"The Lord himself goes before you and will be with you; he will never leave you nor forsake you.
   Do not be afraid; do not be discouraged.”
Deuteronomy 31:8

Sunday, June 4, 2017

We made it a hundred days!!!

100 days of seizure freedom feels pretty awesome!! 101 days is even better! Yesterday was officially 100 days seizure free. I wanted to get a post written but I had a super busy day. So... that brings us to 101 days today. Luella's last seizure-free stretch was 174 days so we are hoping to keep on chugging through the summer and getting to beat that record!

The past 100 days have been full of lots of fun things... most importantly, Luella wrapped up her first grade year! In the fall we'll have a 2nd grader!! We were pleased to END the school year with 2 working legs!! ;-)

Luella is looking forward to a summer of riding bike/scooter, t-ball, gymnastics and swimming lessons!! We are amazed at all she has accomplished! A few years ago we would have been surprised to know this is where she would be now! So much to be thankful for!!

Dravet syndrome is so random and uncertain and even though Luella is doing well now we know that things can (and probably will) change at some point. That's why we continue to do all we can to raise funds for the Dravet Syndrome Foundation. PLEASE don't forget about our a cake 4 a cure fundraiser! We only have about THREE WEEKS left and we are not even close to our goal. We'd like to send $1,500 to DSF this year so please pass the word along. Also please note that ANYONE can win!! If I can't get you a cake I will SHIP COOKIES!!

Check out the details for the fundraiser on this blog post here: https://littleluella.blogspot.com/2017/05/fourth-annual-cake-4-cure-fundraiser.html

https://www.youcaring.com/dravetsyndromefoundation-809095 (or get me cash or a check).

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