Despite having the 6 seizures this month Luella has had so much fun! We took a family vacation to a Christian Family Camp only about 2 hours from where we live. We were there four days and had the best time! Luella did have one seizure there right when we got there but the rest of the time was seizure-free! Luella got to ride a horse, go swimming, ride a pontoon boat and had a BLAST spending time with the camp counselors so Jim and I could have some time too! That's right we actually got to have a "date" at the camp!! Such a fun and special time for our family. The staff there were always willing to help out with Luella so we could enjoy time playing with the other kids too without one of us always on Luella duty! Luella got to paint and do so many fun things, she LOVED it!
|Burke, Ryker, Luella and Ashlyn|
After a quick pit-stop at home after Family Camp we headed down to southern Nebraska to where Jim's grandma lived (she passed away last November). We helped with loading some things at the house. On the way we stopped in Hastings for Kool-Aid Days! Kool-Aid was invented there! It was a lot of fun and maybe too much for Luella since she ended up having another seizure there as well. We were glad she had some fun before that!
Luella got to enjoy some fun in our backyard sharing her little pool with our little neighbor girl! Yes, it has gotten H-O-T here! They had so much fun baking their mommies "cakes" and lots of other yummy things! Later when the older siblings came home the water guns came out and it was a war zone! All that running and excitement along with the cooler water in the guns resulted in another seizure. Once again, thankful for the fun she had earlier!! She even got ice cream from the ice cream truck right in front of our house!
So along with a few other seizures here and there, we had a very busy month! We are SO THANKFUL that even though Luella has these awful seizures, she continues to do so well! She bounces back and we once again have our Luella again. My heart breaks for those families whose children don't come back from "that one" seizure. Our Dravet community is currently grieving for another little angel. We pray for that family and several others that are dealing with some devastating circumstances right now. I just hold Luella tighter and pray more fervently that God will protect her... but HIS will be done! Thank you for your prayers and support!