We are thankful...
- That Luella has gone 3 weeks and counting without a seizure.
- For all the prayers for Luella and our family.
- That Cigna and Berkley have agreed to cover Luella's stiripentol - her awesome new seizure med that is imported from Europe and quite costly (but very cost effective when you consider the medical costs of Luella's uncontrolled seizures). We just got the call yesterday letting us know!
- For all our family and friends who donated to the Dravet Syndrome Foundation in honor of Luella! THANK YOU!