"The Lord himself goes before you and will be with you; he will never leave you nor forsake you.
   Do not be afraid; do not be discouraged.”
Deuteronomy 31:8

Monday, March 23, 2015

Always a seizure...

We pushed our luck on Saturday. It was Ryker's 8th birthday party and we took a group of kids to a fun arcade / play place for his party. Luella was SO excited to go there. She is always asking to go to the Brandon Pizza Ranch since the arcade is attached to the pizza place. She loves to play there but ALWAYS ends up having a seizure. She has not ONE TIME been able to play there without a seizure. We were hoping that she would do better this time.

We did some party games and had our pizza and cake first before we let Luella play. In the past we've let her play right away and then she has a seizure and is out the rest of the time making it difficult to eat, etc... This time we timed things differently. After eating and watching Ryker open his gifts we let Luella loose to play. Jim was on "Luella-time" as I packed up the party things to clear the room for the next party. He carefully monitored her playtime so she would play hard for 10 minutes then take a break and do something less intense. It appeared to be helping and she got in a good amount of play. Then literally just 2 minutes before we were going to leave - she had a seizure. She was in one of the inflatables - probably about the safest place to have a seizure. I was in the restroom at the time so Jim crawled in to grab her. The seizure was a tonic clonic (grand mal) and got the attention of several of the parents and kids playing there. We visited with a lady who had lost her daughter-in-law less than a year ago to a seizure. So heartbreaking! Thankfully Luella's seizure stopped on its own after just a couple minutes. Luella has not needed to use a rescue med to stop a seizure since her Make-A-Wish trip back in October!! That is just amazing!! We are SO thankful for that! Unfortunately thought it had only been 2 weeks since her last seizure. We are praying for another long seizure-free stretch!!

Here are a couple of pictures of Luella enjoying the party!

Ryker's party theme was mustaches!

Luella's first time running a bumper-car on her own!

Don't forget to wear purple on 
Purple Day for Epilepsy Awareness!! 

1 comment:

  1. So glad that she got to enjoy the party and that it stopped on it's own.
    Bless her heart! She sure is growing up...she looks so big in that bumper car!