"The Lord himself goes before you and will be with you; he will never leave you nor forsake you.
   Do not be afraid; do not be discouraged.”
Deuteronomy 31:8

Friday, June 23, 2023

2023 a cake 4 a cure WINNERS announced!


 WINNERS

It's Dravet Syndrome Awareness Day and that means it's the end of our fundraiser! 

It's winner time!! Do you know that we actually PASSED the HUGE GOAL I set!?!?! I was completely blown away by a donor rounding out the fundraiser at the end to bring us to the goal!! I was IN TEARS!! Thank you from the very bottom of my heart to all those that donated - BIG AND SMALL - it ALL helps!! We have the best friends, family, neighbors and community! 



That means, in the past TEN YEARS you have helped us send OVER $23,000 to the Dravet Syndrome Foundation to find a CURE!!! 

It was so fun for me to do the drawings tonight. We just picked Luella up from a week at Camp Oz - a camp for kids with epilepsy. She had a great time and was excited when we hit the goal today! 


Picking Luella up from camp today. 
Everyone loved our matching shirts! Great way to raise awareness!!





And now for the exciting announcement!
WINNER #1 of a 
cake 4 a cure is...
(drumroll)


Kaitlyn Strassburg!



AND WINNER #2 is...

Alyssa Larson!!!

  
Congratulations!!  
And thanks again to EVERYONE who 
contributed to this fundraising effort!! 
We have some AMAZING supporters and we are 
SO VERY GRATEFUL to all of you!!

Here's a video of the drawing!!





Thanks again!!

Tuesday, June 13, 2023

You just never know...

196 days. That was the number this time. The number of days between seizures. You just never know when the next one will strike. You get in a groove. You contemplate letting her have more freedom. And then the next minute you have a 13-year-old, out cold on the concrete. Thankfully she wasn't alone and thankful for grandma's foot, catching her head to spare a big goose egg or worse. Less than a week away from her leaving for camp - grateful it's a camp for kids with epilepsy, a camp where they are prepared for any situation, with doctors and nurses nearby at any given moment, because, you just never know...

We are in the midst of my big fundraiser for the year - a cake 4 a cure. We were so happy that Luella has gone over 190 days seizure-free. But... you just never know. That's how Luella's whole life will be. All just a variable. When will the next seizure be? That's why we fight for a CURE and raise as much awareness and money as we possibly can! She needs a CURE. Thousands of kids like Luella need a CURE. They need to have days that aren't variables. Days they can count on. Will you PLEASE help us raise money for a CURE?

So many of our friends and family have stepped up and we are almost half way to the goal of $10,000. Let's do this! 

You just never know.... what a group of determined people can accomplish!! 

Thanks and love to you all!

Donate here - acake4cure.com

More details here - http://littleluella.blogspot.com/2023/05/a-cake-4-cure-is-ten-years-old.html