"The Lord himself goes before you and will be with you; he will never leave you nor forsake you.
   Do not be afraid; do not be discouraged.”
Deuteronomy 31:8

Saturday, June 24, 2017

2017 a cake 4 a cure Winner Announcement!!

I've been SO anxious to see who I get to make a special cake (or cookies) for this year!! I set my goal at $1,500 this year and you all helped in exceeding that once again!!

We ended up raising $1,596!!! 

All of that money will be sent to the Dravet Syndrome Foundation to help find a CURE!! Thank you so much to everyone that contributed!! You are all amazing!! To see what DSF has been working on you can see some of the current research here - http://www.dravetfoundation.org/research/dsf-funded-research. There is some really amazing research happening and we've been blessed to send them almost $6,000 in the past 4 years thanks to your support!!

Time for the BIG announcement!!

 Jolene Krause
I'm so excited to make you a special cake or cookies!!! YAY!!!

Once again I took a video of me doing the drawing so you'd know it was done fair and square!! :-) So many friends and family are included in the drawing and I don't want anyone to think I was playing favorites!! :-) 

Here's a video of the drawing... (please excuse my raspy morning voice!)


Thanks again everyone for all your support!! We are SO BLESSED to have such an amazing network of friends and family to support Luella!!


Friday, June 23, 2017

Dravet Syndrome Awareness Day! 120 DAYS SEIZURE FREE

We hope you are wearing PURPLE today for the 4th annual International Dravet Syndrome Awareness Day!! If you are wearing something purple... send us a picture!!

Today Luella is 120 Days SEIZURE FREE!! 
We'd love it if you'd celebrate Luella today by donating to my "a cake 4 a cure" raffle / fundraiser! More details about the fundraiser can be found here: https://littleluella.blogspot.com/2017/05/fourth-annual-cake-4-cure-fundraiser.html and donations can be given directly to me or given online here: https://www.youcaring.com/dravetsyndromefoundation-809095
Donations will only be accepted until midnight tonight (June 23rd) and a winner will be announced tomorrow - Saturday, June 24th!! I'm SOO close to our goal... please help us out!

Sunday, June 4, 2017

We made it a hundred days!!!

100 days of seizure freedom feels pretty awesome!! 101 days is even better! Yesterday was officially 100 days seizure free. I wanted to get a post written but I had a super busy day. So... that brings us to 101 days today. Luella's last seizure-free stretch was 174 days so we are hoping to keep on chugging through the summer and getting to beat that record!

The past 100 days have been full of lots of fun things... most importantly, Luella wrapped up her first grade year! In the fall we'll have a 2nd grader!! We were pleased to END the school year with 2 working legs!! ;-)

Luella is looking forward to a summer of riding bike/scooter, t-ball, gymnastics and swimming lessons!! We are amazed at all she has accomplished! A few years ago we would have been surprised to know this is where she would be now! So much to be thankful for!!

Dravet syndrome is so random and uncertain and even though Luella is doing well now we know that things can (and probably will) change at some point. That's why we continue to do all we can to raise funds for the Dravet Syndrome Foundation. PLEASE don't forget about our a cake 4 a cure fundraiser! We only have about THREE WEEKS left and we are not even close to our goal. We'd like to send $1,500 to DSF this year so please pass the word along. Also please note that ANYONE can win!! If I can't get you a cake I will SHIP COOKIES!!

Check out the details for the fundraiser on this blog post here: https://littleluella.blogspot.com/2017/05/fourth-annual-cake-4-cure-fundraiser.html

https://www.youcaring.com/dravetsyndromefoundation-809095 (or get me cash or a check).