Sorry I'm so slow in posting this to the blog! I had it on Facebook on Dravet Syndrome Awareness Day - June 23. And here it is, the final day of June and the last day of Dravet Syndrome Awareness Month!
WE SURPASSED THE GOAL AGAIN THIS YEAR!!
THANK YOU to our donors this year!!
In the past 13 YEARS you have helped us send OVER $33,000 to the Dravet Syndrome Foundation to find a CURE!!! Luella and so many like her are waiting! Thank you for all the support!!
Who is our winner??
Congratulations!!
And thanks again to EVERYONE who
contributed to this fundraising effort!!
We have some AMAZING supporters and we are
SO VERY GRATEFUL to ALL of you!!
Thanks again!!
A quick Luella update... she is currently 41 days seizure-free.. the longest this year!! She had her second lumbar puncture at Mayo on June 16 for the clinical trial she's in. She handled this injection better than the first one. The next one will not be until early October! We are praying for fun, seizure-free summer!! Thank you for your continued prayers!
