25 days... not 175 days

As I looked at my calendar this morning I realized that if Luella hadn't gotten sick last month and hadn't had those fevers with a couple of seizures TODAY would have been the record-setting day at 175 days seizure-free. But, as things happen, we are at 25 days seizure-free today and still counting! Only 150 more days until we get to that goal again!! I always have those goals in my mind. Will she get there? I don't know, but I'm hopeful.

I've gotten a lot of questions from Luella lately about why God lets her have seizures? Why doesn't He just make them stop? All I can tell her is God knows the future and we don't. He has some plan in store, a plan for only GOOD to come from her seizures. I've explained that she has probably already helped LOTS of people because of her Dravet syndrome. I've explained that lots of parents just finding out about their child having Dravet are encouraged by all that she's accomplished and how well she is doing. I've told her that she has helped lots of kids in school understand epilepsy better. She's helped me put my trust fully in God. Maybe these aren't the ways we we would have chosen to do these things but it is all God's will.

The last few weeks have been full of more summer fun for Luella. She entered a couple projects in Open Class at the County Fair and was proud to get two BLUE ribbons. She completed and PASSED two weeks of swimming lessons!! I don't think I've seen her as proud as she was to find out she passed! She did a GREAT job and is really doing an amazing job in the water. It scares this mama a bit, but she LOVES the water! She also got to have a friend sleepover this week! What fun that was!! I'm so excited to see her doing more and more typical kid stuff!! And now she is getting ready for another amazing school year! She will be in 2nd grade and her backpack is packed and ready to go!! But first... a couple more weeks of summer fun!

Sleepover time!!