"The Lord himself goes before you and will be with you; he will never leave you nor forsake you.
   Do not be afraid; do not be discouraged.”
Deuteronomy 31:8

Monday, June 22, 2015

Last Chance for CAKE & A Father's Day Seizure & Wear Purple

Our - a cake 4 a cure - fundraiser is winding down!! You have until midnight tomorrow - Tuesday - June 23rd - to get your donations in and get a chance at winning a custom cake! Every $5 gets you an entry and every dollar will go to the Dravet Syndrome Foundation. Luella and so many others need a CURE!!

Submit your donation online here: http://www.youcaring.com/acake4acure/
Or give me a check made out to "Dravet Syndrome Foundation"

Father's Day Seizure

Jim had to give Luella a dose of midazolam (her seizure rescue med) yesterday on Father's Day. Not the best way to spend a special holiday. She had just fallen asleep for a nap and the seizure started. Those darn sleeping seizures are so tough to stop. They usually don't stop on their own. Thankfully it was just one dose and she slept it off and was better later. That actually makes three seizures this month - the other two were at a water park on a little trip we took earlier this month. Two seizures in one day there but that was a high-risk activity for her... just too much fun and excitement. :-(

That's why we do this... creating awareness, doing fundraisers... helping people understand that Dravet syndrome affects every aspect of Luella's life and our family. Money is the only thing standing between us and a cure. Please consider donating to our fundraiser. We would really appreciate the support and help in finding a CURE!

Please Wear Purple Tomorrow - June 23
Dravet Syndrome Awareness Day!! 

Wear your purple tomorrow to raise awareness for Dravet syndrome and show support for Luella! Send me your purple pictures!! 

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