Well, we just made it to five weeks seizure-free. Jim put Luella to bed tonight but shortly after putting her to bed her pulse-ox alarm started going off. We get a false alarm every now and then, but this one kept on beeping. I ran upstairs and as soon as I opened her door I knew she was seizing just from the sounds I heard. It was one of those difficult seizures taking three doses of midazolam to stop and then just praying it was done. Jim and I sat there with her lying on her bedroom floor. She was breathing really raspy then she just stopped. Just stopped breathing. We right away moved her around, rubbing her back and chest trying to get her to take a breath. Jim was grabbing the oxygen tank and formulating a plan to get her to the ER quickly when finally she took a breath!! Scary!! It was probably close to 30 seconds but felt even longer. Having so much midazolam can cause respiratory distress so we always watch her closely and of course she always has her pulse-ox on after a seizure too. We stayed with her for awhile to make sure she was okay then tucked her back in to bed. We are praying that this was just one seizure in five weeks and tomorrow we start counting towards another five PLUS weeks!
This seizure-free time was such a blessing! It has been SO long since we've been able to enjoy such a long stretch - over 2 1/2 years!! Luella has been so happy and fun these weeks. We pray that she can continue on where she was when she gets up tomorrow morning. Thank you all for your continued prayers and support!