"The Lord himself goes before you and will be with you; he will never leave you nor forsake you.
   Do not be afraid; do not be discouraged.”
Deuteronomy 31:8

Thursday, November 16, 2017

An Update... 2nd Grade and 8 years old!

This is a LONG overdue post!! I can't believe I haven't even posted since before school started!! Just a quick note that she is currently 116 days seizure-free!!! Now if you want to read the long details below, feel free...

Luella starting the 2nd Grade!
Luella started 2nd grade in September and is doing SO well!!
She has had a few bumps in the road as far as following directions and staying on-task in the classroom. If you recall, last year she basically didn't visit the special ed room at all by the end of the school year. The special ed teacher checked in on her in the classroom from time-to-time, but basically she was with her peers the whole day. In 2nd grade, more independent work is expected and Luella's attention skills are lacking a bit. In her best interest, she is visiting the special ed room twice a week now for 20 minutes each time to catch up on any work she might have but mostly working on her attention skills and following her teacher better. She is working on it! We'd like to avoid adding meds to help her focus so we are hoping things will only improve.

Luella has a new paraprofessional working with her this year and she is another tremendous lady and we couldn't be happier! Her para from last year still is riding the bus with Luella so she is happy to see her some during the day too. We are so fortunate to be in the school district we are and have the support available that Luella requires!

At the end of September Luella had her yearly neurology appointment at Gillette Children's. This time we didn't get to the beloved Dr. Wical. Last year we knew Dr. Wical would be retiring so we took her referral and set up an appointment with Dr. Williams. We were happy to visit with Dr. Williams and of course she was thrilled with how well Luella is doing! Luella will be visiting Gillette again in January for another neuropsychology visit and testing. It will be a LONG day with 6 hours of testing!

In October our "Little Luella" turned EIGHT!! I don't care how old or big she gets, she will always be our "Little Luella"! It's hard to believe she is already 8 though... I'm not sure how that time went by so fast! Luella celebrated her birthday with an 😆😍 EMOJI-themed 😊😄 party with many of her classmates and friends. She choose to go bowling so that was a pretty crazy and fun time with FOURTEEN 7-8 year old girls!! Of course she had a VERY specific idea of what her cake should look like. We sat down and I sketched it out as she described what she wanted. I got to work and she was pretty happy with the end result! 😍 Two tiers... the top funfetti and the bottom marble. LOTS of emojis and FUN!



And now it's already NOVEMBER!! If you are friends with me on facebook you've gotten reminders to be wearing your PURPLE this month!! I'll take this opportunity to tell the rest of you now! Wear your purple and share pictures with me please!! We love to spread awareness! 💜💜



As of now, Luella has only had THREE seizures this entire YEAR!! These were all due to being sick and having a fever... now to just keep her HEALTHY!!




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