53uTQIFubUP0_QfDZEqopAGgFa11-p7YdscM2DH-cJszxIkdPTRUsI-sndDoLFk9TljwLECZTOTalzY2LOdReKltE9O0QdWXADjTVjmG9WWKBxCGj-FmcD5vSVUXnRh9PTwkcPje_QqeZYXFFh-CZvC/s1211/IMG-6369.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1211" data-original-width="1125" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjVh2NFQmFm6LyEY4vxSy8e-FKHNR2hFccOPTb_e53uTQIFubUP0_QfDZEqopAGgFa11-p7YdscM2DH-cJszxIkdPTRUsI-sndDoLFk9TljwLECZTOTalzY2LOdReKltE9O0QdWXADjTVjmG9WWKBxCGj-FmcD5vSVUXnRh9PTwkcPje_QqeZYXFFh-CZvC/w371-h400/IMG-6369.jpg" width="371" /></a></div><div class="separator" style="clear: both; text-align: center;"><b style="color: #351c75; font-family: verdana;"><span style="font-size: x-large;"><br /></span></b></div><div class="separator" style="clear: both; text-align: center;"><b style="color: #351c75; font-family: verdana;"><span style="font-size: x-large;">That means, in the past TEN YEARS you have helped us send OVER $23,000 to the Dravet Syndrome Foundation to find a CURE!!!</span> </b></div><div><br /></div><p></p><p><span style="color: #351c75; font-family: verdana;"><b>It was so fun for me to do the drawings tonight. We just picked Luella up from a week at Camp Oz - a camp for kids with epilepsy. She had a great time and was excited when we hit the goal today! </b></span></p><p style="text-align: center;"><br /></p><p></p><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto;"><tbody><tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgvcBC5Psj87ldRpy-anVWytAHRwgm4Hf61WeiOgrPWBRM0HVOm24JWBb8q2FFdl1U5Ap1m0Z1BLuT22ziGTtl9E-4wT78Ku4OaYL-yJJJA_58qZd7T7Xir3-odDlN-13GBrlOxf5-cu1SsWe39AKlp4N7gUZqa0EdfYLF7uLW3OsmcNKl8XswkI085uN8t/s4032/IMG-6355.jpg" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="4032" data-original-width="3024" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgvcBC5Psj87ldRpy-anVWytAHRwgm4Hf61WeiOgrPWBRM0HVOm24JWBb8q2FFdl1U5Ap1m0Z1BLuT22ziGTtl9E-4wT78Ku4OaYL-yJJJA_58qZd7T7Xir3-odDlN-13GBrlOxf5-cu1SsWe39AKlp4N7gUZqa0EdfYLF7uLW3OsmcNKl8XswkI085uN8t/w300-h400/IMG-6355.jpg" width="300" /></a></td></tr><tr><td class="tr-caption" style="text-align: center;"><h3><span style="color: #351c75; font-family: helvetica;">Picking Luella up from camp today. <br />Everyone loved our matching shirts! Great way to raise awareness!!</span></h3></td></tr></tbody></table><br /><div style="text-align: center;"><br /></div><div style="text-align: center;"><span style="font-family: verdana;"><span style="font-size: x-large;"><span style="color: #351c75;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><b style="font-size: medium;"><br /></b></span></span></span></span></div><div style="text-align: center;"><span style="font-family: verdana;"><span style="font-size: x-large;"><span style="color: #351c75;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><b style="font-size: medium;"><br /></b></span></span></span></span></div><div style="text-align: center;"><span style="font-family: verdana;"><span style="font-size: x-large;"><span style="color: #351c75;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><b>And now for the exciting announcement!<br /></b></span></span></span></span></div><div style="text-align: center;"><span style="font-family: verdana;"><span style="font-size: x-large;"><span style="color: #351c75;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><b>WINNER #1 of a </b></span></span></span></span></div><div style="text-align: center;"><span style="font-family: verdana;"><span style="font-size: x-large;"><span style="color: #351c75;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><b>cake 4 a cure is...</b></span></span></span><br /></span><span style="font-family: verdana;"><span style="font-size: x-large;"><span style="color: #351c75;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><b><span style="font-size: small;">(drumroll)</span></b></span></span></span></span></div><p><span style="font-family: verdana;"><br /></span></p><div style="text-align: center;"><h1><span style="font-family: verdana;"><span style="color: #351c75;"><b><span style="font-size: x-large;"><span>Kaitlyn Strassburg!</span></span></b></span></span><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEghLdKJ9iDsFwMxX2Ldp9GeLy9QDvbKNtVzH6Y_-mxXDvFYAkVNyyryID1kqVFn6ofbeQQnRZn8YzNqsEcHt4nMkII9xfP8OKPsJuJp9itn_smvhovSTRyKvChSTxPnM5QOykXABblzEyv3tzhrJkLgHmvWlqOzTesdVIWJ4pzec_i_EEAbKOkrEoEymZdE/s939/IMG-6376.jpg" style="font-family: verdana; font-size: xx-large; margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="885" data-original-width="939" height="302" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEghLdKJ9iDsFwMxX2Ldp9GeLy9QDvbKNtVzH6Y_-mxXDvFYAkVNyyryID1kqVFn6ofbeQQnRZn8YzNqsEcHt4nMkII9xfP8OKPsJuJp9itn_smvhovSTRyKvChSTxPnM5QOykXABblzEyv3tzhrJkLgHmvWlqOzTesdVIWJ4pzec_i_EEAbKOkrEoEymZdE/s320/IMG-6376.jpg" width="320" /></a></h1><div><span style="font-family: verdana;"><span style="color: #351c75;"><b><span style="font-size: x-large;"><br /><span><br /></span></span></b></span></span></div><div><span style="font-family: verdana;"><span style="color: #351c75;"><b><span style="font-size: x-large;"><span>AND WINNER #2 is...</span></span></b></span></span></div><div><span style="font-family: verdana;"><span style="color: #351c75;"><b><span style="font-size: x-large;"><span><br /></span></span></b></span></span></div><div><span style="font-family: verdana;"><span style="color: #351c75;"><b><span style="font-size: x-large;"><span>Alyssa Larson!!!</span></span></b></span></span></div><div><span style="font-family: verdana;"><span style="color: #351c75;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEifBuGSB1rhOkcxiqiS7Ix5m7pEsJ_zvT2RcVmoVO7q_Y7RphYEEqhi4sR-KUenvbjRzEuVna_wQxyDCLtL6kiEfzT-le9FRwwL6lGGtOMQFemhCnCGjVOki8n2InFjWPsw7omrvCqN7FXWaNhtQc7ZVqq2c7_lnnmUSj1NF4snqrXq1IFi_W9byR_HRSJK/s1858/IMG-6374.jpg" style="font-size: xx-large; font-weight: 700; margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1596" data-original-width="1858" height="275" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEifBuGSB1rhOkcxiqiS7Ix5m7pEsJ_zvT2RcVmoVO7q_Y7RphYEEqhi4sR-KUenvbjRzEuVna_wQxyDCLtL6kiEfzT-le9FRwwL6lGGtOMQFemhCnCGjVOki8n2InFjWPsw7omrvCqN7FXWaNhtQc7ZVqq2c7_lnnmUSj1NF4snqrXq1IFi_W9byR_HRSJK/s320/IMG-6374.jpg" width="320" /></a></span></span></div><div><br /></div></div><div style="text-align: center;"><span style="font-family: verdana;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><span style="font-size: small;"><span style="color: #351c75;"><b> </b></span></span></span></span></div><div style="text-align: center;"><span style="font-family: verdana;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><span style="font-size: large;"><span style="color: #351c75;"><b>Congratulations!! </b></span></span></span><br /></span><span style="font-family: verdana;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><span style="font-size: large;"><span style="color: #351c75;"><b>And thanks again to EVERYONE who </b></span></span></span><br /></span><span style="font-family: verdana;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><span style="font-size: large;"><span style="color: #351c75;"><b>contributed to this fundraising effort!! </b></span></span></span><br /></span><span style="font-family: verdana;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><span style="font-size: large;"><span style="color: #351c75;"><b>We have some AMAZING supporters and we are </b></span></span></span><br /></span><span style="font-family: verdana;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><span style="font-size: large;"><span style="color: #351c75;"><b>SO VERY GRATEFUL to all of you!!</b></span></span></span></span></div><p><span style="font-family: verdana;"></span><span style="font-family: verdana;"></span><span style="font-family: verdana;"></span></p><div style="text-align: center;"><span style="font-family: verdana;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><span style="font-size: small;"><span style="color: #351c75;"><b>Here's a video of the drawing!!</b></span></span></span></span></div><p></p><div style="text-align: center;"><iframe allow="accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share" allowfullscreen="" frameborder="0" height="300" src="https://www.youtube.com/embed/SAuSe9bxoLA" title="YouTube video player" width="460"></iframe></div><div style="text-align: center;"><br /></div><div style="text-align: center;"><br /></div><div style="text-align: center;"><br /></div><div style="text-align: center;"><b><span style="color: #351c75; font-family: helvetica; font-size: x-large;"><br /></span></b></div><div style="text-align: center;"><b><span style="color: #351c75; font-family: helvetica; font-size: x-large;">Thanks again!!</span></b></div>
<p></p>
Heatherhttp://www.blogger.com/profile/08195762733183145670noreply@blogger.com0tag:blogger.com,1999:blog-8495042362280584288.post-43675068541046210122023-06-13T21:24:00.003-05:002023-06-13T23:13:37.115-05:00You just never know...<p><span style="font-family: verdana;">196 days. That was the number this time. The number of days between seizures. You just never know when the next one will strike. You get in a groove. You contemplate letting her have more freedom. And then the next minute you have a 13-year-old, out cold on the concrete. Thankfully she wasn't alone and thankful for grandma's foot, catching her head to spare a big goose egg or worse. Less than a week away from her leaving for camp - grateful it's a camp for kids with epilepsy, a camp where they are prepared for any situation, with doctors and nurses nearby at any given moment, because, you just never know...<br /></span></p><p><span style="font-family: verdana;"></span></p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhbK7ClXlbK6dG41nJSINYv_cezBslAs3ofihPBUs5A5QyRadkSipiOZ5XeLgz0ZcElISjGeE31D_9_0Agsu7ZnY3oEW5KeK_e-r-6V_jcdVaBqCSgIBK4JY51v1ZNF_J3MCBVvzfEcIglMXBqxzUr0uH2aP-13QRh4d2KyKPK6ptb3P-Q87E9kZGCC8A/s923/ribbon.jpg" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><span style="font-family: verdana;"><img border="0" data-original-height="923" data-original-width="923" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhbK7ClXlbK6dG41nJSINYv_cezBslAs3ofihPBUs5A5QyRadkSipiOZ5XeLgz0ZcElISjGeE31D_9_0Agsu7ZnY3oEW5KeK_e-r-6V_jcdVaBqCSgIBK4JY51v1ZNF_J3MCBVvzfEcIglMXBqxzUr0uH2aP-13QRh4d2KyKPK6ptb3P-Q87E9kZGCC8A/w200-h200/ribbon.jpg" width="200" /></span></a></div><span style="font-family: verdana;">We are in the midst of my big fundraiser for the year - a cake 4 a cure. We were so happy that Luella has gone over 190 days seizure-free. But... you just never know. That's how Luella's whole life will be. All just a variable. When will the next seizure be? That's why we fight for a CURE and raise as much awareness and money as we possibly can! She needs a CURE. Thousands of kids like Luella need a CURE. They need to have days that aren't variables. Days they can count on. Will you PLEASE help us raise money for a CURE?</span><p></p><p><span style="font-family: verdana;">So many of our friends and family have stepped up and we are almost half way to the goal of $10,000. Let's do this! </span></p><p><span style="font-family: verdana;">You just never know.... what a group of determined people can accomplish!! </span></p><p><span style="font-family: verdana;">Thanks and love to you all!</span></p><p><span style="font-family: verdana;">Donate here -<a href=" acake4cure.com" target="_blank"> acake4cure.com</a></span></p><p><span style="font-family: verdana;">More details here - <a href="http://littleluella.blogspot.com/2023/05/a-cake-4-cure-is-ten-years-old.html" target="_blank">http://littleluella.blogspot.com/2023/05/a-cake-4-cure-is-ten-years-old.html</a> <br /></span></p><p><span style="font-family: verdana;"> <br /></span></p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEggQENDI9yTpSaUU4wB3buU9U0PcBkgCr18vrYzKIq_fScmf9pajYoMFg8ZkyXDuRMw1TcQkhKcv1Sqfhqbld1lFRKJuX-C7DgqjOkQeKfCB-jtV4geqgcHFYyTVAu7lbtB-YMPxon1IsyJL_HfLCxSxNhvnQ7Z3FhWcrJg4w1ppPKRl64hav0u_1EmYQ/s6335/june%20is%20awareness%20month%20cropped.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="3437" data-original-width="6335" height="217" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEggQENDI9yTpSaUU4wB3buU9U0PcBkgCr18vrYzKIq_fScmf9pajYoMFg8ZkyXDuRMw1TcQkhKcv1Sqfhqbld1lFRKJuX-C7DgqjOkQeKfCB-jtV4geqgcHFYyTVAu7lbtB-YMPxon1IsyJL_HfLCxSxNhvnQ7Z3FhWcrJg4w1ppPKRl64hav0u_1EmYQ/w400-h217/june%20is%20awareness%20month%20cropped.jpg" width="400" /></a></div><br /><p></p><p><span style="font-family: verdana;"> </span><br /></p>Heatherhttp://www.blogger.com/profile/08195762733183145670noreply@blogger.com0tag:blogger.com,1999:blog-8495042362280584288.post-81852863847264367052023-05-30T22:00:00.001-05:002023-05-30T22:00:12.068-05:00a cake 4 a cure is TEN YEARS OLD!!<p style="text-align: center;"><span style="font-family: helvetica;"> <b><span style="font-size: x-large;">It's YEAR TEN!!!</span></b><br /></span></p><p><span style="font-family: helvetica;"><span></span></span></p><div class="separator" style="clear: both; text-align: center;"><span><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhMx6Q41HvRQWAfvyrTdmBXPg5gDbRs3YM2bchYuBC7Tw5nc3NZEbZ8xXmJEcFTWbZkcD32Nmre2BWWJ-d4oq0DiGqxyMdkn-R6Km3h4_NlaqYMeOsa1nvfyR2gNM6e5MTFEIKvBRKBqY8RegcGUBeA28bRL0h5MoyO80HgU2u4ER8pzejXLhr6yGJ3Lw/s3437/acake4acure_2023.jpg" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" data-original-height="3437" data-original-width="3055" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhMx6Q41HvRQWAfvyrTdmBXPg5gDbRs3YM2bchYuBC7Tw5nc3NZEbZ8xXmJEcFTWbZkcD32Nmre2BWWJ-d4oq0DiGqxyMdkn-R6Km3h4_NlaqYMeOsa1nvfyR2gNM6e5MTFEIKvBRKBqY8RegcGUBeA28bRL0h5MoyO80HgU2u4ER8pzejXLhr6yGJ3Lw/s320/acake4acure_2023.jpg" width="284" /></a></span></div><p></p><p><span style="font-family: helvetica;"><span>I can hardly believe "a cake 4 a cure" is TEN YEARS OLD! Over the years we've raised over $13,000 for the Dravet Syndrome Foundation (DSF) in honor of Luella to help find a <b>CURE</b>! </span></span></p><p><span style="font-family: helvetica;"><span><span style="font-size: medium;"><b>This year I'll be drawing TWO WINNERS to celebrate our big milestone year!</b></span> I also have <b><u>BIG GOALS</u></b> this year for fundraising! <b>TIMES TEN!! </b>I usually set a goal of $1,000 and we've always gone over that goal. <b><span style="font-size: medium;">This year I have a HUGE goal of raising $10,000!! </span></b>Can you all help us out?! I would love to celebrate year 10 with 10 grand! PLEASE SHARE!! <br /></span></span></p><p><span style="font-family: helvetica;"><span>Our fundraising site has been set up by the Dravet Syndrome Foundation and you can donate directly to DSF here: <span style="font-size: medium;"><b><a href="http://acake4acure.com">acake4acure.com</a></b></span></span></span></p><p><span style="font-family: helvetica;"><span>If you'd like to donate cash or a check, please give your donation directly to Jim or Heather. Checks can be made out to "Dravet Syndrome Foundation." Please <a href="mailto:heather.m.johnson@gmail.com?subject=a cake 4 a cure" target="_blank">contact me</a> if you have any questions. If you'd like to donate but do NOT want to be included in the drawing, let me know. <br /></span></span></p><p><span style="font-family: helvetica;"><span></span></span></p><div class="separator" style="clear: both; text-align: center;"><span style="font-family: helvetica;"><span><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhu6p3qv8DJdt9yVhKmD6AhLaYvh4NlPumvJZo2yZsOVcodrObLALWSWQo0BWB_XkxOUZ_b_SmPpf3qB_VueVR7fCgWmvt5IcjAuypukXCCD7OeLlJuPlyvZmB-eMVZPjw_ptJHqPGejiW-K2u2tKk-8Hh8r13cf9Shty3PB-voPuixHJ79vE6HJ08eOw/s1498/JJR.jpg" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" data-original-height="1498" data-original-width="1000" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhu6p3qv8DJdt9yVhKmD6AhLaYvh4NlPumvJZo2yZsOVcodrObLALWSWQo0BWB_XkxOUZ_b_SmPpf3qB_VueVR7fCgWmvt5IcjAuypukXCCD7OeLlJuPlyvZmB-eMVZPjw_ptJHqPGejiW-K2u2tKk-8Hh8r13cf9Shty3PB-voPuixHJ79vE6HJ08eOw/w134-h200/JJR.jpg" width="134" /></a></span></span></div><p><span style="font-family: helvetica;"><span>But wait, THERE'S MORE!!! One of my most favorite celebrity bakers - <a href="https://www.youvebeendesserted.com/about" target="_blank">Joshua John Russell</a> of "You've Been Desserted" and formerly "Man About Cake" is partnering with me and he will personally send each winner a gift basket of goodies!! How awesome is that?!? THANK YOU JJR!! You guys, he is the BEST!! </span></span></p><p><span style="font-family: helvetica;"><span><b>More details on the raffle can be found on this post below! </b></span></span><span style="font-family: helvetica;"><span>
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<span style="font-family: helvetica;"><span><b>The donation site will close at NOON on June 23rd and </b></span></span></div><div style="text-align: center;"><span style="font-family: helvetica;"><span><b>the winners will be announced later that evening! </b></span></span></div><span style="font-family: helvetica;"><span>
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<span style="font-family: helvetica;"><span><b>ALL money will be donated to the <a href="http://www.dravetfoundation.org/" target="_blank">Dravet Syndrome Foundation</a> </b></span></span></div><span style="font-family: helvetica;"><span>
</span></span><div style="text-align: center;">
<span style="font-family: helvetica;"><span><b>in honor of Luella to help find a cure! <span style="font-size: large;"><br /></span></b></span></span></div><p><span style="font-family: helvetica;"><span></span></span></p><p style="text-align: center;"><span style="font-size: x-large;"><b><span style="font-family: helvetica;"><span>DONATE HERE!! </span></span><span style="font-family: helvetica;"><span><span><a href="http://acake4acure.com">acake4acure.com</a></span></span></span></b></span></p><p><span style="font-family: helvetica;"><span></span></span></p><p style="text-align: center;"><span style="font-family: helvetica;"><span><span style="font-size: medium;">The winners through the years...</span><br /></span></span></p><p></p><p>
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<span style="font-family: helvetica;"></span></div><div style="text-align: center;"><span style="font-family: helvetica;"></span></div><div style="text-align: center;"><span style="font-family: helvetica;"></span></div><div style="text-align: center;"><span style="font-family: helvetica;"></span></div><div style="text-align: center;"><span style="font-family: helvetica;"><iframe allow="accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share" allowfullscreen="" frameborder="0" height="265" src="https://www.youtube.com/embed/lBc5H6A-0q0" title="YouTube video player" width="460"></iframe> </span></div><div style="text-align: center;"><span style="font-family: helvetica;"> </span></div><div style="text-align: center;"><span style="font-family: helvetica;"> </span> <br /></div><span style="font-family: helvetica;"><span>
</span></span><div style="text-align: center;">
<span style="font-family: helvetica;"></span></div><p></p><p><span style="font-family: helvetica;"><span><b><span style="font-size: large;">So, how does this work exactly?</span></b><br />
Every $5 you donate gets you one entry into the drawing. I will keep track of the number of entries you get. <b>Please note if you live far away you will not win a cake but I will ship 2 dozen cookies</b> (decorated sugar cookies or chocolate chip cookies)! I
will deliver a cake to the winner within a 100 mile radius of Luverne, MN - or you may choose to pick up your cake. If donate and you don't want to be included in the drawing please let me know. </span></span></p><div style="text-align: center;"><div class="separator" style="clear: both; text-align: center;"><span style="font-family: helvetica;"><span><i style="font-size: 16px;"><b><span>**Now for the fine print... </span></b></i></span></span><br /></div></div><div style="text-align: left;">
<span style="font-family: helvetica;"><span><br /></span><span><span><span style="font-size: 16px;">1.
I will only deliver within 100 miles of Luverne MN OR you may arrange to pick up the cake in Luverne. </span><b style="font-size: 16px;">NOTE</b><span style="font-size: 16px;"> – </span><b style="font-size: 16px;">If
you live outside these areas, you may still donate but you will NOT be
eligible for a cake UNLESS YOU pick up or you may choose cookies
that I can ship. </b></span><br /></span></span>
<span style="font-family: helvetica;"><span><br /></span></span>
<span style="font-family: helvetica;"><span><span><span style="font-size: 16px;"><table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: right;"><tbody><tr><td style="text-align: center;"><a href="https://1.bp.blogspot.com/-FFa3D7TszEw/YJ2PhXJGDmI/AAAAAAABNNM/gww5qG16AisdeEOVM0sonUWccmGdIm5hQCLcBGAsYHQ/s2048/DSC_1210a.jpg" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1253" data-original-width="2048" height="219" src="https://1.bp.blogspot.com/-FFa3D7TszEw/YJ2PhXJGDmI/AAAAAAABNNM/gww5qG16AisdeEOVM0sonUWccmGdIm5hQCLcBGAsYHQ/w357-h219/DSC_1210a.jpg" width="357" /></a></td></tr><tr><td class="tr-caption" style="text-align: center;">The winner from 2020 had cookies shipped!!<br /></td></tr></tbody></table>2. The cake will be a 10" round cake (or equivalent). This would be a great sized cake for a birthday with 20-25 guests! </span></span><br /></span></span>
<span style="font-family: helvetica;"><span><span><br style="font-size: 16px;" /><span style="font-size: 16px;">3. Level of detail is to my discretion but we'll coordinate on the design.</span></span><br /></span></span>
<span style="font-family: helvetica;"><span><span><br style="font-size: 16px;" /><span style="font-size: 16px;">4. Cake
must be “ordered” at least 4 weeks in advance. I will try to be
available, although please understand that we might be busy. I would ask that you be flexible and have
another occasion in mind. </span></span><br /></span></span>
<span style="font-family: helvetica;"><span><span><span style="font-size: 16px;"><br /></span></span></span></span>
<span style="font-family: helvetica;"><span><span><span style="font-size: 16px;">5.
The donation website will close down at noon on June 23rd and the winners will be announced on Luella's blog later that evening!! </span></span></span></span></div><div style="text-align: left;"><span style="font-family: helvetica;"><span><span><span style="font-size: 16px;"> </span></span></span></span></div><div style="text-align: left;"><span style="font-family: helvetica;"><span><span><span style="font-size: 16px;">6. The winners will be randomly picked by using wheelofnames.com.</span></span><br /></span></span>
<span style="font-family: helvetica;"><span><span><br /></span></span></span>
<span style="font-family: helvetica;"><span><span>If you'd like to follow Luella's Blog please visit: <a href="http://littleluella.blogspot.com/">http://littleluella.blogspot.com/</a></span><br /></span></span>
<span style="font-family: helvetica;"><span><span><br /></span></span></span>
<span style="font-family: helvetica;"><span><span>If you'd like to learn more about Dravet syndrome or the Dravet Syndrome Foundation, please visit: <a href="http://www.dravetfoundation.org/">http://www.dravetfoundation.org/</a></span><br /></span></span>
<span style="font-family: helvetica;"><span><span><br /></span></span></span>
<span style="font-family: helvetica;"><span><span>To
find out more about my little cake/cookie hobby, check out <a href="https://www.facebook.com/EmbellishedLuv/" target="_blank">Embellished Luv</a> on facebook!
You can see some of the fun cakes and cookies I've made in the past. <b> PLEASE NOTE:</b> I'm currently <u>NOT taking orders</u>. I'm busy with other things these days, BUT the two winners of the raffle will definitely get a cake!! (or cookies!)</span><br /></span></span>
<span style="font-family: helvetica;"><span><br /></span></span>
<span style="font-family: helvetica;"><span><span>Thank you!!! I can't wait to announce this year's <b>winners</b>!!</span></span></span><span style="font-family: helvetica;"><span><b><span style="font-size: x-large;"> <br /></span></b></span></span></div><div style="text-align: center;"><span style="font-family: helvetica;"><span><b><span style="font-size: x-large;">AND please share!!</span></b></span></span><span style="font-family: helvetica;"><span>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: helvetica;"><span><span style="font-size: small;">Luella on the first Dravet Syndrome Awareness Day in 2014. June 23rd is all about her!</span></span></span></td><td class="tr-caption" style="text-align: center;"><span style="font-family: helvetica;"><span><span style="font-size: small;"><br /><br /> </span></span></span></td><td class="tr-caption" style="text-align: center;"><span style="font-family: helvetica;"><span><span style="font-size: small;"> </span></span></span></td><td class="tr-caption" style="text-align: center;"><span style="font-family: helvetica;"><span> </span></span></td><td class="tr-caption" style="text-align: center;"><span style="font-family: helvetica;"><span> </span></span></td><td class="tr-caption" style="text-align: center;"><span style="font-family: helvetica;"><span> </span></span></td><td class="tr-caption" style="text-align: center;"><span style="font-family: helvetica;"><span> </span></span></td></tr>
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<span style="font-family: helvetica;"><span><b><span style="font-size: x-large;">Get your purple ready for June 23rd!</span></b></span></span><div class="separator" style="clear: both; text-align: center;">
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<div style="text-align: center;"><span style="font-family: helvetica;"><a href="https://1.bp.blogspot.com/-WfHBtcbFF8w/WU4noPem3EI/AAAAAAAAcHI/z3HGonr1dvULgMeIBImHIgW4S57MCdbAwCPcBGAYYCw/s1600/dravetDay.jpg"><img border="0" data-original-height="497" data-original-width="900" height="220" src="https://1.bp.blogspot.com/-WfHBtcbFF8w/WU4noPem3EI/AAAAAAAAcHI/z3HGonr1dvULgMeIBImHIgW4S57MCdbAwCPcBGAYYCw/s400/dravetDay.jpg" width="400" /></a></span></div><div style="text-align: center;"><br /><div><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto;"><tbody><tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiMgo1dc_I1pPF1Jf16BFmUUvYmMRVGrrWCYdo6VY2ZFEaddPdO8f4Zs-fuDHrFs8fZCWKOzoC-Pn5MwrILLqvCcOjyUh_vGlOmGPYWy6KEIhpDR8XUuJ42IxROigHtJhKDAKDBHheLjvKyZsSldSPTtiALuf_nkFLfmu4-Q8AmvQn2I6ZcIktSsTZnkg/s5400/Dravet%20Syndrome%20Awareness%202022%20Permission%20Granted.jpg" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="5400" data-original-width="5400" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiMgo1dc_I1pPF1Jf16BFmUUvYmMRVGrrWCYdo6VY2ZFEaddPdO8f4Zs-fuDHrFs8fZCWKOzoC-Pn5MwrILLqvCcOjyUh_vGlOmGPYWy6KEIhpDR8XUuJ42IxROigHtJhKDAKDBHheLjvKyZsSldSPTtiALuf_nkFLfmu4-Q8AmvQn2I6ZcIktSsTZnkg/w400-h400/Dravet%20Syndrome%20Awareness%202022%20Permission%20Granted.jpg" width="400" /></a></td></tr><tr><td class="tr-caption" style="text-align: center;"><span style="font-family: verdana;">Some of the many warriors we fight for!</span><br /></td></tr></tbody></table><span style="font-family: helvetica;"><span style="font-size: medium;"><span><b><span> </span></b></span></span></span></div><div><span style="font-family: helvetica;"><span style="font-size: medium;"><span><b><span> Luella had five seizures last year. </span></b></span></span></span></div><div><span style="font-family: helvetica;"><span style="font-size: medium;"><span><b><span>She made it to 759 days seizure-free in 2021. We hope to get back to some long seizure-free
stretches once again. She's come SO far from the early days with Dravet and we are so grateful for your support over the years! <br /></span></b></span></span></span></div>
<span style="font-family: helvetica;"><span><br /></span></span>
<span style="font-family: helvetica;"><span><b><span style="font-size: x-large;">THANK YOU!!</span></b>
<b><span style="font-size: x-large;"><br /></span></b></span></span>
<span style="font-family: helvetica;"><span><b><span style="font-size: x-large;"><br /></span></b></span></span></div><br /><p style="text-align: center;"><span style="font-size: x-large;"><b><span style="font-family: helvetica;"><span>DONATE HERE!! </span></span><span style="font-family: helvetica;"><span><span><a href="http://acake4acure.com">acake4acure.com</a></span></span></span></b></span></p><span style="font-family: helvetica;"><span>
</span></span><div>
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<br /><br /><br /></span></span></div>Heatherhttp://www.blogger.com/profile/08195762733183145670noreply@blogger.com0tag:blogger.com,1999:blog-8495042362280584288.post-15384666994563124502022-11-29T20:54:00.000-06:002022-11-29T20:54:23.167-06:00Seizure to close out Epilepsy Awareness Month<p>I was going to write a post tonight about how tomorrow is the last day in November and it's the end of Epilepsy Awareness Month. My post was going to be all about the statistics and reasons why we need a cure. Instead I'm writing about ONE reason we need a cure. The ONE with epilepsy we love the most. OUR Dravet warrior - Luella. She had another seizure tonight. A big old grand mal, tonic-clonic, full-body shaking, nasty, fall off the chair, send your glasses flying and chew up your tongue so bad you have a pool of blood forming on the floor under your head - SEIZURE. Sadly, I've seen hundreds of these. We used to have great seizure control and now... not so much. What is changing? Growing, hormones, Dravet evolving? Triggers? Needing more meds? So many questions and no definitive answers. All we can do is just keep going. Trusting that God has control of this and we just need to be here for her. We will KEEP FIGHTING for that CURE! She is our WARRIOR! <br /><br />If you feel so compelled to gift a donation to the Dravet Syndrome Foundation this Christmas season, please visit -<a href="https://dravetfoundation.org/donate/" target="_blank"> https://dravetfoundation.org/donate/</a><br /></p><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto;"><tbody><tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgt5Ot1mqqAo4DBmnQGRsJvtW7sYbs_vYx3H8aShhqh0j13WEQ_Jng6BdLFG15sPS0enxqIY1cxltZNJQ0kqBWDcHt4eK8W4kH0_1ofTQilPXpgf6cBE29_PMtX-qktBUon8R7L3x2oScP9upRnxiNHQcrc6shQR4EZDYjYzb49O_T95Um5x3urfgIVdg/s4032/IMG-2081.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="4032" data-original-width="3024" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgt5Ot1mqqAo4DBmnQGRsJvtW7sYbs_vYx3H8aShhqh0j13WEQ_Jng6BdLFG15sPS0enxqIY1cxltZNJQ0kqBWDcHt4eK8W4kH0_1ofTQilPXpgf6cBE29_PMtX-qktBUon8R7L3x2oScP9upRnxiNHQcrc6shQR4EZDYjYzb49O_T95Um5x3urfgIVdg/w300-h400/IMG-2081.jpg" width="300" /></a></td></tr><tr><td class="tr-caption" style="text-align: center;">Recovering from a nasty seizure.<br /></td></tr></tbody></table><br /><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgwx1vk9ssW6E_2E3of43haQxULGPrCnQ8fJ1hxG218ahfI1hLyHXvC39x3CcuM5bFsd6yT4nnemA7s3uOa8SL1cshWDhBcNtkJa-pcYFk7PVF46oehtzW9YhbDOik_4VP4PMXEkosms6Sukuy20ucrd9qpAqKpO-DWpbIOXizjRLDAkFELPwL0O6Uo0Q/s2551/warrior%20definition.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2551" data-original-width="2550" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgwx1vk9ssW6E_2E3of43haQxULGPrCnQ8fJ1hxG218ahfI1hLyHXvC39x3CcuM5bFsd6yT4nnemA7s3uOa8SL1cshWDhBcNtkJa-pcYFk7PVF46oehtzW9YhbDOik_4VP4PMXEkosms6Sukuy20ucrd9qpAqKpO-DWpbIOXizjRLDAkFELPwL0O6Uo0Q/w400-h400/warrior%20definition.jpg" width="400" /></a></div><br /><p><br /></p>Heatherhttp://www.blogger.com/profile/08195762733183145670noreply@blogger.com0tag:blogger.com,1999:blog-8495042362280584288.post-24185941098443360412022-10-23T22:30:00.004-05:002022-10-23T22:30:20.082-05:00We have a TEENAGER... and MORE seizures<p><span style="font-family: verdana;"><span style="font-size: small;">It's been awhile since I've posted an update! Since my last post in June, Luella has had THREE seizures - one at the end of July, one at the end of August and another one this past Thursday, the day before her thirteenth birthday! She did have a cold for one of the seizures but the others are all a mystery. This is the FOURTH seizure so far this year. </span></span></p><p><span style="font-family: verdana;"><span style="font-size: small;">We decided to increase Luella's meds now; something we haven't done in YEARS! Basically, when she started on diamox just before she turned five, we never increased the dose; even as she grew! She wasn't having seizures and we just decided that it wasn't necessary to change if things were going well. Now is the time. We are hoping a simple adjustment of meds will get us back to that seizure-free state! Meanwhile, it makes me nervous letting her be alone to do things. I feel like I need to constantly check in on her. This is something I've taken for granted up until a year ago when we got to celebrate over 2 years of seizure-freedom. Just another lesson that Dravet syndrome is not constant. We need to change and adapt to what is currently happening. Our prayer is that this will be the worst of what we have to deal with and hopefully things will improve again. </span></span></p><p><span style="font-family: verdana;"><span style="font-size: small;">I was so sad to get the call from Ashlyn while I was at work on Thursday that Luella was seizing. The kids had a break from school for a couple days and Ashlyn was home keeping an eye on Luella while Jim and I were at work. I raced home and by then the seizure had stopped but Luella had blood on the front of her shirt from biting her tongue so hard again. Chewing up her tongue has been a common occurance with the last several seizures. It's so hard to see her do that and know we can't do anything about it. It makes for very painful eating and talking for several days afterwards. </span></span></p><p><span style="font-family: verdana;"><span style="font-size: small;">The timing of this last seizure was sad since Friday was her 13th birthday. By Friday she was feeling better but just dealing with a sore tongue. We celebrated at home with family on Friday night. Luella really wanted to learn to make macarons so we had a MAC-MAKING date and she learned to make them all on her own. Her flavor choices were salted caramel and strawberry cream cheese! YUM! On Saturday we extended the party! She wanted her birthday theme to be PIXELS and we visited several area arcades to get in as many 80s retro, 8-bit (PIXEL) games as we could... PacMan, Space Invaders, Tetris, Pong, etc... It was a fun weekend of celebrating our new teenager! Hard to believe she is thirteen! Hopefully the medication changes will help and we can once again celebrate a nice LONG seizure-free streak!! </span></span></p><p><span style="font-family: verdana;"><span style="font-size: small;"><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto;"><tbody><tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjn_mk6QZrGNLoG41Yt4XyxI76FyagFmkcbbvfWVtaV8zuNRKpcy9nf0diYUPxtgoYOpR5c93k5WGF5iTCs9V184jTgh0KHI0KEkh2E2NQnGsijJ4wO-udKo5wrrkeIqGFkcAVPiGLB8OAdig7RzfeDTcWirkLCHD6U1HoKV8SzJ0hFx6ETO_4tZqrofQ/s1632/01-123_1.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1632" data-original-width="1224" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjn_mk6QZrGNLoG41Yt4XyxI76FyagFmkcbbvfWVtaV8zuNRKpcy9nf0diYUPxtgoYOpR5c93k5WGF5iTCs9V184jTgh0KHI0KEkh2E2NQnGsijJ4wO-udKo5wrrkeIqGFkcAVPiGLB8OAdig7RzfeDTcWirkLCHD6U1HoKV8SzJ0hFx6ETO_4tZqrofQ/s320/01-123_1.jpg" width="240" /></a></td></tr><tr><td class="tr-caption" style="text-align: center;">Seizure Recovery Nest made by Ashlyn.</td></tr></tbody></table></span></span></p><div class="separator" style="clear: both;"><span style="font-family: helvetica;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjIR1z_RboGc1Q6PrjV4ZPL_vWhACIz1ZEBfQ-pf_zlv94m_tMsVCiXfiu528ZjBnbY0nmBuZLyHG8Uui5eG1Rb2v5SSDQe1o_KyomHFn3j1zxxdfNjQZL8Rla_uJoDc9qxFGNY8JWunJ0plhxfsHPTyNnj9zi5hruhZB-WHxCFEEmgB_nckJOcfY9Hxw/s2048/02-IMG_0959.jpg" style="display: block; padding: 1em 0px; text-align: center;"><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto;"><tbody><tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjIR1z_RboGc1Q6PrjV4ZPL_vWhACIz1ZEBfQ-pf_zlv94m_tMsVCiXfiu528ZjBnbY0nmBuZLyHG8Uui5eG1Rb2v5SSDQe1o_KyomHFn3j1zxxdfNjQZL8Rla_uJoDc9qxFGNY8JWunJ0plhxfsHPTyNnj9zi5hruhZB-WHxCFEEmgB_nckJOcfY9Hxw/s2048/02-IMG_0959.jpg" style="display: block; margin-left: auto; margin-right: auto; padding: 1em 0px; text-align: center;"><img alt="" border="0" data-original-height="2048" data-original-width="1536" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjIR1z_RboGc1Q6PrjV4ZPL_vWhACIz1ZEBfQ-pf_zlv94m_tMsVCiXfiu528ZjBnbY0nmBuZLyHG8Uui5eG1Rb2v5SSDQe1o_KyomHFn3j1zxxdfNjQZL8Rla_uJoDc9qxFGNY8JWunJ0plhxfsHPTyNnj9zi5hruhZB-WHxCFEEmgB_nckJOcfY9Hxw/s320/02-IMG_0959.jpg" /></a></td></tr><tr><td class="tr-caption" style="text-align: center;">Luella piping her OWN macarons! <br /></td></tr></tbody></table></a></span></div><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto;"><tbody><tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhcO3u0o9JMnCysX8qNPhub9waNTWZSN9gyHRO4NLtsBdZs8r84uD1kc9f39-Yseuyne-GKx8iPsfJzmwY9KdrG1saK7L1nZzX7Eeq05q5VT63vgDN_l2G06F9yRMmpiNxZbFdzOAukHY0EK4-gyF57AC9UdNRtpyAA-tNxVvlpk5rKHbqKhiUO8E52Ew/s2048/05-IMG_1047.jpg" style="display: block; margin-left: auto; margin-right: auto; padding: 1em 0px; text-align: center;"><img alt="" border="0" data-original-height="2048" data-original-width="1536" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhcO3u0o9JMnCysX8qNPhub9waNTWZSN9gyHRO4NLtsBdZs8r84uD1kc9f39-Yseuyne-GKx8iPsfJzmwY9KdrG1saK7L1nZzX7Eeq05q5VT63vgDN_l2G06F9yRMmpiNxZbFdzOAukHY0EK4-gyF57AC9UdNRtpyAA-tNxVvlpk5rKHbqKhiUO8E52Ew/s320/05-IMG_1047.jpg" /></a></td></tr><tr><td class="tr-caption" style="text-align: center;">FANCY!</td></tr></tbody></table><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto;"><tbody><tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhdrs8j2H2Gm3zM9GRTCiCpL_Nhiy-mCeOlXWPbhdZcAVb68449P1DYW9ENeXsNvx5y0TT8ZBa9wHFUgFKe16405n-pg9SMknAYDXH9f1YkjiuSRUyhKtKBxplXtMevQEwcB7_G5LPbNeGcXLgWO44y0Q7ZmBDlwvf8_72qH37-vmgg3Li117IWBydl4A/s2048/07-IMG_1053.jpg" style="display: block; margin-left: auto; margin-right: auto; padding: 1em 0px; text-align: center;"><img alt="" border="0" data-original-height="2048" data-original-width="1536" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhdrs8j2H2Gm3zM9GRTCiCpL_Nhiy-mCeOlXWPbhdZcAVb68449P1DYW9ENeXsNvx5y0TT8ZBa9wHFUgFKe16405n-pg9SMknAYDXH9f1YkjiuSRUyhKtKBxplXtMevQEwcB7_G5LPbNeGcXLgWO44y0Q7ZmBDlwvf8_72qH37-vmgg3Li117IWBydl4A/s320/07-IMG_1053.jpg" /></a></td></tr><tr><td class="tr-caption" style="text-align: center;">"Pixel" 13 made by Luella! <br /></td></tr></tbody></table><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto;"><tbody><tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjosw_PlU7FJc08Jm3Gj82TBYW2Y13z1160_5mRVxQ2zHEC9PEYks3TNL37nYSZAoYXuDc1ZbYlUsaaJCxALOXPkuq5AYF8zJWE0GCnaTjr5hGU6S4eKn2SsivAqV4MlkG40Bc_4FhJnPwTahf7tWeYEBG2MN1O9JunITHoCBII9U-ZoHt_mZb2GrMnKA/s2048/20-IMG_1134.jpg" style="display: block; margin-left: auto; margin-right: auto; padding: 1em 0px; text-align: center;"><img alt="" border="0" data-original-height="2048" data-original-width="1536" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjosw_PlU7FJc08Jm3Gj82TBYW2Y13z1160_5mRVxQ2zHEC9PEYks3TNL37nYSZAoYXuDc1ZbYlUsaaJCxALOXPkuq5AYF8zJWE0GCnaTjr5hGU6S4eKn2SsivAqV4MlkG40Bc_4FhJnPwTahf7tWeYEBG2MN1O9JunITHoCBII9U-ZoHt_mZb2GrMnKA/s320/20-IMG_1134.jpg" /></a></td></tr><tr><td class="tr-caption" style="text-align: center;">Space Invaders with Ashlyn.<br /></td></tr></tbody></table><div style="text-align: center;"><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto;"><tbody><tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEicQKACx31fehK2OoRHC9F2so-ROXb_r0ExhTxr_lLRGxCNW8rMtaNKzs01FXt2DmDYvbnx9uMPgVwFANjuC4FDAV9qc_LneuwR5EvTVscnkXXX_VBVedbxxpmJUU5lafo53JUWb6BlnaDV9wE5b-Og3c1Y0QdnxU0TygMJzI2K2SJ3gFFgfh6qPZqd4A/s2048/IMG_1149.JPEG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="2048" data-original-width="1536" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEicQKACx31fehK2OoRHC9F2so-ROXb_r0ExhTxr_lLRGxCNW8rMtaNKzs01FXt2DmDYvbnx9uMPgVwFANjuC4FDAV9qc_LneuwR5EvTVscnkXXX_VBVedbxxpmJUU5lafo53JUWb6BlnaDV9wE5b-Og3c1Y0QdnxU0TygMJzI2K2SJ3gFFgfh6qPZqd4A/s320/IMG_1149.JPEG" width="240" /></a></td></tr><tr><td class="tr-caption" style="text-align: center;">Gaming with dad and Ryker.<br /></td></tr></tbody></table><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto;"><tbody><tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgzo2V6mKwM6AKaZtrBVaZMGdGge0wiV0Ke6Y9vZ8KLgm3W422rcoo4xGnDtJhMsfswt4KrD2dhBfA2F3hNFgnadcPFPL350_7oViaVRayoYiz8O4_YdJwka_mSv_qGJ3MVs-XO488bMbWMOtKFzs8McqTP78HV2GukWr_2hXWZ6oU0auHeDD2HT1sCUw/s2048/22-IMG_1138.jpg" style="display: block; margin-left: auto; margin-right: auto; padding: 1em 0px; text-align: center;"><img alt="" border="0" data-original-height="1536" data-original-width="2048" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgzo2V6mKwM6AKaZtrBVaZMGdGge0wiV0Ke6Y9vZ8KLgm3W422rcoo4xGnDtJhMsfswt4KrD2dhBfA2F3hNFgnadcPFPL350_7oViaVRayoYiz8O4_YdJwka_mSv_qGJ3MVs-XO488bMbWMOtKFzs8McqTP78HV2GukWr_2hXWZ6oU0auHeDD2HT1sCUw/s320/22-IMG_1138.jpg" width="320" /></a></td></tr><tr><td class="tr-caption" style="text-align: center;">Four-player PacMan!<br /></td></tr></tbody></table><br /></div><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto;"><tbody><tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg48g9aW9wYavvdVm9UJiIZwQHRTDTVAK_Kbcc_IRcm4xRAA6IWe8uNznTG1hiCBtKRhbxcXY2fqlYGKK9xZtcVzzHYU6GRET1Q20lc3ejoqMX6pm-my78R20DtQ11oqHtP7f4bQzr6ZB5C_YrgRlre7Zn5wgIa3NO5SBpBk9L2A6ZwO5XFRFzIJ5vklg/s2048/24-IMG_1144.jpg" style="display: block; margin-left: auto; margin-right: auto; padding: 1em 0px; text-align: center;"><img alt="" border="0" data-original-height="2048" data-original-width="1536" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg48g9aW9wYavvdVm9UJiIZwQHRTDTVAK_Kbcc_IRcm4xRAA6IWe8uNznTG1hiCBtKRhbxcXY2fqlYGKK9xZtcVzzHYU6GRET1Q20lc3ejoqMX6pm-my78R20DtQ11oqHtP7f4bQzr6ZB5C_YrgRlre7Zn5wgIa3NO5SBpBk9L2A6ZwO5XFRFzIJ5vklg/w300-h400/24-IMG_1144.jpg" width="300" /></a></td></tr><tr><td class="tr-caption" style="text-align: center;">Luella WON!!<br /></td></tr></tbody></table>Heatherhttp://www.blogger.com/profile/08195762733183145670noreply@blogger.com0tag:blogger.com,1999:blog-8495042362280584288.post-35480495926472342362022-06-28T21:02:00.004-05:002022-11-26T08:59:38.372-06:00CAMP OZ!<p><span style="font-family: helvetica;">What a week it was!! Luella attended Camp Oz in Hudson,WI June 19 - 24 and had a blast! She's already talking about camp next year!<br /></span></p><p><i><span style="font-family: helvetica;"><b>What is Camp Oz? </b>(From the Epilepsy Foundation of Minnesota's website.)<br /></span></i></p><p class="wp-block-paragraph" style="margin-left: 40px; text-align: left;"><i><span style="font-family: helvetica;">Founded in 1982, Camp Oz is a traditional
summer camp that provides a safe and fun camping experience for youth
ages 9–17 with epilepsy. </span></i></p><div style="margin-left: 40px; text-align: left;">
</div><p class="wp-block-paragraph" style="margin-left: 40px; text-align: left;"><i><span style="font-family: helvetica;">Camp Oz is intended for youth with
epilepsy, and siblings, ages 9-17 who have a high level of independence.
Traditionally, campers enjoy activities like swimming, horseback
riding, team-building exercises, and more. Space includes 15 cabins, two
modern bathroom/shower buildings, an indoor lodge/dining hall/activity
center and beachfront access. </span></i></p><p class="wp-block-paragraph" style="text-align: left;"><span style="font-family: helvetica;">Luella was all ready to go to Camp Oz in 2020. You can take a sibling and Ashlyn was also signed up to go with Luella, then COVID hit. Camp was cancelled. This was the first year Camp Oz was back! Luella was ready to go - even without her sister since Ashlyn was also gone that week for a choir trip to NYC.</span></p><p class="wp-block-paragraph" style="text-align: left;"><span style="font-family: helvetica;">Jim and I dropped Luella off at camp on Father's Day, June 19. It was HOT. No air conditioning in the cabins but it wasn't too bad. Each camper brought their own personal fan. We helped Luella set up her sleeping area and she met her cabin counselors. Luella's cabin had 7 girls, 2 camp counselors and a cabin nurse. I felt very confident in leaving Luella at camp and knew she was in good hands. </span></p><p class="wp-block-paragraph" style="text-align: left;"><span style="font-family: helvetica;">Today pictures from camp were shared with the families and it definitely looked like a fun time. Swimming, archery, games, rock climbing, camp fires with s'mores, dancing, songs, crafts, horses, etc... WHEW! </span></p><p class="wp-block-paragraph" style="text-align: left;"><span style="font-family: helvetica;">Luella filled out a camper survey the last day of camp. One of the questions was, "What was the best part of camp?" Her reply? "Being away from my parents!!" The camp staff got a kick out of that! I get it... she basically doesn't get to be away from us much at home. She gets a little freedom to be outside at our house, or at the neighbors, with friends, but she can't just go to the park or go off on her own. At camp she had more freedom and she loved that! I hope and pray she continues to do so well and can have more experiences like these! <br /></span></p><p class="wp-block-paragraph" style="text-align: left;"></p><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto;"><tbody><tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEimbXssoFudGhplQDNpoZ_7zsvce2pSMs90Z9CnEINr__VWuAGatoe3LAgLKDKgMXPwTbfduSrY-yTvM3Q-sCVibLzANsh9RV9N-E8zWe8Ye9x3xV1WGlHq-PSXSCaHAm3CoNB0E3rpJ_7xMpFtROGqDky9gT9flxdkIDrB2K1V7SYZaOCVpHxF0C-IUw/s8256/52178487997_016d505007_o.jpg" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="5504" data-original-width="8256" height="266" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEimbXssoFudGhplQDNpoZ_7zsvce2pSMs90Z9CnEINr__VWuAGatoe3LAgLKDKgMXPwTbfduSrY-yTvM3Q-sCVibLzANsh9RV9N-E8zWe8Ye9x3xV1WGlHq-PSXSCaHAm3CoNB0E3rpJ_7xMpFtROGqDky9gT9flxdkIDrB2K1V7SYZaOCVpHxF0C-IUw/w400-h266/52178487997_016d505007_o.jpg" width="400" /></a></td></tr><tr><td class="tr-caption" style="text-align: center;">Luella (far left) and her cabin mates.<br /></td></tr></tbody></table><br /><p></p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjgkQ450rzptV_FkWLILl_w0sBpfYLnRD7TBJBMJbWYULFRyLbKD6xVi255rIStjZafVLzgEGq0DJB1SZWi6Hw4Y4rWeb3Tc6J2FRdAO6hh7kMe-TXFiIyTNcpgsxmq8I8QlT7wT6O15w8v7BAXYL-9v1rCH3BWz5Uw4y_1WaTdzXjxgMbfRN043iM2yg/s4032/52177784419_e3a867c572_o.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="3024" data-original-width="4032" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjgkQ450rzptV_FkWLILl_w0sBpfYLnRD7TBJBMJbWYULFRyLbKD6xVi255rIStjZafVLzgEGq0DJB1SZWi6Hw4Y4rWeb3Tc6J2FRdAO6hh7kMe-TXFiIyTNcpgsxmq8I8QlT7wT6O15w8v7BAXYL-9v1rCH3BWz5Uw4y_1WaTdzXjxgMbfRN043iM2yg/w400-h300/52177784419_e3a867c572_o.jpg" width="400" /></a></div><div class="separator" style="clear: both; text-align: center;"> </div><div class="separator" style="clear: both; text-align: center;"><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiU-Ft3VoLuSUvG9k6H7X8OGOZYpP14RYs5QzTA2q-Tn1P5hlxJIIwJulDwx53sB5683W9hw8WDM_QZ2XH-X2xqO61lE9_JW9k6XajCPCrUSL3qwSxpMS09BbWAiqpTzlimATP__KZlaWRzVldLGdiC1DAskoy1Keo3btLGCnpE1CalxqwhH4AIvcH0mQ/s4032/52177784379_5f89c9bcf0_o.jpg" style="margin-left: 1em; 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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhhLPRJYiHdJq4D72VLgIkD2YCeVjMqf1AkkB6Y6Gb5OHvYI0yr4EmUvp9Qd4rHI8rhY9Lw9tCN8qiI5h39mJiDoPjLQtjm81_3CElmg4mS9Sxu3rvRCzRMCwZmEeRwlrSWg7a-KJyNEifJ_vv69zoFiBzXPDZwZie8UnB8ITXMjckQfnOBRQe1RjmTew/s8256/52178490512_2bbe589efd_o.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="5504" data-original-width="8256" height="266" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhhLPRJYiHdJq4D72VLgIkD2YCeVjMqf1AkkB6Y6Gb5OHvYI0yr4EmUvp9Qd4rHI8rhY9Lw9tCN8qiI5h39mJiDoPjLQtjm81_3CElmg4mS9Sxu3rvRCzRMCwZmEeRwlrSWg7a-KJyNEifJ_vv69zoFiBzXPDZwZie8UnB8ITXMjckQfnOBRQe1RjmTew/w400-h266/52178490512_2bbe589efd_o.jpg" width="400" /></a></div><br /><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhG6U0QlriRxdRZteW2IYtS2PIdDfn3D0ShAWMex7Pvrwn10YrKp_9ywHfPCouVpgKbzlVmVlYZZj2EeaXGbsEhSrdhW3VV3oJgcu5qirtqymPsQ8RPzxYK7ld8Awh2c8_sfZseJ9-VPYEwPhX7KGP-YR3iO6Hwyi9fDciV6WTMiVhG593Cbafhdq7J7A/s8256/52179774979_1078a94b37_o.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="5504" data-original-width="8256" height="266" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhG6U0QlriRxdRZteW2IYtS2PIdDfn3D0ShAWMex7Pvrwn10YrKp_9ywHfPCouVpgKbzlVmVlYZZj2EeaXGbsEhSrdhW3VV3oJgcu5qirtqymPsQ8RPzxYK7ld8Awh2c8_sfZseJ9-VPYEwPhX7KGP-YR3iO6Hwyi9fDciV6WTMiVhG593Cbafhdq7J7A/w400-h266/52179774979_1078a94b37_o.jpg" width="400" /></a></div><br /><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiDjpNaYqkTcMH2dM-nr4Z2gUIcO1fhbacYM01_7VrCjsJsw9Yzu32rbQGUBa1Buupqv4pDK1v9I7gZzLO1I3bA3wdK_DheGzvxQCalMLrPjBc8rmwu5Jo99xVls3EC1Fx0_bFr3MTYElZxTrM0FCVinicZJ6NO5RMa72Lu17mptCdDuxTpTGW77Lrd-Q/s4032/IMG_5989.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="4032" data-original-width="3024" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiDjpNaYqkTcMH2dM-nr4Z2gUIcO1fhbacYM01_7VrCjsJsw9Yzu32rbQGUBa1Buupqv4pDK1v9I7gZzLO1I3bA3wdK_DheGzvxQCalMLrPjBc8rmwu5Jo99xVls3EC1Fx0_bFr3MTYElZxTrM0FCVinicZJ6NO5RMa72Lu17mptCdDuxTpTGW77Lrd-Q/w300-h400/IMG_5989.JPG" width="300" /></a></div><p></p><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto;"><tbody><tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiOwOqDqJbBGQY5ZI_uUlAWazA2YKz9pn7Nmp93VUkXpeqhcS-hOJSxyZCE9mTDj_JX2XwN9fOU7qra1weeJWxk07_aw0uGz7wzmymzXQXch1Qof80kkHrU1EqgMBGpxfMWrb-sCy4u0TGSyjf1Fb1-afQ--zvyJ6OxPgT83Ao6RrIKA7bmn_W7D33gig/s6000/52178031375_634022a3d6_LUELLA.jpg" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="4000" data-original-width="6000" height="266" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiOwOqDqJbBGQY5ZI_uUlAWazA2YKz9pn7Nmp93VUkXpeqhcS-hOJSxyZCE9mTDj_JX2XwN9fOU7qra1weeJWxk07_aw0uGz7wzmymzXQXch1Qof80kkHrU1EqgMBGpxfMWrb-sCy4u0TGSyjf1Fb1-afQ--zvyJ6OxPgT83Ao6RrIKA7bmn_W7D33gig/w400-h266/52178031375_634022a3d6_LUELLA.jpg" width="400" /></a></td></tr><tr><td class="tr-caption" style="text-align: center;">Camp Oz 2022<br />(Luella is right above the purple heart.)<br /></td></tr></tbody></table><p class="wp-block-paragraph" style="text-align: left;"><span style="font-family: helvetica;">Camp Oz staff are truly amazing! They are so well organized and they do all the right things to keep kids like Luella safe while away from home and getting to do something so many kids do every summer without any extra thought. A LOT of thought goes into Camp Oz and we thank all those who made this week of camp so amazing for Luella and 60+ campers! </span></p><p class="wp-block-paragraph" style="text-align: center;"><span style="font-family: helvetica;">If you'd like to read the camp blog about the daily activities during <br />Luella's week you can do that here: </span></p><p class="wp-block-paragraph" style="text-align: center;"><span style="font-family: helvetica;"><a href="https://www.epilepsyfoundationmn.org/about-efmn/blog/">https://www.epilepsyfoundationmn.org/about-efmn/blog/</a><br /></span></p>Heatherhttp://www.blogger.com/profile/08195762733183145670noreply@blogger.com0tag:blogger.com,1999:blog-8495042362280584288.post-18684258927067790452022-06-23T20:46:00.000-05:002022-06-23T20:46:48.580-05:00WOW! Another spectacular fundraising year!! AND WE HAVE A WINNER!!<p> </p><span style="font-family: verdana;">
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<span style="font-family: verdana;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><span style="color: #351c75;"><span style="font-size: large;"><b>I'm excited to announce that YOU helped us raise <br /></b></span></span></span></span></div><span style="font-family: verdana;">
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<span style="font-family: verdana;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><span style="font-size: x-large;"><span style="color: #351c75;"><b>$1,570<br /></b></span></span></span></span></div><span style="font-family: verdana;">
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<span style="font-family: verdana;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><span style="color: #351c75;"><span style="font-size: large;"><b>for the Dravet Syndrome Foundation in honor of <span style="font-size: x-large;">Luella!! </span></b></span></span></span></span></div><span style="font-family: verdana;">
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<span face=""helvetica neue", "arial", "helvetica", sans-serif">YAY!!
Thank you SO MUCH to all to our VERY GENEROUS donors!! We could NOT do
this every year without all your help!! ALL of this money will be sent
to the Dravet Syndrome Foundation to help find a CURE!! </span><br />
<span face=""helvetica neue", "arial", "helvetica", sans-serif">There is some
really amazing research happening with Dravet syndrome and we've been
blessed
to send them<span style="color: #351c75;"><b> OVER $13,366 over the past 9 years </b></span>thanks to all of your support!!</span><br />
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<span style="font-family: verdana;"><span style="font-size: x-large;"><span style="color: #351c75;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><b>And now for the exciting announcement! <br /></b></span></span></span></span></div><div style="text-align: center;"><span style="font-family: verdana;"><span style="font-size: x-large;"><span style="color: #351c75;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><b>THE WINNER of a </b></span></span></span></span></div><div style="text-align: center;"><span style="font-family: verdana;"><span style="font-size: x-large;"><span style="color: #351c75;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><b>cake 4 a cure is...</b></span></span></span><br /></span>
<span style="font-family: verdana;"><span style="font-size: x-large;"><span style="color: #351c75;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><b><span style="font-size: small;">(drumroll)</span></b></span></span></span></span></div><span style="font-family: verdana;">
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</span><div style="text-align: center;"><h1>
<span style="font-family: verdana;"><span style="color: #351c75;"><b><span style="font-size: x-large;"><span>Brooke VandenHoek!!</span></span></b></span><br /></span></h1></div><span style="font-family: verdana;">
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<span style="font-family: verdana;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><span style="font-size: small;"><span style="color: #351c75;"><b> </b></span></span></span></span></div><span style="font-family: verdana;">
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<span style="font-family: verdana;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><span style="font-size: large;"><span style="color: #351c75;"><b>Congratulations!! </b></span></span></span><br /></span>
<span style="font-family: verdana;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><span style="font-size: large;"><span style="color: #351c75;"><b>And thanks again to EVERYONE who </b></span></span></span><br /></span>
<span style="font-family: verdana;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><span style="font-size: large;"><span style="color: #351c75;"><b>contributed to this fundraising effort!! </b></span></span></span><br /></span>
<span style="font-family: verdana;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><span style="font-size: large;"><span style="color: #351c75;"><b>We have some AMAZING supporters and we are </b></span></span></span><br /></span>
<span style="font-family: verdana;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><span style="font-size: large;"><span style="color: #351c75;"><b>SO VERY GRATEFUL to all of you!! </b></span></span></span></span></div><span style="font-family: verdana;">
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<span style="font-family: verdana;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><span style="font-size: small;"><span style="color: #351c75;"><b>Here's a video of the drawing!!<br /></b></span></span></span></span></div><div style="text-align: center;"><span style="font-family: verdana;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><span style="font-size: small;"><span style="color: #351c75;"><b> </b></span></span></span></span></div><div style="text-align: center;"><span style="font-family: verdana;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><span style="font-size: small;"><span style="color: #351c75;"><b> </b></span></span></span></span></div><span style="font-family: verdana;">
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<br /><iframe allow="accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture" allowfullscreen="" frameborder="0" height="315" src="https://www.youtube.com/embed/SPaxcQnpxcM" title="YouTube video player" width="560"></iframe>
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<span style="font-family: verdana;"><span face=""helvetica neue", "arial", "helvetica", sans-serif">Link to video of the drawing: </span></span></div><span style="font-family: verdana;">
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<a href="https://youtu.be/SPaxcQnpxcM">https://youtu.be/SPaxcQnpxcM</a><br /></span> </div><span style="font-family: verdana;">
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<span style="color: #351c75;"><span style="font-family: verdana;"><span style="font-size: large;">Thank you again and please stayed tuned </span></span></span></div><div class="separator" style="clear: both; text-align: center;"><span style="color: #351c75;"><span style="font-family: verdana;"><span style="font-size: large;">next JUNE for something big for</span></span></span></div><div class="separator" style="clear: both; text-align: center;"><span style="font-size: x-large;"><span style="color: #351c75;"><span style="font-family: verdana;">YEAR TEN!!</span></span></span></div><div class="separator" style="clear: both; text-align: center;"><span style="font-size: x-large;"><span style="color: #351c75;"><span style="font-family: verdana;"> </span></span></span></div><div class="separator" style="clear: both; text-align: center;"><span style="font-size: x-large;"><span style="color: #351c75;"><span style="font-family: verdana;"><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgNVwJ0i2tGXr7k7FwXMkwFUgPmZJ3XKDZyEWry6j-YQiHiP8xCFW4_z_pz2-C17WMt-J9nCtDtjOg7f837hOsu5qpX3vk1M-yZSJnCm-BR4VCNlCOYXJjIwgYBqkoSt5mxg5WlPBVudzfQ_Qa2FKDyvmTXokwj2fY1F7cGVBl5mkcZp7m2hNtWExBL2Q/s4032/IMG_1025a.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="3024" data-original-width="4032" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgNVwJ0i2tGXr7k7FwXMkwFUgPmZJ3XKDZyEWry6j-YQiHiP8xCFW4_z_pz2-C17WMt-J9nCtDtjOg7f837hOsu5qpX3vk1M-yZSJnCm-BR4VCNlCOYXJjIwgYBqkoSt5mxg5WlPBVudzfQ_Qa2FKDyvmTXokwj2fY1F7cGVBl5mkcZp7m2hNtWExBL2Q/w400-h300/IMG_1025a.jpg" width="400" /></a></div><br /> </span></span></span><br /><span style="font-family: verdana;"><br /></span></div><span style="font-family: verdana;">
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</span>Heatherhttp://www.blogger.com/profile/08195762733183145670noreply@blogger.com0tag:blogger.com,1999:blog-8495042362280584288.post-64717507685371604612022-06-08T09:36:00.001-05:002022-11-26T09:01:50.931-06:009th Annual "a cake 4 a cure" - DONATE TODAY<p> </p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjET_UXo_QI67pVsrhKXU2q4IkbwohJC-c7__2cK_oRd3wV5b4zOlLW5Nt9Gl009SRHizi0OnPbPHZvyxUjMuXOY3FH2Wg_4dtV7ICqYtcB-wzlrc-40WMcC8j5hpJkJNxPuOgZjt3St30t1N_xfAj38ZTAGDwiDOf6kNpRBieXkG6nVVmtqkYLwtzzHQ/s845/cake4aCure_logo_2022.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="441" data-original-width="845" height="208" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjET_UXo_QI67pVsrhKXU2q4IkbwohJC-c7__2cK_oRd3wV5b4zOlLW5Nt9Gl009SRHizi0OnPbPHZvyxUjMuXOY3FH2Wg_4dtV7ICqYtcB-wzlrc-40WMcC8j5hpJkJNxPuOgZjt3St30t1N_xfAj38ZTAGDwiDOf6kNpRBieXkG6nVVmtqkYLwtzzHQ/w400-h208/cake4aCure_logo_2022.jpg" width="400" /></a></div><span style="font-family: helvetica;">This year is my <b>NINTH ANNUAL</b> “a cake 4 a cure” fundraiser to
raise money for the Dravet Syndrome Foundation to help find a cure for
this rare form of epilepsy!! Every
year we do this we are so amazed by all the "regulars" who continue to
support Luella and our quest for a CURE! If this is your first time
donating, we appreciate YOU too!! We could not do this without all of
you!<br /></span><p></p><p>
</p><div style="text-align: center;"><span style="font-family: helvetica;">
Please visit the fundraising
website <a href="https://gofund.me/65f33464" target="_blank">(GoFundMe)</a> to make a donation.<br /></span>
<span style="font-family: helvetica;"><a href="https://www.gofundme.com/f/uvy2xf-dravet-syndrome-awareness-for-luella" target="_blank"><span color="unset" style="animation: unset; backface-visibility: unset; background-blend-mode: unset; background: unset; block-size: unset; border-block: unset; border-collapse: unset; border-end-end-radius: unset; border-end-start-radius: unset; border-inline: unset; border-radius: unset; border-spacing: unset; border-start-end-radius: unset; border-start-start-radius: unset; border: unset; bottom: unset; box-decoration-break: unset; box-shadow: unset; box-sizing: unset; break-after: unset; break-before: unset; break-inside: unset; caption-side: unset; caret-color: unset; clear: unset; clip-path: unset; clip-rule: unset; clip: rect(0px, 0px, 0px, 0px); color-adjust: unset; color-interpolation-filters: unset; color-interpolation: unset; column-fill: unset; column-rule: unset; columns: unset; content: unset; counter-increment: unset; counter-reset: unset; counter-set: unset; cursor: unset; display: unset; dominant-baseline: unset; empty-cells: unset; fill-opacity: unset; fill-rule: unset; fill: unset; filter: unset; flex-flow: unset; flex: unset; float: unset; flood-color: unset; flood-opacity: unset; font-feature-settings: unset; font-kerning: unset; font-language-override: unset; font-optical-sizing: unset; font-size-adjust: unset; font-size: unset; font-stretch: unset; font-style: unset; font-synthesis: unset; font-variant: unset; font-variation-settings: unset; font-weight: unset; gap: unset; grid-area: unset; grid: unset; height: unset; hyphens: unset; image-orientation: unset; image-rendering: unset; ime-mode: unset; inline-size: unset; inset-block: unset; inset-inline: unset; isolation: unset; left: unset; letter-spacing: unset; lighting-color: unset; line-height: unset; list-style: unset; margin-block: unset; margin-inline: unset; margin: unset; marker: unset; mask-type: unset; mask: unset; max-block-size: unset; max-height: unset; max-inline-size: unset; max-width: unset; min-block-size: unset; min-height: unset; min-inline-size: unset; min-width: unset; mix-blend-mode: unset; object-fit: unset; object-position: unset; opacity: unset; order: unset; outline-offset: unset; outline: unset; overflow-anchor: unset; overflow-wrap: unset; overflow: unset; overscroll-behavior: unset; padding-block: unset; padding-inline: unset; padding: unset; paint-order: unset; perspective-origin: unset; perspective: unset; place-content: unset; place-items: unset; place-self: unset; pointer-events: unset; position: fixed; quotes: unset; resize: unset; right: unset; ruby-align: unset; ruby-position: unset; scroll-behavior: unset; scroll-margin-block: unset; scroll-margin-inline: unset; scroll-margin: unset; scroll-padding-block: unset; scroll-padding-inline: unset; scroll-padding: unset; scroll-snap-align: unset; scroll-snap-type: unset; scrollbar-color: unset; scrollbar-width: unset; shape-image-threshold: unset; shape-margin: unset; shape-outside: unset; shape-rendering: unset; stop-color: unset; stop-opacity: unset; stroke-dasharray: unset; stroke-dashoffset: unset; stroke-linecap: unset; stroke-linejoin: unset; stroke-miterlimit: unset; stroke-opacity: unset; stroke-width: unset; stroke: unset; table-layout: unset; text-align-last: unset; text-align: unset; text-anchor: unset; text-combine-upright: unset; text-decoration: unset; text-emphasis-position: unset; text-emphasis: unset; text-indent: unset; text-justify: unset; text-orientation: unset; text-overflow: unset; text-rendering: unset; text-shadow: unset; text-transform: unset; top: 0px; touch-action: unset; transform-box: unset; transform-origin: unset; transform-style: unset; transform: unset; transition: unset; vector-effect: unset; vertical-align: unset; visibility: unset; white-space: pre; width: unset; will-change: unset; word-break: unset; word-spacing: unset; writing-mode: unset; z-index: unset;">https://www.gofundme.com/f/uvy2xf-dravet-syndrome-awareness-for-luella</span></a></span></div><span style="font-family: helvetica;">
</span><div style="text-align: center;">
<span style="font-family: helvetica;"><br /></span>
<span style="font-family: helvetica;"><b>More details on the raffle can be found on this post below! PLEASE
NOTE: There won't be anything about the raffle on the donation site at
GoFundMe - that is strictly a place to donate. I will keep track of what
you donated to make sure you have the correct number of entries in the
drawing. </b></span></div><span style="font-family: helvetica;">
<br />
</span><div style="text-align: center;">
<span style="font-family: helvetica;"><b>The donation site will close at NOON on June 23rd and </b></span></div><div style="text-align: center;"><span style="font-family: helvetica;"><b>a winner will be announced later that evening! </b></span></div><span style="font-family: helvetica;">
<br />
</span><div style="text-align: center;">
<span style="font-family: helvetica;"><b>ALL money will be donated to the <a href="http://www.dravetfoundation.org/" target="_blank">Dravet Syndrome Foundation</a> </b></span></div><span style="font-family: helvetica;">
</span><div style="text-align: center;">
<span style="font-family: helvetica;"><b>in honor of Luella and to help find a cure! <span style="font-size: large;"> </span></b></span></div><span style="font-family: helvetica;">
</span><div style="text-align: center;">
<span style="font-family: helvetica;"><b><span style="font-size: large;"> </span></b></span></div><div style="text-align: center;"><span style="font-family: helvetica;"><b><span style="font-size: large;">Over the past 8 years we've sent OVER $11,500 to the </span></b></span></div><span style="font-family: helvetica;">
</span><div style="text-align: center;">
<span style="font-family: helvetica;"><b><span style="font-size: large;">Dravet Syndrome Foundation!! </span></b></span></div><span style="font-family: helvetica;">
</span><div style="text-align: center;">
<span style="font-family: helvetica;"><b><span style="font-size: large;">THANK YOU!!!</span></b></span><br /><span style="font-family: helvetica;"><b>
</b></span></div><div style="text-align: center;"><h4><b><span style="font-family: helvetica;">
Last
year's winner was The Nolz Family!</span></b><span style="font-family: helvetica;"><br /></span></h4></div><span style="font-family: helvetica;"><b><span style="font-size: large;">So, how does this fundraising raffle work?</span></b><br />
Each entry into the drawing is $5. If you donate $50 - you will get 10 entries into the drawing. <b>Please note if you live far away you will not win a cake but I will ship 2 dozen cookies</b> (decorated sugar cookies or chocolate chip cookies)! I
will deliver a cake to the winner in Luverne, Sioux Falls or Estelline, SD
areas OR you may arrange to pick up the cake in Luverne.<br />
<br />
</span><div style="text-align: center;">
<span style="font-family: helvetica;"><b><span style="font-size: large;">Please visit <a href="https://gofund.me/65f33464" target="_blank">GoFundMe</a> </span></b><b><span style="font-size: large;">to make a donation </span></b><br /></span>
<span style="font-family: helvetica;"><b><span style="font-size: large;">or cash or checks (made out to DSF) </span></b><br /></span>
<span style="font-family: helvetica;"><b><span style="font-size: large;">can be given to Heather or Jim!! </span></b></span></div><span style="font-family: helvetica;">
</span><div style="text-align: left;">
<div style="text-align: center;">
<span style="font-family: helvetica;"><a href="https://www.gofundme.com/f/uvy2xf-dravet-syndrome-awareness-for-luella" target="_blank"><span color="unset" style="animation: unset; backface-visibility: unset; background-blend-mode: unset; background: unset; block-size: unset; border-block: unset; border-collapse: unset; border-end-end-radius: unset; border-end-start-radius: unset; border-inline: unset; border-radius: unset; border-spacing: unset; border-start-end-radius: unset; border-start-start-radius: unset; border: unset; bottom: unset; box-decoration-break: unset; box-shadow: unset; box-sizing: unset; break-after: unset; break-before: unset; break-inside: unset; caption-side: unset; caret-color: unset; clear: unset; clip-path: unset; clip-rule: unset; clip: rect(0px, 0px, 0px, 0px); color-adjust: unset; color-interpolation-filters: unset; color-interpolation: unset; column-fill: unset; column-rule: unset; columns: unset; content: unset; counter-increment: unset; counter-reset: unset; counter-set: unset; cursor: unset; display: unset; dominant-baseline: unset; empty-cells: unset; fill-opacity: unset; fill-rule: unset; fill: unset; filter: unset; flex-flow: unset; flex: unset; float: unset; flood-color: unset; flood-opacity: unset; font-feature-settings: unset; font-kerning: unset; font-language-override: unset; font-optical-sizing: unset; font-size-adjust: unset; font-size: unset; font-stretch: unset; font-style: unset; font-synthesis: unset; font-variant: unset; font-variation-settings: unset; font-weight: unset; gap: unset; grid-area: unset; grid: unset; height: unset; hyphens: unset; image-orientation: unset; image-rendering: unset; ime-mode: unset; inline-size: unset; inset-block: unset; inset-inline: unset; isolation: unset; left: unset; letter-spacing: unset; lighting-color: unset; line-height: unset; list-style: unset; margin-block: unset; margin-inline: unset; margin: unset; marker: unset; mask-type: unset; mask: unset; max-block-size: unset; max-height: unset; max-inline-size: unset; max-width: unset; min-block-size: unset; min-height: unset; min-inline-size: unset; min-width: unset; mix-blend-mode: unset; object-fit: unset; object-position: unset; opacity: unset; order: unset; outline-offset: unset; outline: unset; overflow-anchor: unset; overflow-wrap: unset; overflow: unset; overscroll-behavior: unset; padding-block: unset; padding-inline: unset; padding: unset; paint-order: unset; perspective-origin: unset; perspective: unset; place-content: unset; place-items: unset; place-self: unset; pointer-events: unset; position: fixed; quotes: unset; resize: unset; right: unset; ruby-align: unset; ruby-position: unset; scroll-behavior: unset; scroll-margin-block: unset; scroll-margin-inline: unset; scroll-margin: unset; scroll-padding-block: unset; scroll-padding-inline: unset; scroll-padding: unset; scroll-snap-align: unset; scroll-snap-type: unset; scrollbar-color: unset; scrollbar-width: unset; shape-image-threshold: unset; shape-margin: unset; shape-outside: unset; shape-rendering: unset; stop-color: unset; stop-opacity: unset; stroke-dasharray: unset; stroke-dashoffset: unset; stroke-linecap: unset; stroke-linejoin: unset; stroke-miterlimit: unset; stroke-opacity: unset; stroke-width: unset; stroke: unset; table-layout: unset; text-align-last: unset; text-align: unset; text-anchor: unset; text-combine-upright: unset; text-decoration: unset; text-emphasis-position: unset; text-emphasis: unset; text-indent: unset; text-justify: unset; text-orientation: unset; text-overflow: unset; text-rendering: unset; text-shadow: unset; text-transform: unset; top: 0px; touch-action: unset; transform-box: unset; transform-origin: unset; transform-style: unset; transform: unset; transition: unset; vector-effect: unset; vertical-align: unset; visibility: unset; white-space: pre; width: unset; will-change: unset; word-break: unset; word-spacing: unset; writing-mode: unset; z-index: unset;">https://www.gofundme.com/f/uvy2xf-dravet-syndrome-awareness-for-luella</span></a><br /></span>
<span style="font-family: helvetica;"><br /></span><div class="separator" style="clear: both; text-align: center;"><div class="separator" style="clear: both; text-align: center;"><a href="https://1.bp.blogspot.com/-ALqrH9oSZtg/YJ3JEiRLNBI/AAAAAAABNNk/AwzQOevgOXgiW6LcanCKDt6O9BBmUHbagCLcBGAsYHQ/s2048/past%2Bwinners.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1906" data-original-width="2048" height="373" src="https://1.bp.blogspot.com/-ALqrH9oSZtg/YJ3JEiRLNBI/AAAAAAABNNk/AwzQOevgOXgiW6LcanCKDt6O9BBmUHbagCLcBGAsYHQ/w400-h373/past%2Bwinners.jpg" width="400" /> </a></div><div class="separator" style="clear: both; text-align: center;"> </div><div class="separator" style="clear: both; text-align: center;"> </div>
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<span style="font-family: helvetica;"></span></div><div style="text-align: center;"><span style="font-family: helvetica;"></span></div><div style="text-align: center;"><span style="font-family: helvetica;"><br /></span>
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<span style="font-family: helvetica;"><i style="font-size: 16px;"><b><span>**Now for the fine print... </span></b></i><br /></span>
<span style="font-family: helvetica;"><br /></span><span style="font-family: helvetica;"><span><span style="font-size: 16px;">1.
I will only deliver to Luverne MN, Sioux Falls SD or Estelline SD areas
or areas in between OR you may arrange to pick up the cake in Luverne. </span><b style="font-size: 16px;">NOTE</b><span style="font-size: 16px;"> – </span><b style="font-size: 16px;">If
you live outside these areas, you may still donate but you will NOT be
eligible for a cake UNLESS YOU pick up or you may choose the cookies
that I can ship. </b></span><br /></span>
<span style="font-family: helvetica;"><br /></span>
<span style="font-family: helvetica;"><span><span style="font-size: 16px;"><table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: right;"><tbody><tr><td style="text-align: center;"><a href="https://1.bp.blogspot.com/-FFa3D7TszEw/YJ2PhXJGDmI/AAAAAAABNNM/gww5qG16AisdeEOVM0sonUWccmGdIm5hQCLcBGAsYHQ/s2048/DSC_1210a.jpg" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1253" data-original-width="2048" height="245" src="https://1.bp.blogspot.com/-FFa3D7TszEw/YJ2PhXJGDmI/AAAAAAABNNM/gww5qG16AisdeEOVM0sonUWccmGdIm5hQCLcBGAsYHQ/w400-h245/DSC_1210a.jpg" width="400" /></a></td></tr><tr><td class="tr-caption" style="text-align: center;">The winner from 2020 had cookies shipped!!<br /></td></tr></tbody></table>2. The cake will be a 10" round cake (or equivalent). This would be a great sized cake for a birthday with 20-25 guests! </span></span><br /></span>
<span style="font-family: helvetica;"><span><br style="font-size: 16px;" /><span style="font-size: 16px;">3. No wedding cakes. Level of detail is to my discretion. </span></span><br /></span>
<span style="font-family: helvetica;"><span><br style="font-size: 16px;" /><span style="font-size: 16px;">4. Cake
must be “ordered” at least 4 weeks in advance. I will try to be
available, although please understand that we get busy at times and may
have travel planned. I would ask that you be flexible and maybe have
another occasion in mind. </span></span><br /></span>
<span style="font-family: helvetica;"><span><span style="font-size: 16px;"><br /></span></span></span>
<span style="font-family: helvetica;"><span><span style="font-size: 16px;">5. The donation website will close down at noon on June 23rd and a winner will be announced on Luella's blog later that evening!! </span></span><br /></span>
<span style="font-family: helvetica;"><span><br /></span></span>
<span style="font-family: helvetica;"><span>If you'd like to follow Luella's Blog please visit: <a href="http://littleluella.blogspot.com/">http://littleluella.blogspot.com/</a></span><br /></span>
<span style="font-family: helvetica;"><span><br /></span></span>
<span style="font-family: helvetica;"><span>If you'd like to learn more about Dravet syndrome or the Dravet Syndrome Foundation, please visit: <a href="http://www.dravetfoundation.org/">http://www.dravetfoundation.org/</a></span><br /></span>
<span style="font-family: helvetica;"><span><br /></span></span>
<span style="font-family: helvetica;"><span>To
find out more about my little cake/cookie hobby, check out <a href="https://www.facebook.com/EmbellishedLuv/" target="_blank">Embellished Luv</a> on facebook!
You can see some of the fun cakes and cookies I've made in the past. <b> PLEASE NOTE:</b> I'm currently <u>NOT taking orders</u>. I'm busy with other things these days, BUT the winner of the raffle will definitely get a cake!! (or cookies!)</span><br /></span>
<span style="font-family: helvetica;"><br /></span>
<span style="font-family: helvetica;"><span>Thank you!!! I can't wait to announce this year's winner!!</span></span></div><span style="font-family: helvetica;">
<span><br /></span>
<br />
</span><div style="text-align: center;">
<span style="font-family: helvetica;"><b><span style="font-size: x-large;">Please share!!</span></b></span></div><span style="font-family: helvetica;">
</span><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><span style="font-family: helvetica;"><a href="http://1.bp.blogspot.com/-50gCE2HbTDI/U6j2NwWu3RI/AAAAAAAAN9I/bX1S0xYj5kU/s1600/DSCN2737.JPG" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://1.bp.blogspot.com/-50gCE2HbTDI/U6j2NwWu3RI/AAAAAAAAN9I/bX1S0xYj5kU/s400/DSCN2737.JPG" width="300" /></a></span></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: helvetica;"><span style="font-size: small;">Luella on the first Dravet Syndrome Awareness Day in 2014. June 23rd is all about her!</span></span></td><td class="tr-caption" style="text-align: center;"><span style="font-family: helvetica;"><span style="font-size: small;"><br /><br /> </span></span></td><td class="tr-caption" style="text-align: center;"><span style="font-family: helvetica;"><span style="font-size: small;"> </span></span></td><td class="tr-caption" style="text-align: center;"><span style="font-family: helvetica;"> </span></td><td class="tr-caption" style="text-align: center;"><span style="font-family: helvetica;"> </span></td><td class="tr-caption" style="text-align: center;"><span style="font-family: helvetica;"> </span></td><td class="tr-caption" style="text-align: center;"><span style="font-family: helvetica;"> </span></td></tr>
</tbody></table><span style="font-family: helvetica;">
</span><div style="text-align: center;">
<span style="font-family: helvetica;"><b><span style="font-size: x-large;">Get your purple ready for June 23rd!<br /><span style="font-size: small;">Share pictures of you wearing purple!</span></span></b></span></div><div style="text-align: center;"><span style="font-family: helvetica;"><b><span style="font-size: x-large;"><span style="font-size: small;"> </span></span></b><br /></span>
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<div style="text-align: center;"><a href="https://1.bp.blogspot.com/-WfHBtcbFF8w/WU4noPem3EI/AAAAAAAAcHI/z3HGonr1dvULgMeIBImHIgW4S57MCdbAwCPcBGAYYCw/s1600/dravetDay.jpg"><img border="0" data-original-height="497" data-original-width="900" height="220" src="https://1.bp.blogspot.com/-WfHBtcbFF8w/WU4noPem3EI/AAAAAAAAcHI/z3HGonr1dvULgMeIBImHIgW4S57MCdbAwCPcBGAYYCw/s400/dravetDay.jpg" width="400" /> </a></div>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto;"><tbody><tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhMzh_mpJcU6j83dYw5LqUW439AEKZtz3sEv8U1ruAINXVri9cqPUPz5tkEBNcccmK-44qUGgwa1QOko6DT0iqJWD-qPY9PIHQK_iwb6Dis3ROxTaiWNAQbfr4XpAIIutlLmhiPvtmBnA6K2jFmheVikrytD2_0jhwXr_1dntxP7ZJXA16gpAaVWPaanQ/s4032/IMG_1025a.jpg" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="3024" data-original-width="4032" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhMzh_mpJcU6j83dYw5LqUW439AEKZtz3sEv8U1ruAINXVri9cqPUPz5tkEBNcccmK-44qUGgwa1QOko6DT0iqJWD-qPY9PIHQK_iwb6Dis3ROxTaiWNAQbfr4XpAIIutlLmhiPvtmBnA6K2jFmheVikrytD2_0jhwXr_1dntxP7ZJXA16gpAaVWPaanQ/w400-h300/IMG_1025a.jpg" width="400" /></a></td></tr><tr><td class="tr-caption" style="text-align: center;">Celebrating 2 years seizure free last summer.<br /></td></tr></tbody></table><br /><div style="text-align: center;">
<span style="font-family: helvetica;"><br /></span><div><span style="font-size: medium;"><span style="font-family: helvetica;"><b><span>Luella made it to 759 days seizure-free in 2021! <br /></span></b></span></span></div><div><span style="font-size: medium;"><span style="font-family: helvetica;"><b><span>She did have another seizure out of the blue in April - no illness or anything. We are hopeful she is on the way to another long seizure-free stretch! <br /></span></b></span></span></div>
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<span style="font-family: helvetica;"><b><span style="font-size: x-large;">THANK YOU EVERYONE!!</span></b>
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<br /><br /></span></div>Heatherhttp://www.blogger.com/profile/08195762733183145670noreply@blogger.com0tag:blogger.com,1999:blog-8495042362280584288.post-41170374413486311712022-04-02T10:44:00.003-05:002022-04-02T10:44:59.278-05:00April Fool's... Seizure - and it's not a joke<p>I've already shared about this seizure on social media but I wanted to make a post here as well for those that just follow on the blog and also because this is kind of my diary; something I can look back on and reference in the future. <br /></p><p>Luella had a seizure on April Fool's Day and it was not a joke. It was just after 5pm, she was on her computer in the room just off the kitchen. I was in the kitchen getting ready to make supper. I heard a loud crash and I expected Luella to say something like "whoops" but it was silent. I ran in to see what happened. Her chair was tipped over she was the opposite direction. Her face hit the bottom of the chair next to her. Her glasses were off her face. She was having a tonic clonic (grand mal) seizure. Lots of jawing chomping, bloody saliva everywhere. It's been awhile, but this is a seizure. We've been through hundreds of these, but before this seizure, she's only had 2 in the last 3 1/2 years. I feel out of practice but the same feelings and emotions rush over me just as they did for those first seizures when she was a little baby. I'm crying and praying over her. Her lips are blue. Arms and legs stiff and shaking. It feels like forever and then she breathes out a big sigh. The sigh that marks the end of the seizure. I thank God for letting it stop without the need for rescue meds. I wipe the blood off her face. Her body relaxes. She sleeps. </p><p>Jim was there waiting with the rescue meds and watching the time. Once she was asleep we tried to move her to the living room. Our Luella isn't so little anymore! We ended up waiting a little bit. I talked to her to see if I could rouse her enough to move. She did wake up a little and Jim helped her walk to the couch. As soon as she was on the couch she was asleep again. </p><p>I tried to position her a little better and twisted as I was lifting her legs and threw my back out! Instant pain! I fell to my knees and cried. I've also done this before. <br /></p><p>Thankfully Luella escaped this seizure with just a sore tongue. She didn't remember anything about the seizure starting. She didn't have a fever and isn't sick so we are just praying this was an isolated incident. Of course random seizures like this are very nerve-wracking. Luella has had more freedom lately to be on her own - at school and at home. We will have to be more vigilant about keeping an eye on her.</p><p>And of course this comes as we've just completed registering Luella for her very first sleep-away camp this summer. She is planning on going to Camp Oz - a camp put on by the Epilepsy Foundation of Minnesota for kids with epilepsy. I was a little nervous about sending her away from us for a week anyway so hopefully she won't have anymore seizures between now and June! </p><p>Luella had planned to go to Camp Oz in June 2020. Campers can take a sibling and Ashlyn was on board to go with her. Then COVID hit and everything was canceled. Ashlyn would have been happy to go with Luella this year but unfortunately Camp Oz is the same week as Ashlyn's choir trip. Not sure how I'll survive that week!!</p><p>Today is better. Luella slept well. I slept ok. My back is improving. Much less painful than yesterday! </p><p> Please pray that this was just a random seizure and not the start of something different for Luella. Thank you!!<br /></p>Heatherhttp://www.blogger.com/profile/08195762733183145670noreply@blogger.com0tag:blogger.com,1999:blog-8495042362280584288.post-49154624184821221352021-11-16T07:53:00.000-06:002021-11-16T07:53:51.630-06:00It's Epilepsy Awareness Month<p><span style="font-family: verdana;">Have you been wearing purple this month? I hope so! November is Epilepsy Awareness Month and we are trying to educate as many people as we can about epilepsy. YOU can help us! <br /></span></p><div class="separator" style="clear: both; text-align: center;"></div><p></p><div class="separator" style="clear: both; text-align: center;"><span style="font-family: verdana;"><a href="https://1.bp.blogspot.com/-37wldbBNhas/YZMzNBJStKI/AAAAAAABU3M/r5o4EU8QFksyrmeAMErwC7uyPkpQkVibQCLcBGAsYHQ/s526/250891735_10159534359544754_5331051431925352853_n.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" data-original-height="526" data-original-width="526" height="320" src="https://1.bp.blogspot.com/-37wldbBNhas/YZMzNBJStKI/AAAAAAABU3M/r5o4EU8QFksyrmeAMErwC7uyPkpQkVibQCLcBGAsYHQ/w320-h320/250891735_10159534359544754_5331051431925352853_n.jpg" width="320" /></a></span></div><span style="font-family: verdana;">Get Seizure First Aid Ready!! Take a quick 30 minute on-demand training course from the Epilepsy Foundation. Learn how to recognize a seizure and what to do if someone around you has a seizure. <a href="https://learn.epilepsy.com/courses/seizure-first-aid-ready-ondemand">https://learn.epilepsy.com/courses/seizure-first-aid-ready-ondemand</a></span><p></p><p><span style="font-family: verdana;">If you invest the short 30 minutes to do the training, PLEASE let us know and share it with your friends and family as well. You might just help save a life! We would LOVE to help educate all our family and friends during this awareness month. </span></p><p><span style="font-family: verdana;"><br /></span></p><p style="text-align: center;"><span style="font-family: verdana;">I took the course just to see what it was like. It's a great resource to help you learn what to do. I guarantee you will learn a lot! <br /></span></p><p></p><div class="separator" style="clear: both; text-align: center;"><a href="https://1.bp.blogspot.com/-1-Fn7AarpSM/YZM5g6XkltI/AAAAAAABU3U/9SrxMSr-_h85ISzvgSfI2jzPchDkpa-4wCLcBGAsYHQ/s1638/certificate-188177550.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1157" data-original-width="1638" height="226" src="https://1.bp.blogspot.com/-1-Fn7AarpSM/YZM5g6XkltI/AAAAAAABU3U/9SrxMSr-_h85ISzvgSfI2jzPchDkpa-4wCLcBGAsYHQ/s320/certificate-188177550.jpg" width="320" /></a></div><span style="font-family: verdana;"> </span><p></p><p><span style="font-family: verdana;"></span></p><div class="separator" style="clear: both; text-align: center;"><a href="https://www.facebook.com/epilepsyfoundationofminnesota/photos/a.225784514265304/1911765702333835" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;" target="_blank"><img border="0" data-original-height="572" data-original-width="505" height="320" src="https://1.bp.blogspot.com/-qEinpLpL18s/YZO1ya406DI/AAAAAAABU4M/4VBIovyVeTkq_6PV5rRmWC43jMi0RCCLQCLcBGAsYHQ/s320/2021-11-16%2B07_43_53-%25284%2529%2BHeather%2BJohnson%2B_%2BFacebook%2B%25E2%2580%2594%2BMozilla%2BFirefox.png" width="283" /></a></div>Since it is Epilepsy Awareness Month we entered a little contest with the Epilepsy Foundation of Minnesota. If you are a Facebook user, please click the following link and "LIKE" our picture! The picture is our family celebrating Luella's 2 years of seizure freedom back in August! Share with your friends too! <p></p><p><span style="font-family: verdana;"> </span></p><p><span style="font-family: verdana;"><a href="https://www.facebook.com/epilepsyfoundationofminnesota/photos/a.225784514265304/1911765702333835" target="_blank">https://www.facebook.com/epilepsyfoundationofminnesota/photos/a.225784514265304/1911765702333835</a></span></p><p><span style="font-family: verdana;"> </span></p><p><span style="font-family: verdana;"><br /> <br /></span></p><p></p><p><span style="font-family: verdana;">Wear your purple this month and share your photos with me on Facebook or email me! Tell everyone why YOU wear purple and help US bring more awareness to epilepsy. </span></p><p><span style="font-family: verdana;"> </span></p><p><span style="font-family: verdana;"> <span class="markedContent" id="page231R_mcid20"><span dir="ltr" role="presentation" style="font-family: sans-serif; font-size: 16.6667px; left: 100px; top: 673.022px; transform: scaleX(0.986018);">In the United States, <b>3.4 million people live with epilepsy</b>, and over 150,000 </span></span><span class="markedContent" id="page231R_mcid21"><span dir="ltr" role="presentation" style="font-family: sans-serif; font-size: 16.6667px; left: 100px; top: 693.022px; transform: scaleX(0.979387);">new cases are diagnosed each year.<span style="font-size: large;"><b> </b></span></span></span><span style="font-size: large;"><b><span class="markedContent" id="page231R_mcid22"><span dir="ltr" role="presentation" style="font-family: sans-serif; left: 369.478px; top: 693.022px; transform: scaleX(1.02521);">One in 26 people</span></span><span class="markedContent" id="page231R_mcid23"><span dir="ltr" role="presentation" style="font-family: sans-serif; left: 499.61px; top: 693.022px; transform: scaleX(1.00103);"> will develop epilepsy </span></span></b></span><span class="markedContent" id="page231R_mcid24"><span dir="ltr" role="presentation" style="font-family: sans-serif; font-size: 16.6667px; left: 100px; top: 713.022px; transform: scaleX(0.986145);"><span style="font-size: large;"><b>at some point in their life. </b></span>Epilepsy doesn’t discriminate. It affects children and </span></span><span class="markedContent" id="page231R_mcid25"><span dir="ltr" role="presentation" style="font-family: sans-serif; font-size: 16.6667px; left: 100px; top: 733.022px; transform: scaleX(0.985533);">adults, men and women, and people of all races, religions, ethnic backgrounds, </span></span><span class="markedContent" id="page231R_mcid26"><span dir="ltr" role="presentation" style="font-family: sans-serif; font-size: 16.6667px; left: 100px; top: 753.022px; transform: scaleX(0.987899);">and social classes. While epilepsy is most often diagnosed either in childhood </span></span><span class="markedContent" id="page231R_mcid27"><span dir="ltr" role="presentation" style="font-family: sans-serif; font-size: 16.6667px; left: 100px; top: 773.022px; transform: scaleX(0.986848);">or after the age of 65, it can occur at any age.</span></span></span></p><p><span style="font-family: verdana;"> </span><br /></p><div class="separator" style="clear: both; text-align: center;"><a href="https://1.bp.blogspot.com/-h3-NuAYdcMk/YZO3cMokHgI/AAAAAAABU4U/LCQVPkbB0mkyFahpYkKRAtv5GQ9B79I3QCLcBGAsYHQ/s2048/2SeizureFirstAid85x11D-201026-093506.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1583" height="640" src="https://1.bp.blogspot.com/-h3-NuAYdcMk/YZO3cMokHgI/AAAAAAABU4U/LCQVPkbB0mkyFahpYkKRAtv5GQ9B79I3QCLcBGAsYHQ/w494-h640/2SeizureFirstAid85x11D-201026-093506.jpg" width="494" /></a></div><br /><span style="font-family: verdana;"><br /></span><p></p><div class="separator" style="clear: both; text-align: center;"><span style="font-size: large;"><b><span style="color: #351c75;"><a href="https://1.bp.blogspot.com/-t-RYgEEidaY/VjgwxMobDLI/AAAAAAAAV18/ErlCjMAuq3E2QU2m-L8yIAOVuOKISPoIgCPcBGAYYCw/s800/Epilepsy_Awareness_Sign.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="538" data-original-width="800" height="269" src="https://1.bp.blogspot.com/-t-RYgEEidaY/VjgwxMobDLI/AAAAAAAAV18/ErlCjMAuq3E2QU2m-L8yIAOVuOKISPoIgCPcBGAYYCw/w400-h269/Epilepsy_Awareness_Sign.jpg" width="400" /></a></span></b></span></div><p style="text-align: center;"><span style="font-family: verdana;"><span style="font-size: large;"><b><span style="color: #351c75;">Thanks for all your love and support!! </span></b></span><br /></span></p><p><span style="font-family: verdana;"> <br /></span><span style="font-family: verdana;"></span></p>Heatherhttp://www.blogger.com/profile/08195762733183145670noreply@blogger.com0tag:blogger.com,1999:blog-8495042362280584288.post-50341868795967250622021-10-23T09:38:00.000-05:002021-10-23T09:38:45.970-05:00Long Overdue Post - August Seizure and A BIRTHDAY!<p><span style="font-family: arial;">I feel like I've been running in a hamster wheel for over a month! From the Minnesota State Fair, church activities, soccer, school, work, football, marching band, school play, Music Boosters... the list goes on and on! There was something to be said about the simpleness of last year. I <b>am </b>glad to be getting back to whatever "normal" is, but it really wears me out! </span></p><p><span style="font-family: arial;">I've failed to keep everyone up to date on Luella in the midst of our busy weeks. At the end of August, Luella had a seizure to end her longest ever seizure free stretch. Two years and 29 days without a seizure! We are so grateful for every one of those days. A high fever is what ended up triggering that seizure. When her temp started going up I just had a feeling it would cause a seizure. Unfortunately I was away with Ashlyn at the MN State Fair. I knew Luella wasn't feeling well after talking with Jim on the phone earlier in the day. Later that afternoon I felt the need to call home and check on things and it was just then that she was seizing - a mom's intuition, I guess. Thankfully no rescue meds were needed but it was a rough seizure and she chewed up her tongue quite bad. Poor girl. </span></p><span style="font-family: arial;">759 days without a seizure is really amazing and something that many kids with Dravet syndrome do not achieve. We know things might not always be like this and we are so grateful for everyday God gives us. Some people have commented to me thinking Luella was "done with those" - meaning seizures. Comments like that surprise me. We are <u>always</u> ready for a seizure with rescue medication close by. We can never fully let down our guard and that means Luella misses out on some things that typical kids get to do without even thinking twice. While our lives are rarely disrupted by a seizure now, we always have to be prepared just in case. <br /></span><p><span style="font-family: arial;">Just as a reminder, Luella's epilepsy is caused by a mutation of the SCN1A gene and until gene therapy is a standard thing, a cure is unlikely. Of course we hope and pray for healing or a cure, but we also know seizures can happen at any time. It maybe WAS good timing since school was about to start and it was a good reminder to teachers and staff that Luella definitely still needs to be watched closely. Without a paraprofessional with her this school year we've had to come up with other ways to make sure she is accounted for and kept safe at school. We really rely on the teachers and staff to keep a close eye on her and so far the year is going pretty well.<br /></span></p><p><span style="font-family: arial;">After more than a year of online school it was great for Luella to get back in the classroom! I can hardly believe I don't have ANY kids in the elementary this year. It was time for Luella to move up to Middle School and to the 6th grade! She is really enjoying school and the independence she has in 6th grade! <br /></span></p><div class="separator" style="clear: both; text-align: center;"><span style="font-family: arial;"><a href="https://1.bp.blogspot.com/-w_vq7ugii2A/YWT3qPFidiI/AAAAAAABToo/SwlN2S4mNJcCLdS_F2GUMqmWUfIVf9ICgCLcBGAsYHQ/s2048/IMG_1534.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1536" height="400" src="https://1.bp.blogspot.com/-w_vq7ugii2A/YWT3qPFidiI/AAAAAAABToo/SwlN2S4mNJcCLdS_F2GUMqmWUfIVf9ICgCLcBGAsYHQ/w300-h400/IMG_1534.JPG" width="300" /></a></span></div><span style="font-family: arial;"><br /></span><p><span style="font-family: arial;">And that brings us to October 21st and Luella's 12th BIRTHDAY!! We had fun celebrating at home with family. Next year when she is a TEENAGER we hope to have a BIG celebration! Her request this year for her birthday supper was fried chicken and mashed potatoes! Dessert was salted caramel macarons and BROOKIES! </span></p><p></p><div class="separator" style="clear: both; text-align: center;"><a href="https://1.bp.blogspot.com/-7AsboGQJVPs/YXQZOzwPv5I/AAAAAAABUHs/Juz9YnneO085h9OR3KCMWZ2warkXB_cgQCLcBGAsYHQ/s2048/DSC_5634a.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2026" data-original-width="2048" height="317" src="https://1.bp.blogspot.com/-7AsboGQJVPs/YXQZOzwPv5I/AAAAAAABUHs/Juz9YnneO085h9OR3KCMWZ2warkXB_cgQCLcBGAsYHQ/s320/DSC_5634a.jpg" width="320" /></a></div><br /><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto;"><tbody><tr><td style="text-align: center;"><a href="https://1.bp.blogspot.com/-ytTT6oJJXiY/YXQZNLgJtYI/AAAAAAABUHo/iJj92ADC3MkNG8e8M6oU3aDOsWKoxo4UQCLcBGAsYHQ/s2048/DSC_5605a.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="2048" data-original-width="1886" height="320" src="https://1.bp.blogspot.com/-ytTT6oJJXiY/YXQZNLgJtYI/AAAAAAABUHo/iJj92ADC3MkNG8e8M6oU3aDOsWKoxo4UQCLcBGAsYHQ/s320/DSC_5605a.jpg" width="295" /></a></td></tr><tr><td class="tr-caption" style="text-align: center;"><span style="font-family: arial;">Teenager... 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Please Wait</span><br /></td></tr></tbody></table><br /><p></p><p><span style="font-family: arial;">We decided to extend the birthday celebrating into the next day and since the kids were off from school we headed to Sioux Falls for a little shopping, pizza and roller skating!! </span><br /></p><div class="separator" style="clear: both; text-align: center;"><a href="https://1.bp.blogspot.com/-uQrRhxuDj7E/YXQbJvEpOYI/AAAAAAABUIA/5Q02Zv3BbhE1mx6oV0QOW8n3uZwPb3OowCLcBGAsYHQ/s2048/IMG_2228a.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1536" height="320" src="https://1.bp.blogspot.com/-uQrRhxuDj7E/YXQbJvEpOYI/AAAAAAABUIA/5Q02Zv3BbhE1mx6oV0QOW8n3uZwPb3OowCLcBGAsYHQ/s320/IMG_2228a.jpg" width="240" /></a></div><br /><div class="separator" style="clear: both; text-align: center;"><a href="https://1.bp.blogspot.com/-8QRcxZ8cTkA/YXQbJK8345I/AAAAAAABUH8/73wzvLHbivMSXqG-_U043m5ZViiGLVHIACLcBGAsYHQ/s2048/IMG_2253a.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1588" height="320" src="https://1.bp.blogspot.com/-8QRcxZ8cTkA/YXQbJK8345I/AAAAAAABUH8/73wzvLHbivMSXqG-_U043m5ZViiGLVHIACLcBGAsYHQ/s320/IMG_2253a.jpg" width="248" /></a></div><p></p><p style="text-align: center;"><span style="font-size: large;"><b><span style="font-family: arial;">HAPPY BIRTHDAY TO LUELLA!!</span></b></span><br /></p><p><br /></p><p><br /></p><p><br /></p><p><br /></p>Heatherhttp://www.blogger.com/profile/08195762733183145670noreply@blogger.com0tag:blogger.com,1999:blog-8495042362280584288.post-72088891145333872422021-08-05T23:00:00.004-05:002021-08-05T23:00:58.559-05:00Celebrating 2 Years!<p><span style="font-family: verdana;">Luella had a fabulous time celebrating 2 years of seizure freedom on Tuesday! We had food and ice cream at JJs in Luverne while about 40 people stopped by to say hello! Our one hour celebration turned into three hours! It was so fun to see everyone - some that we haven't seen in quite awhile too! There were several people that wished they could have been there and sent messages, flowers and gifts throughout the day. Thank you everyone for helping to make this a special day for Luella. We hope that we can keep adding seizure free days and maybe celebrate again in a year! <br /></span></p><p style="text-align: center;"></p>
<div style="text-align: center;"><iframe frameborder="0" height="360" src="https://youtube.com/embed/xsBH3ffcKQs" width="480"></iframe></div>
<p style="text-align: center;"><span style="font-family: verdana;"> Celebration Video: <a href="https://youtu.be/xsBH3ffcKQs">https://youtu.be/xsBH3ffcKQs</a><br /></span></p><p><span style="font-family: verdana;">Luella is excited to be getting ready to enter MIDDLE SCHOOL!! She will be heading back to in-person school in September after a year of online school. She is very anxious and ready to see her friends again! We will be taking a few extra precautions initially until she can be fully vaccinated. I'm not excited for her to be turning 12 in October... I'm not sure how my baby grew up so fast, but I am glad she will be able to be more protected from COVID. We are praying that the COVID cases will go down and all of our kids can enjoy a more normal school year. <br /></span></p><p><span style="font-family: verdana;">I've been asked if I feel like I can let down my guard a bit now that Luella has gone 2 years without a seizure? And yes, to a point I can. We don't watch over her 24/7. She has more freedom to be outside with friends or alone in her room reading or drawing. If we are somewhere right in town I don't always take her rescue meds with me - I know I can be home in just a few minutes. When school starts she will not have a para following her around and no special bus aide to be with her on the bus - just a sibling and a bus driver with us on speed dial. The last three seizures she's had going back to almost four years ago have all been after going to bed at night. That first 30 minutes after falling asleep, especially if she's been sick or not feeling well are the times when I'm more on guard. That being said, Luella had a pretty bad summer-time cold a few weeks ago and she even ran some some fevers up to 101 and she did NOT have a seizure! We are just so grateful for how well she is doing! <br /></span></p><p><span style="font-family: verdana;">She could be seizure-free for 10 years and I'd probably still not completely feel at ease, but we are happy with where she is now and I'm glad she can live a more typical life without seizures disrupting her. Thank you for all the prayers! <br /></span></p><p><br /></p>Heatherhttp://www.blogger.com/profile/08195762733183145670noreply@blogger.com0tag:blogger.com,1999:blog-8495042362280584288.post-891754979453598122021-07-27T20:54:00.001-05:002021-07-27T21:30:05.597-05:00Closing in on TWO YEARS Seizure-FREE<p><span style="font-family: verdana;"><b>August 3, 2019</b> was the last day Luella had a seizure. It was 10:09 p.m. She had been asleep for less than 30 minutes. She wasn't sick and didn't have a fever. The seizure lasted for about 10 minutes. Why did she have that seizure? We have no idea. Why hasn't she had one since? Answered prayers for sure! So many people have prayed for Luella and continue to pray for her and we are so very grateful! </span></p><p><span style="font-family: verdana;">When Luella made it to her first year of seizure-freedom on July 23, 2019 we had a fun little Pizza Ranch party and celebrated with lots of friends and family! Eleven days after that party she had a seizure which reset the clock and now... here we are and just about <b>TWO YEARS seizure-free</b>! </span></p><p><span style="font-family: verdana;"><b>On August 3 we will celebrate! </b>Until Luella can be fully vaccinated we won't have any indoor celebrations with others but we decided we are going to party at JJs!! </span></p><p><span style="font-family: verdana;">We will be set up at a picnic table at JJs Drive-In in Luverne from 5:30 - 6:30 pm on Tuesday, August 3! </span></p><div class="separator" style="clear: both; text-align: center;"><span style="font-family: verdana;"><a href="https://1.bp.blogspot.com/-6Lhi9XSVdYw/YQC28atRiKI/AAAAAAABQ1g/2qKy4Mg7GVcJbrH6yzOLRI7UTZbe4ewKgCLcBGAsYHQ/s2048/2yearsSeizureFree.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="2048" height="400" src="https://1.bp.blogspot.com/-6Lhi9XSVdYw/YQC28atRiKI/AAAAAAABQ1g/2qKy4Mg7GVcJbrH6yzOLRI7UTZbe4ewKgCLcBGAsYHQ/w400-h400/2yearsSeizureFree.jpg" width="400" /></a></span></div><span style="font-family: verdana;"><br /></span><p><span style="font-family: verdana;">If anyone would like to join us or if you'd like to drive through and honk or say hello to Luella, we'd love that!! Stop and have supper or grab an ice cream treat to cool off! Wear something purple if you have it!! Look for the purple balloons! </span></p><p><span style="font-family: verdana;">Bring a lawn chair if you want to sit and visit awhile! Please NO gifts! Luella will just be excited to see you!!<br /></span></p><p><span style="font-family: verdana;">RSVP on our Facebook event - <a href="https://fb.me/e/133Tx2W92">https://fb.me/e/133Tx2W92</a> <br /></span></p><p><span style="font-family: verdana;"> <br /></span></p>Heatherhttp://www.blogger.com/profile/08195762733183145670noreply@blogger.com0tag:blogger.com,1999:blog-8495042362280584288.post-278306691326408052021-06-24T11:04:00.000-05:002021-06-24T11:04:17.843-05:00<p></p><span style="font-family: verdana;">
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<span style="font-family: verdana;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><span style="color: #351c75;"><span style="font-size: large;"><b>I'm excited to announce that YOU helped us raise <br /></b></span></span></span></span></div><span style="font-family: verdana;">
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<span style="font-family: verdana;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><span style="font-size: x-large;"><span style="color: #351c75;"><b>$1,615 <br /></b></span></span></span></span></div><span style="font-family: verdana;">
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<span style="font-family: verdana;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><span style="color: #351c75;"><span style="font-size: large;"><b>for the Dravet Syndrome Foundation in honor of Luella!! </b></span></span></span></span></div><span style="font-family: verdana;">
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<span face=""helvetica neue", "arial", "helvetica", sans-serif">YAY!!
Thank you SO MUCH to all to our VERY GENEROUS donors!! We could NOT do
this every year without all your help!! ALL of this money will be sent
to the Dravet Syndrome Foundation to help find a CURE!! </span><br />
<span face=""helvetica neue", "arial", "helvetica", sans-serif">There is some
really amazing research happening with Dravet syndrome and we've been
blessed
to send them<span style="color: #351c75;"><b> OVER $11,500 over the past 8 years </b></span>thanks to all of your support!!</span><br />
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<span style="font-family: verdana;"><br /></span></div><div class="separator" style="clear: both; text-align: center;"><span style="font-family: verdana;"><a href="https://1.bp.blogspot.com/-qxUkwqoiGKI/YJ2NOBBl5fI/AAAAAAABNNI/_SpAmUfvTQ86MUWjFxJGvl4Tg788NxgmwCPcBGAYYCw/s1617/acake4acure_2021.png" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="888" data-original-width="1617" height="220" src="https://1.bp.blogspot.com/-qxUkwqoiGKI/YJ2NOBBl5fI/AAAAAAABNNI/_SpAmUfvTQ86MUWjFxJGvl4Tg788NxgmwCPcBGAYYCw/w400-h220/acake4acure_2021.png" width="400" /></a></span></div><span style="font-family: verdana;"><br />
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<span style="font-family: verdana;"><span style="font-size: x-large;"><span style="color: #351c75;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><b>And now for the exciting announcement! <br /></b></span></span></span></span></div><div style="text-align: center;"><span style="font-family: verdana;"><span style="font-size: x-large;"><span style="color: #351c75;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><b>THE WINNER of a </b></span></span></span></span></div><div style="text-align: center;"><span style="font-family: verdana;"><span style="font-size: x-large;"><span style="color: #351c75;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><b>cake 4 a cure is...</b></span></span></span><br /></span>
<span style="font-family: verdana;"><span style="font-size: x-large;"><span style="color: #351c75;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><b><span style="font-size: small;">(drumroll)</span></b></span></span></span></span></div><span style="font-family: verdana;">
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</span><div style="text-align: center;"><h1>
<span style="font-family: verdana;"><span style="color: #351c75;"><b><span style="font-size: x-large;"><span>The Nolz Family!!</span></span></b></span><br /></span></h1></div><span style="font-family: verdana;">
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<span style="font-family: verdana;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><span style="font-size: small;"><span style="color: #351c75;"><b> </b></span></span></span></span></div><span style="font-family: verdana;">
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<span style="font-family: verdana;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><span style="font-size: large;"><span style="color: #351c75;"><b>Congratulations!! </b></span></span></span><br /></span>
<span style="font-family: verdana;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><span style="font-size: large;"><span style="color: #351c75;"><b>And thanks again to EVERYONE who </b></span></span></span><br /></span>
<span style="font-family: verdana;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><span style="font-size: large;"><span style="color: #351c75;"><b>contributed to this fundraising effort!! </b></span></span></span><br /></span>
<span style="font-family: verdana;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><span style="font-size: large;"><span style="color: #351c75;"><b>We have some AMAZING supporters and we are </b></span></span></span><br /></span>
<span style="font-family: verdana;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><span style="font-size: large;"><span style="color: #351c75;"><b>SO VERY GRATEFUL to all of you!! </b></span></span></span></span></div><span style="font-family: verdana;">
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<span style="font-family: verdana;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><span style="font-size: small;"><span style="color: #351c75;"><b>Here's a video of the drawing!!<br /></b></span></span></span></span></div><div style="text-align: center;"><span style="font-family: verdana;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><span style="font-size: small;"><span style="color: #351c75;"><b> </b></span></span></span></span></div><div style="text-align: center;"><span style="font-family: verdana;"><span face=""helvetica neue", "arial", "helvetica", sans-serif"><span style="font-size: small;"><span style="color: #351c75;"><b> </b></span></span></span></span></div><span style="font-family: verdana;">
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<span style="font-family: verdana;"><span face=""helvetica neue", "arial", "helvetica", sans-serif">Link to video of the drawing: </span></span></div><span style="font-family: verdana;">
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<a href="https://youtu.be/usfIUk2-WG4">https://youtu.be/usfIUk2-WG4</a><br /></span> </div><span style="font-family: verdana;">
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<div class="separator" style="clear: both; text-align: center;"><a href="https://1.bp.blogspot.com/-JT_0tMGIrs0/YNSscuNSRSI/AAAAAAABPh0/LSh08zxppiESekVDYiQ9T7RfUlwV5c52QCLcBGAsYHQ/s1080/cover%2Bphoto2021%2B%2528Large%2529.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1080" data-original-width="919" height="640" src="https://1.bp.blogspot.com/-JT_0tMGIrs0/YNSscuNSRSI/AAAAAAABPh0/LSh08zxppiESekVDYiQ9T7RfUlwV5c52QCLcBGAsYHQ/w544-h640/cover%2Bphoto2021%2B%2528Large%2529.jpg" width="544" /></a></div><br /><span style="font-family: verdana;"><br /></span></div><span style="font-family: verdana;">
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</span>Heatherhttp://www.blogger.com/profile/08195762733183145670noreply@blogger.com0tag:blogger.com,1999:blog-8495042362280584288.post-81571024100393192672021-06-23T16:28:00.001-05:002021-06-23T16:28:47.678-05:00It's Dravet Syndrome Awareness Day AND your LAST day to donate!<p style="text-align: center;"><span style="font-family: helvetica;"><span style="color: #674ea7;"><span style="font-size: large;"><b> Today is Dravet Syndrome Awareness Day and your last chance to donate to "a cake 4 a cure!"</b></span></span> </span></p><span style="font-family: helvetica;">
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<div class="gfm-embed" data-url="https://www.gofundme.com/f/uuqx9-dravet-syndrome-awareness-for-luella/widget/large/"></div><script defer="" src="https://www.gofundme.com/static/js/embed.js"></script>
</span><span style="font-family: helvetica;">Donate now and help us to make it to $1500! If you need more details on the fundraiser, visit our previous blog post for more info: <a href="https://littleluella.blogspot.com/2021/05/this-year-is-my-eighth-annual-cake-4.html">https://littleluella.blogspot.com/2021/05/this-year-is-my-eighth-annual-cake-4.html</a> <br /></span><p><span style="font-family: helvetica;">Are you wearing purple today? Send us your pictures! A few months ago we did our Dravet Hat fundraiser and several people shared pictures in their hats! Thank you all for your support of Luella and DSF and helping us raise awareness!! <br /></span></p><p style="text-align: center;">
<iframe allow="accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture" allowfullscreen="" frameborder="0" height="315" src="https://www.youtube.com/embed/1bMqWkRvdME" title="YouTube video player" width="560"></iframe> </p><p style="text-align: center;"><span style="font-family: helvetica;"><a href="https://youtu.be/1bMqWkRvdME" target="_blank"> https://youtu.be/1bMqWkRvdME </a></span><br /></p><p style="text-align: center;"><span style="font-size: large;"><b><span><span style="font-family: helvetica;">Stay tuned tomorrow to hear the official <br />"a cake 4 a cure" winner announcement!! </span></span></b></span><br />
</p>Heatherhttp://www.blogger.com/profile/08195762733183145670noreply@blogger.com0tag:blogger.com,1999:blog-8495042362280584288.post-78870389148023207462021-05-23T15:28:00.000-05:002021-05-23T15:28:37.896-05:00<p style="text-align: center;"><span style="font-family: helvetica;"> <a href="https://1.bp.blogspot.com/-qxUkwqoiGKI/YJ2NOBBl5fI/AAAAAAABNNE/SImLTAIS7_YPLEAMXmmsNQciWrbvMfYTwCLcBGAsYHQ/s1617/acake4acure_2021.png" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="888" data-original-width="1617" height="220" src="https://1.bp.blogspot.com/-qxUkwqoiGKI/YJ2NOBBl5fI/AAAAAAABNNE/SImLTAIS7_YPLEAMXmmsNQciWrbvMfYTwCLcBGAsYHQ/w400-h220/acake4acure_2021.png" width="400" /></a></span></p><p><span style="font-family: helvetica;">
This year is my <b>EIGHTH ANNUAL</b> “a cake 4 a cure” fundraiser to
raise money for the Dravet Syndrome Foundation to help find a cure for
this rare form of epilepsy!! How can it be EIGHT years already!? Every year we do this we are so amazed by all the "regulars" who continue to support Luella and our quest for a CURE! If this is your first time donating, we appreciate YOU too!! We could not do this without all of you!<br /></span></p><p>
</p><div style="text-align: center;"><span style="font-family: helvetica;">
Please visit the fundraising
website <a href="https://gofund.me/785a3bce" target="_blank">(GoFundMe</a>) to make a donation.<br /></span>
<span style="font-family: helvetica;"><a href="https://www.gofundme.com/f/uvy2xf-dravet-syndrome-awareness-for-luella" target="_blank"><span color="unset" style="animation: unset; backface-visibility: unset; background-blend-mode: unset; background: unset; block-size: unset; border-block: unset; border-collapse: unset; border-end-end-radius: unset; border-end-start-radius: unset; border-inline: unset; border-radius: unset; border-spacing: unset; border-start-end-radius: unset; border-start-start-radius: unset; border: unset; bottom: unset; box-decoration-break: unset; box-shadow: unset; box-sizing: unset; break-after: unset; break-before: unset; break-inside: unset; caption-side: unset; caret-color: unset; clear: unset; clip-path: unset; clip-rule: unset; clip: rect(0px, 0px, 0px, 0px); color-adjust: unset; color-interpolation-filters: unset; color-interpolation: unset; column-fill: unset; column-rule: unset; columns: unset; content: unset; counter-increment: unset; counter-reset: unset; counter-set: unset; cursor: unset; display: unset; dominant-baseline: unset; empty-cells: unset; fill-opacity: unset; fill-rule: unset; fill: unset; filter: unset; flex-flow: unset; flex: unset; float: unset; flood-color: unset; flood-opacity: unset; font-feature-settings: unset; font-kerning: unset; font-language-override: unset; font-optical-sizing: unset; font-size-adjust: unset; font-size: unset; font-stretch: unset; font-style: unset; font-synthesis: unset; font-variant: unset; font-variation-settings: unset; font-weight: unset; gap: unset; grid-area: unset; grid: unset; height: unset; hyphens: unset; image-orientation: unset; image-rendering: unset; ime-mode: unset; inline-size: unset; inset-block: unset; inset-inline: unset; isolation: unset; left: unset; letter-spacing: unset; lighting-color: unset; line-height: unset; list-style: unset; margin-block: unset; margin-inline: unset; margin: unset; marker: unset; mask-type: unset; mask: unset; max-block-size: unset; max-height: unset; max-inline-size: unset; max-width: unset; min-block-size: unset; min-height: unset; min-inline-size: unset; min-width: unset; mix-blend-mode: unset; object-fit: unset; object-position: unset; opacity: unset; order: unset; outline-offset: unset; outline: unset; overflow-anchor: unset; overflow-wrap: unset; overflow: unset; overscroll-behavior: unset; padding-block: unset; padding-inline: unset; padding: unset; paint-order: unset; perspective-origin: unset; perspective: unset; place-content: unset; place-items: unset; place-self: unset; pointer-events: unset; position: fixed; quotes: unset; resize: unset; right: unset; ruby-align: unset; ruby-position: unset; scroll-behavior: unset; scroll-margin-block: unset; scroll-margin-inline: unset; scroll-margin: unset; scroll-padding-block: unset; scroll-padding-inline: unset; scroll-padding: unset; scroll-snap-align: unset; scroll-snap-type: unset; scrollbar-color: unset; scrollbar-width: unset; shape-image-threshold: unset; shape-margin: unset; shape-outside: unset; shape-rendering: unset; stop-color: unset; stop-opacity: unset; stroke-dasharray: unset; stroke-dashoffset: unset; stroke-linecap: unset; stroke-linejoin: unset; stroke-miterlimit: unset; stroke-opacity: unset; stroke-width: unset; stroke: unset; table-layout: unset; text-align-last: unset; text-align: unset; text-anchor: unset; text-combine-upright: unset; text-decoration: unset; text-emphasis-position: unset; text-emphasis: unset; text-indent: unset; text-justify: unset; text-orientation: unset; text-overflow: unset; text-rendering: unset; text-shadow: unset; text-transform: unset; top: 0px; touch-action: unset; transform-box: unset; transform-origin: unset; transform-style: unset; transform: unset; transition: unset; vector-effect: unset; vertical-align: unset; visibility: unset; white-space: pre; width: unset; will-change: unset; word-break: unset; word-spacing: unset; writing-mode: unset; z-index: unset;">https://www.gofundme.com/f/uvy2xf-dravet-syndrome-awareness-for-luella</span></a></span></div><span style="font-family: helvetica;">
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<span style="font-family: helvetica;"><br /></span>
<span style="font-family: helvetica;"><b>More details on the raffle can be found on this post below! PLEASE
NOTE: There won't be anything about the raffle on the donation site at
GoFundMe - that is strictly a place to donate. I will keep track of what
you donated to make sure you have the correct number of entries in the
drawing. </b></span></div><span style="font-family: helvetica;">
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<span style="font-family: helvetica;"><b>The donation site will close on June 23rd and </b></span></div><div style="text-align: center;"><span style="font-family: helvetica;"><b>a winner will be announced on June 24th! </b></span></div><span style="font-family: helvetica;">
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<span style="font-family: helvetica;"><b>ALL money will be donated to the <a href="http://www.dravetfoundation.org/" target="_blank">Dravet Syndrome Foundation</a> </b></span></div><span style="font-family: helvetica;">
</span><div style="text-align: center;">
<span style="font-family: helvetica;"><b>in honor of Luella and to help find a cure! <span style="font-size: large;"> </span></b></span></div><span style="font-family: helvetica;">
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<span style="font-family: helvetica;"><b><span style="font-size: large;"> </span></b></span></div><div style="text-align: center;"><span style="font-family: helvetica;"><b><span style="font-size: large;">Over the past 7 years we've sent OVER $10,000 to the </span></b></span></div><span style="font-family: helvetica;">
</span><div style="text-align: center;">
<span style="font-family: helvetica;"><b><span style="font-size: large;">Dravet Syndrome Foundation!! </span></b></span></div><span style="font-family: helvetica;">
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<span style="font-family: helvetica;"><b><span style="font-size: large;">THANK YOU!!!</span></b></span></div><span style="font-family: helvetica;">
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Last
year's winner was David from Delaware!</span></b></div><div style="text-align: center;"><span style="font-family: helvetica;">YES! You CAN win if you live far away! </span></div><div style="text-align: center;"><span style="font-family: helvetica;">You won't get a cake, but I WILL ship you some awesome cookies!! <br /></span></div><span style="font-family: helvetica;"></span><div class="separator" style="clear: both; text-align: center;">
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<b><span style="font-size: large;">So, how does this fundraising raffle work?</span></b><br />
Each entry into the drawing is $5. If you donate $50 - you will get 10 entries into the drawing. <b>Please note if you live far away you will not win a cake but I will ship 2 dozen cookies</b> (decorated sugar cookies or chocolate chip cookies)! I
will deliver a cake to the winner in Luverne, Sioux Falls or Estelline, SD
areas OR you may arrange to pick up the cake in Luverne.<br />
<br />
</span><div style="text-align: center;">
<span style="font-family: helvetica;"><b><span style="font-size: large;">Please visit <a href="https://gofund.me/785a3bce" target="_blank">GoFundMe</a> </span></b><b><span style="font-size: large;">to make a donation </span></b><br /></span>
<span style="font-family: helvetica;"><b><span style="font-size: large;">or cash or checks (made out to DSF) </span></b><br /></span>
<span style="font-family: helvetica;"><b><span style="font-size: large;">can be given to Heather or Jim!! </span></b></span></div><span style="font-family: helvetica;">
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<span style="font-family: helvetica;"><a href="https://www.gofundme.com/f/uvy2xf-dravet-syndrome-awareness-for-luella" target="_blank"><span color="unset" style="animation: unset; backface-visibility: unset; background-blend-mode: unset; background: unset; block-size: unset; border-block: unset; border-collapse: unset; border-end-end-radius: unset; border-end-start-radius: unset; border-inline: unset; border-radius: unset; border-spacing: unset; border-start-end-radius: unset; border-start-start-radius: unset; border: unset; bottom: unset; box-decoration-break: unset; box-shadow: unset; box-sizing: unset; break-after: unset; break-before: unset; break-inside: unset; caption-side: unset; caret-color: unset; clear: unset; clip-path: unset; clip-rule: unset; clip: rect(0px, 0px, 0px, 0px); color-adjust: unset; color-interpolation-filters: unset; color-interpolation: unset; column-fill: unset; column-rule: unset; columns: unset; content: unset; counter-increment: unset; counter-reset: unset; counter-set: unset; cursor: unset; display: unset; dominant-baseline: unset; empty-cells: unset; fill-opacity: unset; fill-rule: unset; fill: unset; filter: unset; flex-flow: unset; flex: unset; float: unset; flood-color: unset; flood-opacity: unset; font-feature-settings: unset; font-kerning: unset; font-language-override: unset; font-optical-sizing: unset; font-size-adjust: unset; font-size: unset; font-stretch: unset; font-style: unset; font-synthesis: unset; font-variant: unset; font-variation-settings: unset; font-weight: unset; gap: unset; grid-area: unset; grid: unset; height: unset; hyphens: unset; image-orientation: unset; image-rendering: unset; ime-mode: unset; inline-size: unset; inset-block: unset; inset-inline: unset; isolation: unset; left: unset; letter-spacing: unset; lighting-color: unset; line-height: unset; list-style: unset; margin-block: unset; margin-inline: unset; margin: unset; marker: unset; mask-type: unset; mask: unset; max-block-size: unset; max-height: unset; max-inline-size: unset; max-width: unset; min-block-size: unset; min-height: unset; min-inline-size: unset; min-width: unset; mix-blend-mode: unset; object-fit: unset; object-position: unset; opacity: unset; order: unset; outline-offset: unset; outline: unset; overflow-anchor: unset; overflow-wrap: unset; overflow: unset; overscroll-behavior: unset; padding-block: unset; padding-inline: unset; padding: unset; paint-order: unset; perspective-origin: unset; perspective: unset; place-content: unset; place-items: unset; place-self: unset; pointer-events: unset; position: fixed; quotes: unset; resize: unset; right: unset; ruby-align: unset; ruby-position: unset; scroll-behavior: unset; scroll-margin-block: unset; scroll-margin-inline: unset; scroll-margin: unset; scroll-padding-block: unset; scroll-padding-inline: unset; scroll-padding: unset; scroll-snap-align: unset; scroll-snap-type: unset; scrollbar-color: unset; scrollbar-width: unset; shape-image-threshold: unset; shape-margin: unset; shape-outside: unset; shape-rendering: unset; stop-color: unset; stop-opacity: unset; stroke-dasharray: unset; stroke-dashoffset: unset; stroke-linecap: unset; stroke-linejoin: unset; stroke-miterlimit: unset; stroke-opacity: unset; stroke-width: unset; stroke: unset; table-layout: unset; text-align-last: unset; text-align: unset; text-anchor: unset; text-combine-upright: unset; text-decoration: unset; text-emphasis-position: unset; text-emphasis: unset; text-indent: unset; text-justify: unset; text-orientation: unset; text-overflow: unset; text-rendering: unset; text-shadow: unset; text-transform: unset; top: 0px; touch-action: unset; transform-box: unset; transform-origin: unset; transform-style: unset; transform: unset; transition: unset; vector-effect: unset; vertical-align: unset; visibility: unset; white-space: pre; width: unset; will-change: unset; word-break: unset; word-spacing: unset; writing-mode: unset; z-index: unset;">https://www.gofundme.com/f/uvy2xf-dravet-syndrome-awareness-for-luella</span></a><br /></span>
<span style="font-family: helvetica;"><br /></span><div class="separator" style="clear: both; text-align: center;"><div class="separator" style="clear: both; text-align: center;"><a href="https://1.bp.blogspot.com/-ALqrH9oSZtg/YJ3JEiRLNBI/AAAAAAABNNk/AwzQOevgOXgiW6LcanCKDt6O9BBmUHbagCLcBGAsYHQ/s2048/past%2Bwinners.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1906" data-original-width="2048" src="https://1.bp.blogspot.com/-ALqrH9oSZtg/YJ3JEiRLNBI/AAAAAAABNNk/AwzQOevgOXgiW6LcanCKDt6O9BBmUHbagCLcBGAsYHQ/s320/past%2Bwinners.jpg" width="320" /> </a></div><div class="separator" style="clear: both; text-align: center;"> </div><div class="separator" style="clear: both; text-align: center;"> </div>
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<span style="font-family: helvetica;"><i style="font-size: 16px;"><b><span>**Now for the fine print... </span></b></i><br /></span>
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<tr><td style="text-align: center;"><span style="font-family: helvetica;"><a href="https://1.bp.blogspot.com/-inYE0CiDSfY/XO87ONEBPnI/AAAAAAAAurQ/eUWa63Zsbi08E0t7_n6HuLEYp15z2NhkwCLcBGAs/s1600/IMG_2186_1.jpg" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="992" data-original-width="1600" height="198" src="https://1.bp.blogspot.com/-inYE0CiDSfY/XO87ONEBPnI/AAAAAAAAurQ/eUWa63Zsbi08E0t7_n6HuLEYp15z2NhkwCLcBGAs/s320/IMG_2186_1.jpg" width="320" /></a></span></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: helvetica;">Sugar cookie example of what I could SHIP!!</span></td></tr>
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<span style="font-family: helvetica;"><span><span style="font-size: 16px;">1.
I will only deliver to Luverne MN, Sioux Falls SD or Estelline SD areas
or areas in between OR you may arrange to pick up the cake in Luverne. </span><b style="font-size: 16px;">NOTE</b><span style="font-size: 16px;"> – </span><b style="font-size: 16px;">If
you live outside these areas, you may still donate but you will NOT be
eligible for a cake UNLESS YOU pick up or you may choose the cookies
that I can ship. </b></span><br /></span>
<span style="font-family: helvetica;"><br /></span>
<span style="font-family: helvetica;"><span><span style="font-size: 16px;">2. The cake will be a 10" round cake (or equivalent). This would be a great sized cake for a birthday with 20-25 guests! </span></span><br /></span>
<span style="font-family: helvetica;"><span><br style="font-size: 16px;" /><span style="font-size: 16px;">3. No wedding cakes. Level of detail is to my discretion. </span></span><br /></span>
<span style="font-family: helvetica;"><span><br style="font-size: 16px;" /><span style="font-size: 16px;">4. Cake
must be “ordered” at least 4 weeks in advance. I will try to be
available, although please understand that we get busy at times and may
have travel planned. I would ask that you be flexible and maybe have
another occasion in mind. </span></span><br /></span>
<span style="font-family: helvetica;"><span><span style="font-size: 16px;"><br /></span></span></span>
<span style="font-family: helvetica;"><span><span style="font-size: 16px;">5. The donation website will close down at midnight on June 23rd and a winner will be announced on Luella's blog on June 24th!! </span></span><br /></span>
<span style="font-family: helvetica;"><span><br /></span></span>
<span style="font-family: helvetica;"><span>If you'd like to follow Luella's Blog please visit: <a href="http://littleluella.blogspot.com/">http://littleluella.blogspot.com/</a></span><br /></span>
<span style="font-family: helvetica;"><span><br /></span></span>
<span style="font-family: helvetica;"><span>If you'd like to learn more about Dravet syndrome or the Dravet Syndrome Foundation, please visit: <a href="http://www.dravetfoundation.org/">http://www.dravetfoundation.org/</a></span><br /></span>
<span style="font-family: helvetica;"><span><br /></span></span>
<span style="font-family: helvetica;"><span>To
find out more about my little cake/cookie hobby, check out <a href="https://www.facebook.com/EmbellishedLuv/" target="_blank">Embellished Luv</a> on facebook!
You can see some of the fun cakes and cookies I've made in the past. <b> PLEASE NOTE:</b> I'm currently <u>NOT taking orders</u>. I'm busy with other things these days, BUT the winner of the raffle will definitely get a cake!! (or cookies!)</span><br /></span>
<span style="font-family: helvetica;"><br /></span>
<span style="font-family: helvetica;"><span>Thank you!!! I can't wait to announce this year's winner!!</span></span></div><span style="font-family: helvetica;">
<span><br /></span>
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<span style="font-family: helvetica;"><b><span style="font-size: x-large;">Please share!!</span></b></span></div><span style="font-family: helvetica;">
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: helvetica;"><span style="font-size: small;">Luella on the first Dravet Syndrome Awareness Day in 2014. June 23rd is all about her!</span></span></td><td class="tr-caption" style="text-align: center;"><span style="font-family: helvetica;"><span style="font-size: small;"><br /><br /> </span></span></td><td class="tr-caption" style="text-align: center;"><span style="font-family: helvetica;"><span style="font-size: small;"> </span></span></td><td class="tr-caption" style="text-align: center;"><span style="font-family: helvetica;"> </span></td><td class="tr-caption" style="text-align: center;"><span style="font-family: helvetica;"> </span></td><td class="tr-caption" style="text-align: center;"><span style="font-family: helvetica;"> </span></td><td class="tr-caption" style="text-align: center;"><span style="font-family: helvetica;"> </span></td></tr>
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<span style="font-family: helvetica;"><b><span style="font-size: x-large;">Get your purple ready for June 23rd!<br /><span style="font-size: small;">Share pictures of you wearing purple!</span></span></b></span></div><div style="text-align: center;"><span style="font-family: helvetica;"><b><span style="font-size: x-large;"><span style="font-size: small;">If you bought a hat, please wear it!!</span></span></b></span></div><div style="text-align: center;"><span style="font-family: helvetica;"><b><span style="font-size: x-large;"><span style="font-size: small;"> </span></span></b><br /></span>
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<span style="font-family: helvetica;"><br /></span><div><span style="font-size: medium;"><span style="font-family: helvetica;"><b><span>Luella celebrated 500 days seizure free </span></b></span></span></div><div><span style="font-size: medium;"><span style="font-family: helvetica;"><b><span>in December and she keeps going!! </span></b></span></span></div><div><span style="font-size: medium;"><span style="font-family: helvetica;"><b><span>She is currently OVER 650 days seizure free. </span></b></span></span></div><h4><span style="font-family: helvetica;"></span></h4>
<span style="font-family: helvetica;"><br /></span>
<span style="font-family: helvetica;"><b><span style="font-size: x-large;">THANK YOU EVERYONE!!</span></b>
<b><span style="font-size: x-large;"><br /></span></b></span>
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<br /></span>Heatherhttp://www.blogger.com/profile/08195762733183145670noreply@blogger.com0tag:blogger.com,1999:blog-8495042362280584288.post-21367144095780093192021-05-14T11:26:00.001-05:002021-05-14T11:30:06.675-05:00Did you get a hat?<p> </p><h2 style="text-align: center;"><span style="font-family: verdana;">Did you get a Dravet Syndrome hat</span>?</h2><br /><div class="separator" style="clear: both; text-align: center;"><a href="https://1.bp.blogspot.com/-oNyb-qASUEI/YJ3YCX6D16I/AAAAAAABNN0/Dh9d4ITywx4zsQ2a5F1kzTC4ZBVwEzxpgCLcBGAsYHQ/s2048/1C712FC4-A3C9-4818-AAFD-18A7FBDE3A18.jpeg" style="margin-left: 1em; margin-right: 1em;"><span style="font-family: verdana;"><img border="0" data-original-height="2048" data-original-width="1539" height="320" src="https://1.bp.blogspot.com/-oNyb-qASUEI/YJ3YCX6D16I/AAAAAAABNN0/Dh9d4ITywx4zsQ2a5F1kzTC4ZBVwEzxpgCLcBGAsYHQ/s320/1C712FC4-A3C9-4818-AAFD-18A7FBDE3A18.jpeg" /></span></a></div><div class="separator" style="clear: both; text-align: center;"><span style="font-family: verdana;"><br /></span></div><div class="separator" style="clear: both; text-align: center;"><span style="font-family: verdana;">If you got a hat when we did the Hat Fundraiser for DSF a few weeks ago, we’d love to see your pictures. Dravet Syndrome Awareness Day is coming up on June 23 and I’d love to share a photo collage of all those awesome hats out there. </span></div><div class="separator" style="clear: both; text-align: center;"><span style="font-family: verdana;"><br /></span></div><div class="separator" style="clear: both; text-align: center;"><a href="https://1.bp.blogspot.com/-tjgfigA_HSA/YJ3Y5olr3nI/AAAAAAABNOA/heKDWrtyRBofaeEMWO2msBIhRaA08ct0gCLcBGAsYHQ/s2048/90524FD5-AD22-47DC-86F1-3E86A4DFAB94.jpeg" style="margin-left: 1em; margin-right: 1em;"><span style="font-family: verdana;"><img border="0" data-original-height="2048" data-original-width="2048" height="400" src="https://1.bp.blogspot.com/-tjgfigA_HSA/YJ3Y5olr3nI/AAAAAAABNOA/heKDWrtyRBofaeEMWO2msBIhRaA08ct0gCLcBGAsYHQ/w400-h400/90524FD5-AD22-47DC-86F1-3E86A4DFAB94.jpeg" width="400" /></span></a></div><div class="separator" style="clear: both; text-align: center;"><span style="font-family: verdana;"><b><br /></b></span></div><div class="separator" style="clear: both; text-align: center;"><span style="font-family: verdana;"><b>If you missed out and still want a hat, let me know - I did order a few extra! </b></span></div><div class="separator" style="clear: both; text-align: center;"><span style="font-family: verdana;"><br /></span></div><div class="separator" style="clear: both; text-align: center;"><span style="font-family: verdana;"><b><span style="font-size: medium;">Also, we are super excited to share that Luella is </span></b></span></div><div class="separator" style="clear: both; text-align: center;"><span style="font-family: verdana;"><b><span style="font-size: medium;">650 days seizure free today</span></b><b><span style="font-size: medium;">!!! </span></b></span></div><div class="separator" style="clear: both; text-align: center;"><span style="font-family: verdana;"><br /></span></div><div class="separator" style="clear: both; text-align: center;"><span style="font-family: verdana;">We are so grateful for each and every day enjoyed without a seizure. Luella has many Dravet friends that do not get to experience seizure freedom. Many struggle every day and face so many challenges. Sadly, some don’t make it. We’ve had a few in our Dravet community </span><span style="font-family: verdana;">just recently </span><span style="font-family: verdana;">lose their warriors to this awful battle. We know that Luella’s future is uncertain too. In just over a week I’ll be launching my EIGHTH Annual “a cake 4 a cure” fundraiser. We hope to raise more money to help DSF find a CURE. IN THE PAST 7 years we’ve raised over $10,000 for DSF to fund research for a cure! Be watching for more details!</span></div><div class="separator" style="clear: both; text-align: center;"><span style="font-family: verdana;"><br /></span></div><div class="separator" style="clear: both; text-align: center;"><span style="font-family: verdana;">I’ll leave you with Luella playing “<span face="arial, sans-serif" style="-webkit-text-size-adjust: auto; caret-color: rgb(32, 33, 36); color: #202124; font-size: 16px; text-align: left;">Für Elise” for her </span>virtual spring piano recital. </span></div><div class="separator" style="clear: both; text-align: center;"><span style="font-family: verdana;"><br /></span></div><div class="separator" style="clear: both; text-align: center;"><a href="https://fb.watch/5tBBr4jZyd/"><span style="font-family: verdana;">https://fb.watch/5tBBr4jZyd/</span></a></div><div class="separator" style="clear: both; text-align: center;"><span style="font-family: verdana;"><br /></span></div>
<div class="separator" style="clear: both; text-align: center;"><br /></div><div class="separator" style="clear: both; text-align: center;"><br /></div><div class="separator" style="clear: both; text-align: center;"><iframe allow="autoplay; clipboard-write; encrypted-media; picture-in-picture; web-share" allowfullscreen="true" frameborder="0" height="317" scrolling="no" src="https://www.facebook.com/plugins/video.php?height=317&href=https%3A%2F%2Fwww.facebook.com%2Fluvernestreetmusic%2Fvideos%2F478870233443275%2F&show_text=false&width=560" style="border: none; overflow: hidden;" width="560"></iframe>
<br /><span style="font-family: verdana;"><br /> Thank you!</span></div><br /><div class="separator" style="clear: both; text-align: center;"><br /></div><br /><p></p>Heatherhttp://www.blogger.com/profile/08195762733183145670noreply@blogger.com0tag:blogger.com,1999:blog-8495042362280584288.post-33659270135539859692021-03-12T13:17:00.001-06:002021-03-12T13:17:23.285-06:00Wear a HAT, Raise Awareness!<p>Today we launched a hat campaign for the Dravet Syndrome Foundation! We hope you will participate and buy a hat to help us raise awareness and support DSF's fundraising to help find a CURE! These are awesome, great quality hats! I ordered a sample and they are really nice. They fit Jim's head and adjust nicely to fit me comfortably as well! There are several colors you can choose from. ALL proceeds go directly to DSF from Custom Ink in honor of Luella! We are SOO happy she continues to be seizure-free! God-willing, when this campaign ends on April 4th she will be 610 days seizure-free! That's a lot of days to enjoy without a disruption from having a seizure. We pray that she can continue down this road of seizure freedom and enjoy all the wonderful things along the way!</p><p>If you are interested in ordering a hat, click the link below and place your order. If you are local you can select local pick up and I'll let you know when they arrive, probably around April 20th. </p><p><a href="https://www.customink.com/fundraising/dravet-hat">https://www.customink.com/fundraising/dravet-hat</a> <br /></p>
<div style="text-align: center;"><iframe class="fundraising-widget" data-id="86a5d0" data-src="https://www.customink.com/fundraising/widgets/dravet-hat" data-url-key="dravet-hat" data-utm-campaign="campaign-embed-v1" height="484px" width="220px"></iframe></div><div style="text-align: center;"></div><div style="text-align: center;"></div><div style="text-align: center;"><script src="https://www.customink.com/fundraising/assets/campaign_widget/fundraising_widget.js"></script></div> <br />
<div style="text-align: center;"><a href="https://1.bp.blogspot.com/-566Yc_Om8UY/YEu8-7o8jlI/AAAAAAABLfU/NfOORLcOJB4wYf_THQ-Xa5heBiNS0Q7MQCLcBGAsYHQ/s2048/IMG_7020.JPG" imageanchor="1"><img border="0" data-original-height="2048" data-original-width="1536" height="400" src="https://1.bp.blogspot.com/-566Yc_Om8UY/YEu8-7o8jlI/AAAAAAABLfU/NfOORLcOJB4wYf_THQ-Xa5heBiNS0Q7MQCLcBGAsYHQ/w300-h400/IMG_7020.JPG" width="300" /></a></div><div style="text-align: center;">Luella enjoying some outside time with Charles!<br /></div>Heatherhttp://www.blogger.com/profile/08195762733183145670noreply@blogger.com0tag:blogger.com,1999:blog-8495042362280584288.post-39427080821097101262020-11-01T20:10:00.000-06:002020-11-01T20:10:16.992-06:00Record Setting Days Continue into Epilepsy Awareness Month<p> Luella is on roll! We are past 450 days seizure-free and STILL COUNTING! Thanking God for all those days EVERY day! And now we into November and Epilepsy Awareness Month. We hope you all will do something to help us spread awareness for epilepsy. Wear some purple, wear your awareness shirts or bracelets or share a post on Facebook with some epilepsy facts - watch my Facebook feed for things you can share! </p><div class="separator" style="clear: both; text-align: center;"><a href="https://1.bp.blogspot.com/-yZmR1Np2fsc/X59ja0G7nRI/AAAAAAABGYo/IkNo9noqvfcSKqieXzQEUcT4TX_LsDxUQCLcBGAsYHQ/s2048/SUN_EpilepsyInfoPoster_18x24_11.8.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1536" height="600" src="https://1.bp.blogspot.com/-yZmR1Np2fsc/X59ja0G7nRI/AAAAAAABGYo/IkNo9noqvfcSKqieXzQEUcT4TX_LsDxUQCLcBGAsYHQ/w450-h600/SUN_EpilepsyInfoPoster_18x24_11.8.jpg" width="450" /></a></div><p></p><p>Luella turned 11 in October and because of covid we just had a very small family party at home with Grandpa and Grandma J. Luella usually has a pretty fun friend party so she was bummed to not get to celebrate with her friends. She had a few friends do some special extras to make the day fun and we are SO grateful to them for helping her celebrate!</p>
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<table><tbody>
<tr><td><a href="https://1.bp.blogspot.com/-M0WLMgjutAM/X59kTiDy0hI/AAAAAAABGYw/h4LOYQSIvQU_cgDBbGnO2r1ODCQ24i9lACPcBGAsYHg/s6000/DSC_0022.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="6000" data-original-width="4000" height="320" src="https://1.bp.blogspot.com/-M0WLMgjutAM/X59kTiDy0hI/AAAAAAABGYw/h4LOYQSIvQU_cgDBbGnO2r1ODCQ24i9lACPcBGAsYHg/s320/DSC_0022.jpg" /> </a></td>
<td><p>Birthday ZOOMING! </p><a href="https://1.bp.blogspot.com/-6bCRjpcKlqA/X59kTrhY7yI/AAAAAAABGYw/uKnHd5p_Z1E2vS2tOF4_ox0zFYA3b-BhQCPcBGAsYHg/s6000/DSC_0023.jpg" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" data-original-height="4000" data-original-width="6000" height="177" src="https://1.bp.blogspot.com/-6bCRjpcKlqA/X59kTrhY7yI/AAAAAAABGYw/uKnHd5p_Z1E2vS2tOF4_ox0zFYA3b-BhQCPcBGAsYHg/w266-h177/DSC_0023.jpg" width="266" /></a></td></tr></tbody></table>
</div><p></p>
<p style="text-align: center;">Birthday Scavenger Hunt!!<br /></p><div class="separator" style="clear: both; text-align: center;"><a href="https://1.bp.blogspot.com/-w2GoctvwHbs/X59kTv2mtFI/AAAAAAABGYw/2sTp36BMxf8ziIFyN2RZNI53_3X0i1SewCPcBGAsYHg/s6000/DSC_0019.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="4000" data-original-width="6000" height="266" src="https://1.bp.blogspot.com/-w2GoctvwHbs/X59kTv2mtFI/AAAAAAABGYw/2sTp36BMxf8ziIFyN2RZNI53_3X0i1SewCPcBGAsYHg/w400-h266/DSC_0019.jpg" width="400" /></a></div><p></p><p style="text-align: center;">Birthday CAKE!! It's good to be 11!!<br /></p><div class="separator" style="clear: both; text-align: center;"><a href="https://1.bp.blogspot.com/-xto67Yn23UU/X59lAFk5_MI/AAAAAAABGY8/Us_v0CWV_34HPdQggGPTAscH5m5_bRPKQCLcBGAsYHQ/s6000/DSC_0019-002.JPG" style="margin-left: 1em; margin-right: 1em;"><img alt="Luella is 11" border="0" data-original-height="6000" data-original-width="4000" height="557" src="https://1.bp.blogspot.com/-xto67Yn23UU/X59lAFk5_MI/AAAAAAABGY8/Us_v0CWV_34HPdQggGPTAscH5m5_bRPKQCLcBGAsYHQ/w371-h557/DSC_0019-002.JPG" title="Luella is 11" width="371" /></a></div><br /><p><br /></p><p>Halloween was a fun and a way to get out of the house and see some friends while walking the neighborhood! Her friends may not have recognized HER though!! The kids have gotten into watching "Invader Zim" cartoons and we DIYed some fun costumes this year!! Luella is the one in the middle, "Gir."</p><div class="separator" style="clear: both; text-align: center;"><a href="https://1.bp.blogspot.com/-UasCRtwaB7I/X59l1AgT4II/AAAAAAABGZI/ksvcjMOF3E0RihNHbmFv-Hp0LyQJZxNnQCLcBGAsYHQ/s2048/DSC_0124.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1473" data-original-width="2048" height="336" src="https://1.bp.blogspot.com/-UasCRtwaB7I/X59l1AgT4II/AAAAAAABGZI/ksvcjMOF3E0RihNHbmFv-Hp0LyQJZxNnQCLcBGAsYHQ/w467-h336/DSC_0124.JPG" width="467" /></a></div><br /><div class="separator" style="clear: both; text-align: center;"><a href="https://1.bp.blogspot.com/-8_tU-3ba8Yg/X59l0jXi9oI/AAAAAAABGZE/TrTTU5fC99EtFOm8_GTTzn1Z5VbTcM5eACLcBGAsYHQ/s2048/zim.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1229" data-original-width="2048" src="https://1.bp.blogspot.com/-8_tU-3ba8Yg/X59l0jXi9oI/AAAAAAABGZE/TrTTU5fC99EtFOm8_GTTzn1Z5VbTcM5eACLcBGAsYHQ/s320/zim.jpg" width="320" /></a></div><div style="text-align: center;"> Remember to wear purple in November! Share a picture with us! </div><div style="text-align: center;"><br /></div><div class="separator" style="clear: both; text-align: center;"><a href="https://1.bp.blogspot.com/-t-RYgEEidaY/VjgwxMobDLI/AAAAAAAAV18/ErlCjMAuq3E2QU2m-L8yIAOVuOKISPoIgCPcBGAYYCw/s800/Epilepsy_Awareness_Sign.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="538" data-original-width="800" height="299" src="https://1.bp.blogspot.com/-t-RYgEEidaY/VjgwxMobDLI/AAAAAAAAV18/ErlCjMAuq3E2QU2m-L8yIAOVuOKISPoIgCPcBGAYYCw/w445-h299/Epilepsy_Awareness_Sign.jpg" width="445" /></a></div><br /><div style="text-align: center;"><br /></div><div style="text-align: center;"><p>I'll leave you with this little clip of "Gir" doing a little dance!<br />Watch on Youtube:<a href=" https://youtu.be/q5_rsMVeoY4 " target="_blank"> https://youtu.be/q5_rsMVeoY4 </a><br /></p><p></p><div class="separator" style="clear: both; text-align: center;"><br /></div><br />
<iframe frameborder="0" height="270" src="https://www.youtube.com/embed/q5_rsMVeoY4" style="background-image: url(https://i.ytimg.com/vi/q5_rsMVeoY4/hqdefault.jpg);" width="480"></iframe> <p></p></div>Heatherhttp://www.blogger.com/profile/08195762733183145670noreply@blogger.com0tag:blogger.com,1999:blog-8495042362280584288.post-76347265192540858512020-08-14T21:44:00.000-05:002020-08-14T21:44:51.004-05:00New RECORD<p><span style="color: #351c75;"><b><span style="font-family: helvetica;">NEW RECORD!!! </span></b></span></p><p><span style="font-family: helvetica;">So fun to celebrate one year and twelve days seizure-free! 377
days of enjoying life without ONE seizure to stand in her way! Praying
for MANY more days. We celebrated with homemade pizza tonight and a
yummy cookie cake loaded with M&Ms! As I put Luella to bed tonight
she said.. "So every day past today is basically a new record, can we
celebrate everyday?" Nice try Luella... yes, we WILL celebrate
everyday... maybe not with a cookie cake though! <span class="_5mfr"><span class="_6qdm" style="background-image: url("https://static.xx.fbcdn.net/images/emoji.php/v9/t96/1/16/1f49c.png"); font-size: 16px; height: 16px; width: 16px;">💜</span></span></span></p><br /><div class="separator" style="clear: both; text-align: center;"><a href="https://1.bp.blogspot.com/-Ya6uVOeBByY/XzdLzOu2WyI/AAAAAAABD8w/nUKaNyWwCM0KQgy1xWcBgPp6_S1bPEO8wCLcBGAsYHQ/s2048/DSC_0024b.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2048" data-original-width="1591" height="640" src="https://1.bp.blogspot.com/-Ya6uVOeBByY/XzdLzOu2WyI/AAAAAAABD8w/nUKaNyWwCM0KQgy1xWcBgPp6_S1bPEO8wCLcBGAsYHQ/s640/DSC_0024b.jpg" /></a></div>Heatherhttp://www.blogger.com/profile/08195762733183145670noreply@blogger.com0tag:blogger.com,1999:blog-8495042362280584288.post-35256452075249982922020-08-03T16:48:00.000-05:002020-08-03T16:48:25.672-05:00ONE YEAR SEIZURE FREE!<div>
<span style="font-family: "helvetica";">Luella made it to
<span style="color: #800180;"><b>ONE YEAR SEIZURE FREE</b></span> again!!
Hurray! Last year the all-time record was ONE year and ELEVEN days.... and
we are on our way! She has been doing amazing so I believe we will keep
trucking past that record! If we get to </span><span style="font-family: "helvetica";"></span><span style="font-family: "helvetica";">August 14th we'll have a new record! </span><br /><span style="font-family: "helvetica";"><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto;">
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<a href="https://1.bp.blogspot.com/-YIvN9h8p7_Y/XTj8azDAiTI/AAAAAAAAyOA/9_oAHqeUuRkfr9jfIATl6K6OYaRPH5j_ACPcBGAYYCw/s2048/IMG_4158.JPG" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1157" data-original-width="2048" height="186" src="https://1.bp.blogspot.com/-YIvN9h8p7_Y/XTj8azDAiTI/AAAAAAAAyOA/9_oAHqeUuRkfr9jfIATl6K6OYaRPH5j_ACPcBGAYYCw/w328-h186/IMG_4158.JPG" width="328" /></a>
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365 DAYS SEIZURE FREE!!<br />(from Pizza Ranch celebration last
year)<br />
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<span style="font-family: "helvetica";"><br /></span>
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<span style="font-family: "helvetica";">Luella was remembering celebrating last year at Pizza Ranch with so many
friends and family! That was amazing! She absolutely loved that! Sadly, the
current conditions will keep us from celebrating with others... but if we
get there, we'll definitely do something special at home!! <br /></span>
</div>
<div>
<span style="font-family: "helvetica";"><br />
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<a href="https://1.bp.blogspot.com/-OhEZQ70hGNo/XTj7zSIxYiI/AAAAAAAAyNU/zopoH2NQ8DcPwktlnBi17CjiqRNrONnygCPcBGAYYCw/s2048/DSC_1238.JPG" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1555" data-original-width="2048" height="249" src="https://1.bp.blogspot.com/-OhEZQ70hGNo/XTj7zSIxYiI/AAAAAAAAyNU/zopoH2NQ8DcPwktlnBi17CjiqRNrONnygCPcBGAYYCw/w328-h249/DSC_1238.JPG" width="328" /></a>
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<td class="tr-caption" style="text-align: center;">
At last year's celebration!!
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<span style="font-family: "helvetica";"><br /></span>
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<span style="font-family: "helvetica";"><a href="https://1.bp.blogspot.com/-rooUlVnfFqs/Xyh_xa9baLI/AAAAAAABDos/QAIJsCwMJI4SYhoLk_NoRwshMc35kB8uACLcBGAsYHQ/s2048/Luella%2BJohnson.jpg" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="2048" data-original-width="1536" height="400" src="https://1.bp.blogspot.com/-rooUlVnfFqs/Xyh_xa9baLI/AAAAAAABDos/QAIJsCwMJI4SYhoLk_NoRwshMc35kB8uACLcBGAsYHQ/w300-h400/Luella%2BJohnson.jpg" width="300" /></a></span>
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<td class="tr-caption" style="text-align: center;">
<span style="font-family: "helvetica";">Luella with one of her 4-H craft projects for the "virtual" County
Fair this year! <br />Made from rocks and sticks in our landscaping.
<br /></span>
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<span style="font-family: "helvetica";"><br /></span>
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<a href="https://1.bp.blogspot.com/-En4Kc8rW1Xw/XyiEYC1HDJI/AAAAAAABDpA/oIjiWx5EvyQTOjlTgG-UtRUFtuIgGqHggCLcBGAsYHQ/s2048/IMG_8478.JPG" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="2048" data-original-width="1536" height="262" src="https://1.bp.blogspot.com/-En4Kc8rW1Xw/XyiEYC1HDJI/AAAAAAABDpA/oIjiWx5EvyQTOjlTgG-UtRUFtuIgGqHggCLcBGAsYHQ/w197-h262/IMG_8478.JPG" width="197" /></a>
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<td class="tr-caption" style="text-align: center;">
<span style="font-family: "helvetica";">This picture was taken<br />just a couple days<br />before her 1st
seizure</span><br />
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<br /><span style="font-family: "helvetica";"></span><span style="font-family: "helvetica";"></span>
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<span style="font-family: "helvetica";">Every year as we get into August, I'm reminded of Luella's first ever
seizure... on August 8, 2010 - TEN YEARS ago!! <br /></span>
</div>
<div><span style="font-family: "helvetica";"></span></div>
<div><span style="font-family: "helvetica";"></span></div>
<div>
<span style="font-family: "helvetica";">So crazy how time flies. I look back at those ten years as two time
periods... the first five years being the real struggle. The really hard
time. Lots of seizures. Lots of ER runs and hospital stays. Many helicopter
rides. Medications, changes in diet. Disrupted plans, over and over. REALLY
hard times. And then she turned 5 and we tried a new medication and it
worked wonders! She was coming to that age when many Dravet kids see a
natural decline in seizures. We could do more things. Relax... a little. And
she took off. Doing so much! Accomplishing more than I thought she would! We
are SO blessed to have her doing so well. <br /></span>
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<span style="font-family: "helvetica";">As she continues to grow... in ways I don't appreciate so much - she is now
taller than me, I'm reminded to keep things in perspective and not let down
my guard. Growing up can be a challenge for these kids. I continue to pray
that God will protect Luella and we thank you all for your continued prayers
too! <br /></span>
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<span style="font-family: "helvetica";"><a href="https://1.bp.blogspot.com/-Whiu-4bh1-8/XyiAgMHigcI/AAAAAAABDo0/-ayD84cppY01YDozJZOJwKxu7F04PgvfwCPcBGAsYHg/s4032/IMG_3507.JPG" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="4032" data-original-width="3024" height="640" src="https://1.bp.blogspot.com/-Whiu-4bh1-8/XyiAgMHigcI/AAAAAAABDo0/-ayD84cppY01YDozJZOJwKxu7F04PgvfwCPcBGAsYHg/s640/IMG_3507.JPG" /></a></span>
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<span style="font-family: "helvetica";">Where did <b>LITTLE Luella </b>go?!?!?!<br /></span>
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Heatherhttp://www.blogger.com/profile/08195762733183145670noreply@blogger.com0tag:blogger.com,1999:blog-8495042362280584288.post-15997605762304191722020-06-24T12:40:00.002-05:002020-06-24T12:43:45.411-05:00And the winner is.... 2020 a cake 4 a cure Winner Announcement<div style="text-align: center;">
<span style="color: #7b1fa2;"><b><span style="font-family: "trebuchet ms", sans-serif;"><span style="font-size: large;">Hello everyone!</span></span></b></span></div>
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<span style="font-family: "helvetica neue", "arial", "helvetica", sans-serif;"><span style="color: #351c75;"><span style="font-size: large;"><b>I'm excited to announce that we raised </b></span></span></span></div>
<div style="text-align: center;">
<span style="font-family: "helvetica neue", "arial", "helvetica", sans-serif;"><span style="font-size: x-large;"><span style="color: #351c75;"><b>$1,530 </b></span></span></span></div>
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<span style="font-family: "helvetica neue", "arial", "helvetica", sans-serif;"><span style="color: #351c75;"><span style="font-size: large;"><b>for the Dravet Syndrome Foundation in honor of Luella!! </b></span></span></span></div>
<span style="font-family: "helvetica neue", "arial", "helvetica", sans-serif;"><br /></span>
<span style="font-family: "helvetica neue", "arial", "helvetica", sans-serif;">YAY!!
Thank you SO MUCH to all to our VERY GENEROUS donors!! We could NOT do
this every year without all your help!! ALL of this money will be sent
to the Dravet Syndrome Foundation to help find a CURE!! </span><br />
<span style="font-family: "helvetica neue", "arial", "helvetica", sans-serif;">There is some
really amazing research happening with Dravet syndrome and we've been
blessed
to send them<span style="color: #351c75;"><b> OVER $10,000 over the past 7 years </b></span>thanks to all of your support!!</span><br />
<br />
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<a href="https://1.bp.blogspot.com/-VgpwqOiXIxg/Xsmc6oFN3LI/AAAAAAAA_bQ/Pvnp3l1x8KEBpf0CwoxYK0gSbayHL2bKwCK4BGAsYHg/s1616/acake4acure_2020.png" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="887" data-original-width="1616" height="220" src="https://1.bp.blogspot.com/-VgpwqOiXIxg/Xsmc6oFN3LI/AAAAAAAA_bQ/Pvnp3l1x8KEBpf0CwoxYK0gSbayHL2bKwCK4BGAsYHg/w400-h220/acake4acure_2020.png" width="400" /></a></div>
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<span style="font-size: x-large;"><span style="color: #351c75;"><span style="font-family: "helvetica neue", "arial", "helvetica", sans-serif;"><b>THE WINNER IS.....</b></span></span></span><br />
<span style="font-size: x-large;"><span style="color: #351c75;"><span style="font-family: "helvetica neue", "arial", "helvetica", sans-serif;"><b><span style="font-size: small;">(drumroll)</span></b></span></span></span></div>
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<span style="color: #351c75; font-size: x-large;"><b><span style="font-family: "helvetica neue", "arial", "helvetica", sans-serif;">David Bonner!!!</span> </b></span></div>
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<span style="font-family: "helvetica neue", "arial", "helvetica", sans-serif;"><span style="font-size: small;"><span style="color: #351c75;"><b>David is Jim's boss and lives out on the east coast... so he'll get some special cookies for sure!! He has been a loyal supporter for several years and I'm SO excited to see him win! </b></span></span></span></div>
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<span style="font-family: "helvetica neue", "arial", "helvetica", sans-serif;"><span style="font-size: large;"><span style="color: #351c75;"><b>Congratulations!! </b></span></span></span><br />
<span style="font-family: "helvetica neue", "arial", "helvetica", sans-serif;"><span style="font-size: large;"><span style="color: #351c75;"><b>And thanks again to EVERYONE who </b></span></span></span><br />
<span style="font-family: "helvetica neue", "arial", "helvetica", sans-serif;"><span style="font-size: large;"><span style="color: #351c75;"><b>contributed to this fundraising effort!! </b></span></span></span><br />
<span style="font-family: "helvetica neue", "arial", "helvetica", sans-serif;"><span style="font-size: large;"><span style="color: #351c75;"><b>We have some AMAZING supporters and we are </b></span></span></span><br />
<span style="font-family: "helvetica neue", "arial", "helvetica", sans-serif;"><span style="font-size: large;"><span style="color: #351c75;"><b>SO VERY GRATEFUL to all of you!! </b></span></span></span></div>
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<span style="font-family: "helvetica neue", "arial", "helvetica", sans-serif;"><span style="font-size: small;"><span style="color: #351c75;"><b>Here's a video of the drawing!!</b></span></span></span><br />
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<iframe allowfullscreen="" class="BLOG_video_class" height="337" src="https://www.youtube.com/embed/6wfx1LRGwro" width="480" youtube-src-id="6wfx1LRGwro"></iframe></div>
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<span style="font-family: "helvetica neue", "arial", "helvetica", sans-serif;">Link to video of the drawing: </span></div>
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<a href="https://youtu.be/6wfx1LRGwro" target="_blank"><span style="font-family: "helvetica neue", "arial", "helvetica", sans-serif;"> https://youtu.be/6wfx1LRGwro</span></a> </div>
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<a href="https://1.bp.blogspot.com/-ku5I2kpq2Ko/XvOONOH8wJI/AAAAAAABA00/FbsSozJRb9sSmSQzy9er53zISTaj_SwTACK4BGAsYHg/s4456/unnamed_edit-001.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="4456" data-original-width="3849" height="500" src="https://1.bp.blogspot.com/-ku5I2kpq2Ko/XvOONOH8wJI/AAAAAAABA00/FbsSozJRb9sSmSQzy9er53zISTaj_SwTACK4BGAsYHg/w431-h500/unnamed_edit-001.jpg" width="431" /></a></div>
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<font size="3"><span style="color: #7b1fa2;"><span><span style="font-family: "helvetica";">Oh, and if you want one of those adorable little gnomes that Luella is holding in the picture above... head over to my friends' facebook page (<a href="https://www.facebook.com/thesevengnomes/" target="_blank">The Seven Gnomes</a>) to get yours! She is donating 50% of the sale of these Purple Power Dravet gnomes to DSF in honor of Luella! How cool is that?!?!</span></span></span></font></div>
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Heatherhttp://www.blogger.com/profile/08195762733183145670noreply@blogger.com0tag:blogger.com,1999:blog-8495042362280584288.post-82130710808942125432020-06-22T12:45:00.000-05:002020-06-22T12:45:01.688-05:002020 Fundraiser Update<div class="separator" style="clear: both; text-align: center;">
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<a href="https://1.bp.blogspot.com/-VgpwqOiXIxg/Xsmc6oFN3LI/AAAAAAAA_bQ/_ifzjS7KO5oz1clQz42dxo1bIgRh8iLxgCPcBGAYYCw/s1600/acake4acure_2020.png" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="879" data-original-width="1600" height="175" src="https://1.bp.blogspot.com/-VgpwqOiXIxg/Xsmc6oFN3LI/AAAAAAAA_bQ/_ifzjS7KO5oz1clQz42dxo1bIgRh8iLxgCPcBGAYYCw/s320/acake4acure_2020.png" width="320" /></a></div>
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We hit our fundraising goal awhile ago!!! Thank you to our friends and family for generously supporting this effort!! Some of you give EVERY year!! THANK YOU!! We have just over a DAY left and we'd love to add some extra funds for the Dravet Syndrome Foundation in
honor of Luella. Please consider donating to the fundraiser and getting
your name into the drawing for a CAKE from me (or cookies....)! Please
see the original blog post here for all the details....</div>
<div style="text-align: center;">
<a href="https://littleluella.blogspot.com/2020/05/seventh-annual-cake-4-cure-fundraiser.html" target="_blank">https://littleluella.blogspot.com/2020/05/seventh-annual-cake-4-cure-fundraiser.html</a></div>
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OR jump straight to GoFundMe to donate:</div>
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<a href="https://www.gofundme.com/f/uvy2xf-dravet-syndrome-awareness-for-luella" target="_blank">https://www.gofundme.com/f/uvy2xf-dravet-syndrome-awareness-for-luella </a></div>
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scroll-margin: unset; scroll-padding-block: unset; scroll-padding-inline: unset; scroll-padding: unset; scroll-snap-align: unset; scroll-snap-type: unset; scrollbar-color: unset; scrollbar-width: unset; shape-image-threshold: unset; shape-margin: unset; shape-outside: unset; shape-rendering: unset; stop-color: unset; stop-opacity: unset; stroke-dasharray: unset; stroke-dashoffset: unset; stroke-linecap: unset; stroke-linejoin: unset; stroke-miterlimit: unset; stroke-opacity: unset; stroke-width: unset; stroke: unset; table-layout: unset; text-align-last: unset; text-align: unset; text-anchor: unset; text-combine-upright: unset; text-decoration: unset; text-emphasis-position: unset; text-emphasis: unset; text-indent: unset; text-justify: unset; text-orientation: unset; text-overflow: unset; text-rendering: unset; text-shadow: unset; text-transform: unset; top: 0px; touch-action: unset; transform-box: unset; transform-origin: unset; transform-style: unset; transform: unset; transition: unset; 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You can personally give me cash or a check (made out to DSF) also!! </div>
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Watch for a post on Wednesday, June 24th - I'll be announcing the WINNER!!</div>
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Don't forget to wear some PURPLE tomorrow (June 23rd) in honor of Luella and Dravet Syndrome Awareness Day!! Share your pictures with me!! </div>
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<span style="color: #351c75;"><span style="font-size: large;"><b>ALSO.... Luella is currently 324 DAYS SEIZURE FREE!!!!</b></span></span></div>
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<span style="color: #351c75;"><span style="font-size: large;"><b>Thank you for your continued prayers. </b></span></span> </div>
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<a href="https://1.bp.blogspot.com/-Sk5Xla7aih0/WP-0RsyAAuI/AAAAAAAAbNQ/mLdSup73qOUEF7RMWk3ef5hH7d1p1g2iACPcBGAYYCw/s1600/dsa.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="875" data-original-width="1280" height="218" src="https://1.bp.blogspot.com/-Sk5Xla7aih0/WP-0RsyAAuI/AAAAAAAAbNQ/mLdSup73qOUEF7RMWk3ef5hH7d1p1g2iACPcBGAYYCw/s320/dsa.jpg" width="320" /></a></div>
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Heatherhttp://www.blogger.com/profile/08195762733183145670noreply@blogger.com0tag:blogger.com,1999:blog-8495042362280584288.post-14838400288877029202020-05-23T17:02:00.001-05:002020-06-04T21:47:04.157-05:00Seventh Annual "a cake 4 a cure" Fundraiser - 2020<br />
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<a href="https://1.bp.blogspot.com/-VgpwqOiXIxg/Xsmc6oFN3LI/AAAAAAAA_bE/NGMU7b40NuohbLU18uq828YgBcUlc8x7wCLcBGAsYHQ/s1600/acake4acure_2020.png" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="879" data-original-width="1600" height="218" src="https://1.bp.blogspot.com/-VgpwqOiXIxg/Xsmc6oFN3LI/AAAAAAAA_bE/NGMU7b40NuohbLU18uq828YgBcUlc8x7wCLcBGAsYHQ/s400/acake4acure_2020.png" width="400" /></a></div>
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This year is my <b>SEVENTH ANNUAL</b> “a cake 4 a cure” fundraiser to raise money for the Dravet Syndrome Foundation to help find a cure for this rare form of epilepsy!! Hard to believe we've done this for 7 years now! We appreciate ALL of you who continue to support Luella and finding a cure! <br />
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Please visit the fundraising
website <a href="https://www.gofundme.com/f/uvy2xf-dravet-syndrome-awareness-for-luella" target="_blank">(GoFundMe</a>) to make a donation.<br />
<a href="https://www.gofundme.com/f/uvy2xf-dravet-syndrome-awareness-for-luella" target="_blank"><span style="animation: unset; backface-visibility: unset; background-blend-mode: unset; background: unset; block-size: unset; border-block: unset; border-collapse: unset; border-end-end-radius: unset; border-end-start-radius: unset; border-inline: unset; border-radius: unset; border-spacing: unset; border-start-end-radius: unset; border-start-start-radius: unset; border: unset; bottom: unset; box-decoration-break: unset; box-shadow: unset; box-sizing: unset; break-after: unset; break-before: unset; break-inside: unset; caption-side: unset; caret-color: unset; clear: unset; clip-path: unset; clip-rule: unset; clip: rect(0px, 0px, 0px, 0px); color-adjust: unset; color-interpolation-filters: unset; color-interpolation: unset; color: unset; column-fill: unset; column-rule: unset; columns: unset; content: unset; counter-increment: unset; counter-reset: unset; counter-set: unset; cursor: unset; display: unset; dominant-baseline: unset; empty-cells: unset; fill-opacity: unset; fill-rule: unset; fill: unset; filter: unset; flex-flow: unset; flex: unset; float: unset; flood-color: unset; flood-opacity: unset; font-synthesis: unset; font: unset; gap: unset; grid-area: unset; grid: unset; height: unset; hyphens: unset; image-orientation: unset; image-rendering: unset; ime-mode: unset; inline-size: unset; inset-block: unset; inset-inline: unset; isolation: unset; left: unset; letter-spacing: unset; lighting-color: unset; list-style: unset; margin-block: unset; margin-inline: unset; margin: unset; marker: unset; mask-type: unset; mask: unset; max-block-size: unset; max-height: unset; max-inline-size: unset; max-width: unset; min-block-size: unset; min-height: unset; min-inline-size: unset; min-width: unset; mix-blend-mode: unset; object-fit: unset; object-position: unset; opacity: unset; order: unset; outline-offset: unset; outline: unset; overflow-anchor: unset; overflow-wrap: unset; overflow: unset; overscroll-behavior: unset; padding-block: unset; padding-inline: unset; padding: unset; paint-order: unset; perspective-origin: unset; perspective: unset; place-content: unset; place-items: unset; place-self: unset; pointer-events: unset; position: fixed; quotes: unset; resize: unset; right: unset; ruby-align: unset; ruby-position: unset; scroll-behavior: unset; scroll-margin-block: unset; scroll-margin-inline: unset; scroll-margin: unset; scroll-padding-block: unset; scroll-padding-inline: unset; scroll-padding: unset; scroll-snap-align: unset; scroll-snap-type: unset; scrollbar-color: unset; scrollbar-width: unset; shape-image-threshold: unset; shape-margin: unset; shape-outside: unset; shape-rendering: unset; stop-color: unset; stop-opacity: unset; stroke-dasharray: unset; stroke-dashoffset: unset; stroke-linecap: unset; stroke-linejoin: unset; stroke-miterlimit: unset; stroke-opacity: unset; stroke-width: unset; stroke: unset; table-layout: unset; text-align-last: unset; text-align: unset; text-anchor: unset; text-combine-upright: unset; text-decoration: unset; text-emphasis-position: unset; text-emphasis: unset; text-indent: unset; text-justify: unset; text-orientation: unset; text-overflow: unset; text-rendering: unset; text-shadow: unset; text-transform: unset; top: 0px; touch-action: unset; transform-box: unset; transform-origin: unset; transform-style: unset; transform: unset; transition: unset; vector-effect: unset; vertical-align: unset; visibility: unset; white-space: pre; width: unset; will-change: unset; word-break: unset; word-spacing: unset; writing-mode: unset; z-index: unset;">https://www.gofundme.com/f/uvy2xf-dravet-syndrome-awareness-for-luella</span></a></div>
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<b>More details on the raffle can be found on this post below! PLEASE NOTE: There won't be anything about the raffle on the donation site at GoFundMe - that is strictly a place to donate. I will keep track of what you donated to make sure you have the correct number of entries in the drawing. </b></div>
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<b>The donation site will close on June 23rd and a winner will be announced on June 24th! </b></div>
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<b>ALL money will be donated to the <a href="http://www.dravetfoundation.org/" target="_blank">Dravet Syndrome Foundation</a> </b></div>
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<b>in honor of Luella and to help find a cure! <span style="font-size: large;"> </span></b></div>
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<b><span style="font-size: large;">Over the past 6 years we've sent over $8,500 to the </span></b></div>
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<b><span style="font-size: large;">Dravet Syndrome Foundation!! </span></b></div>
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<b><span style="font-size: large;">THANK YOU!!!</span></b></div>
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Last
year's winner was Ingrid!</div>
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She is a huge Minnesota Gopher Volleyball fan! </div>
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This is what I made to help her celebrate! </div>
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<a href="https://1.bp.blogspot.com/-QQ7_G5ju8Jw/XsmV3IeXkDI/AAAAAAAA_ag/EAdrgY9W6ekPQTkjzt1ciA7JJaZb1vs6gCLcBGAsYHQ/s1600/DSC_3093a.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1600" data-original-width="1600" height="320" src="https://1.bp.blogspot.com/-QQ7_G5ju8Jw/XsmV3IeXkDI/AAAAAAAA_ag/EAdrgY9W6ekPQTkjzt1ciA7JJaZb1vs6gCLcBGAsYHQ/s320/DSC_3093a.jpg" width="320" /></a></div>
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<a href="https://1.bp.blogspot.com/-cdjoFvK7XhE/XsmV4GOFhII/AAAAAAAA_ak/j8-5jRuGiPoziTTCKrdYzVauQbrnh2qdgCLcBGAsYHQ/s1600/DSC_3098a.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1600" data-original-width="1600" height="319" src="https://1.bp.blogspot.com/-cdjoFvK7XhE/XsmV4GOFhII/AAAAAAAA_ak/j8-5jRuGiPoziTTCKrdYzVauQbrnh2qdgCLcBGAsYHQ/s320/DSC_3098a.jpg" width="320" /></a></div>
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<b><span style="font-size: large;">So, how does this fundraising raffle work?</span></b><br />
Each entry into the drawing is $5. If you donate $50 - you will get 10 entries into the drawing. <b>This is basically a LOCAL raffle </b>since I will not ship a cake. <b>However</b>... if someone from a distance donates and wins,<b> I WILL bake 2 DOZEN cookies</b>
(decorated sugar cookies or chocolate chip cookies) and ship them!! I
WILL deliver a cake to the winner in Luverne, Sioux Falls or Estelline
areas OR you may arrange to pick up the cake in Luverne.<br />
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<b><span style="font-size: large;">Please visit <a href="https://www.gofundme.com/f/uvy2xf-dravet-syndrome-awareness-for-luella" target="_blank">GoFundMe</a> </span></b><b><span style="font-size: large;">to make a donation </span></b><br />
<b><span style="font-size: large;">or cash or checks (made out to DSF) </span></b><br />
<b><span style="font-size: large;">can be given to Heather or Jim!! </span></b></div>
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<a href="https://www.gofundme.com/f/uvy2xf-dravet-syndrome-awareness-for-luella" target="_blank"><span style="animation: unset; backface-visibility: unset; background-blend-mode: unset; background: unset; block-size: unset; border-block: unset; border-collapse: unset; border-end-end-radius: unset; border-end-start-radius: unset; border-inline: unset; border-radius: unset; border-spacing: unset; border-start-end-radius: unset; border-start-start-radius: unset; border: unset; bottom: unset; box-decoration-break: unset; box-shadow: unset; box-sizing: unset; break-after: unset; break-before: unset; break-inside: unset; caption-side: unset; caret-color: unset; clear: unset; clip-path: unset; clip-rule: unset; clip: rect(0px, 0px, 0px, 0px); color-adjust: unset; color-interpolation-filters: unset; color-interpolation: unset; color: unset; column-fill: unset; column-rule: unset; columns: unset; content: unset; counter-increment: unset; counter-reset: unset; counter-set: unset; cursor: unset; display: unset; dominant-baseline: unset; empty-cells: unset; fill-opacity: unset; fill-rule: unset; fill: unset; filter: unset; flex-flow: unset; flex: unset; float: unset; flood-color: unset; flood-opacity: unset; font-synthesis: unset; font: unset; gap: unset; grid-area: unset; grid: unset; height: unset; hyphens: unset; image-orientation: unset; image-rendering: unset; ime-mode: unset; inline-size: unset; inset-block: unset; inset-inline: unset; isolation: unset; left: unset; letter-spacing: unset; lighting-color: unset; list-style: unset; margin-block: unset; margin-inline: unset; margin: unset; marker: unset; mask-type: unset; mask: unset; max-block-size: unset; max-height: unset; max-inline-size: unset; max-width: unset; min-block-size: unset; min-height: unset; min-inline-size: unset; min-width: unset; mix-blend-mode: unset; object-fit: unset; object-position: unset; opacity: unset; order: unset; outline-offset: unset; outline: unset; overflow-anchor: unset; overflow-wrap: unset; overflow: unset; overscroll-behavior: unset; padding-block: unset; padding-inline: unset; padding: unset; paint-order: unset; perspective-origin: unset; perspective: unset; place-content: unset; place-items: unset; place-self: unset; pointer-events: unset; position: fixed; quotes: unset; resize: unset; right: unset; ruby-align: unset; ruby-position: unset; scroll-behavior: unset; scroll-margin-block: unset; scroll-margin-inline: unset; scroll-margin: unset; scroll-padding-block: unset; scroll-padding-inline: unset; scroll-padding: unset; scroll-snap-align: unset; scroll-snap-type: unset; scrollbar-color: unset; scrollbar-width: unset; shape-image-threshold: unset; shape-margin: unset; shape-outside: unset; shape-rendering: unset; stop-color: unset; stop-opacity: unset; stroke-dasharray: unset; stroke-dashoffset: unset; stroke-linecap: unset; stroke-linejoin: unset; stroke-miterlimit: unset; stroke-opacity: unset; stroke-width: unset; stroke: unset; table-layout: unset; text-align-last: unset; text-align: unset; text-anchor: unset; text-combine-upright: unset; text-decoration: unset; text-emphasis-position: unset; text-emphasis: unset; text-indent: unset; text-justify: unset; text-orientation: unset; text-overflow: unset; text-rendering: unset; text-shadow: unset; text-transform: unset; top: 0px; touch-action: unset; transform-box: unset; transform-origin: unset; transform-style: unset; transform: unset; transition: unset; vector-effect: unset; vertical-align: unset; visibility: unset; white-space: pre; width: unset; will-change: unset; word-break: unset; word-spacing: unset; writing-mode: unset; z-index: unset;">https://www.gofundme.com/f/uvy2xf-dravet-syndrome-awareness-for-luella</span></a><br />
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<a href="https://1.bp.blogspot.com/-YAD-zNRy2H4/XsmZHy8dahI/AAAAAAAA_a4/yCVUuWo_fUIbc0iPOjXijSLZTTuT7WD0ACLcBGAsYHQ/s1600/past%2Bwinners.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1490" data-original-width="1600" height="371" src="https://1.bp.blogspot.com/-YAD-zNRy2H4/XsmZHy8dahI/AAAAAAAA_a4/yCVUuWo_fUIbc0iPOjXijSLZTTuT7WD0ACLcBGAsYHQ/s400/past%2Bwinners.jpg" width="400" /></a></div>
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<i style="font-size: 16px;"><b><span style="font-family: inherit;">**Now for the fine print... </span></b></i><br />
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<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: right; text-align: right;"><tbody>
<tr><td style="text-align: center;"><a href="https://1.bp.blogspot.com/-inYE0CiDSfY/XO87ONEBPnI/AAAAAAAAurQ/eUWa63Zsbi08E0t7_n6HuLEYp15z2NhkwCLcBGAs/s1600/IMG_2186_1.jpg" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="992" data-original-width="1600" height="198" src="https://1.bp.blogspot.com/-inYE0CiDSfY/XO87ONEBPnI/AAAAAAAAurQ/eUWa63Zsbi08E0t7_n6HuLEYp15z2NhkwCLcBGAs/s320/IMG_2186_1.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Sugar cookie example of what I could SHIP!!</td></tr>
</tbody></table>
<span style="font-family: inherit;"><span style="font-size: 16px;">1.
I will only deliver to Luverne MN, Sioux Falls SD or Estelline SD areas
or areas in between OR you may arrange to pick up the cake in Luverne. </span><b style="font-size: 16px;">NOTE</b><span style="font-size: 16px;"> – </span><b style="font-size: 16px;">If
you live outside these areas, you may still donate but you will NOT be
eligible for a cake UNLESS YOU pick up or you may choose the cookies
that I can ship. </b></span><br />
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<span style="font-family: inherit;"><b style="font-size: 16px;"></b><span style="font-size: 16px;">2. The cake will be a 10" round cake (or equivalent). This would be a great sized cake for a birthday with 20-25 guests! </span></span><br />
<span style="font-family: inherit;"><br style="font-size: 16px;" /><span style="font-size: 16px;">3. No wedding cakes. Level of detail is to my discretion. </span></span><br />
<span style="font-family: inherit;"><br style="font-size: 16px;" /><span style="font-size: 16px;">4. Cake
must be “ordered” at least 4 weeks in advance. I will try to be
available, although please understand that we get busy at times and may
have travel planned. I would ask that you be flexible and maybe have
another occasion in mind. </span></span><br />
<span style="font-family: inherit;"><span style="font-size: 16px;"><br /></span></span>
<span style="font-family: inherit;"><span style="font-size: 16px;">5. The donation website will close down at midnight on June 23rd and a winner will be announced on Luella's blog on June 24th!! </span></span><br />
<span style="font-family: inherit;"><br /></span>
<span style="font-family: inherit;">If you'd like to follow Luella's Blog please visit: <a href="http://littleluella.blogspot.com/">http://littleluella.blogspot.com/</a></span><br />
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<span style="font-family: inherit;">If you'd like to learn more about Dravet syndrome or the Dravet Syndrome Foundation, please visit: <a href="http://www.dravetfoundation.org/">http://www.dravetfoundation.org/</a></span><br />
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<span style="font-family: inherit;">To
find out more about my little cake/cookie hobby, check out <a href="https://www.facebook.com/EmbellishedLuv/" target="_blank">Embellished Luv</a> on facebook!
You can see some of the fun cakes and cookies I've made in the past. <b> PLEASE NOTE:</b> I'm currently <u>NOT taking orders</u>. I'm busy with other things these days, BUT the winner of the raffle will definitely get a cake!! (or cookies!)</span><br />
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<span style="font-family: inherit;">Thank you!!! I can't wait to announce this year's winner!!</span></div>
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<b><span style="font-size: x-large;">Please share!!</span></b></div>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: small;">Luella on the first Dravet Syndrome Awareness Day in 2014. June 23rd is all about her!</span></td></tr>
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<b><span style="font-size: x-large;">Get your purple ready for June 23rd!<br /><span style="font-size: small;">Share pictures of you wearing purple!</span></span></b><br />
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<tr><td class="tr-caption" style="text-align: center;">Luella celebrated ONE YEAR of seizure freedom on July 23rd last year!</td><td class="tr-caption" style="text-align: center;"><br /></td></tr>
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<br /><b><span style="font-size: x-large;">Luella is currently 294 days seizure free. </span></b><br />
<b><span style="font-size: x-large;">Last year she got to 376. </span></b><br />
<b><span style="font-size: x-large;">We hope to get to a year again! </span></b><br />
<b><span style="font-size: x-large;">THANK YOU EVERYONE!!</span></b>
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Heatherhttp://www.blogger.com/profile/08195762733183145670noreply@blogger.com0