Luella is teething and has been having slight fevers off and on for the past week. We had also been trying to cut back on her meds to eliminate some of the side effects she has. We are now going back up to the full dose and hope to avoid any more seizures.
In the past a seizure like this would have likely gone to status (unstoppable) and she would have been air lifted to Sanford Children's. I know the stiripentol is helping Luella and we hope we can go another 10 weeks (or more) without a seizure!
In positive news... Luella turned TWO last Friday. She had her "Owl" birthday party on Sunday and had such a fun day. She was in such a happy, good mood. It was so fun to see her enjoying herself. Here are a few pictures from her party.
|Luella and her Owl cake (made by mommy).|
|Daddy is SO proud! He had to get her this purple light saber!|