"The Lord himself goes before you and will be with you; he will never leave you nor forsake you.
   Do not be afraid; do not be discouraged.”
Deuteronomy 31:8

Sunday, July 23, 2017

150 Days Seizure Free... But starting over again.

We were excited to get to today and celebrate 150 days of seizure-freedom... but now today we start over again. Luella woke up at 5am this morning (Sunday) complaining of a sore throat. I checked and she also had a slight temp of 100.5. I gave her ibuprofen and tucked her back into bed around 5:20. At that time Luella started asking me a bunch of questions....

Luella: "But, I have seizures when I have a fever. Will I have a seizure?"
Me: "Maybe. But we'll be watching you."
Luella: "What happens if I have a seizure and it doesn't stop and I'm stuck in a seizure forever?"
Me: (my heart aching) "We have medicine we would give you to stop the seizure."
Luella: "What if the medicine doesn't work?"
Me: "Then we would take you to the hospital and the doctors would give you better medicine."
Luella: "What if that didn't work either?"
Me: "Then you'd ride on the helicopter again to Sioux Falls and they would take care of you there. There are good doctors that would know what to do. You will be safe."

So after comforting her enough that she felt okay to go to sleep, I went to my room at 5:30 and told Jim about her questions and then I sobbed and prayed for God to protect her and hopefully she would avoid having a seizure with this fever. Around 5:50 she whimpered a bit and I went back to her room. She was almost asleep and was talking about something but I didn't really understand what she was saying. I just told her to go to sleep. All this time I was so tired but not really wanting to go to sleep myself. I did get back into bed, then within 10 minutes I hear a noise and run to her room even before her alarm goes off and she is having a seizure! Thankfully it stopped fairly quickly on it's own and she was able to sleep until about 8am. I did take her in to get tested for strep which was negative so I guess we are just dealing with some random bug. Unfortunately this afternoon she had another seizure just before 5. This time she was awake and watching TV. Jim noticed her just gazing off and called her name. She didn't respond then went into a tonic clonic seizure. This is scary because she hasn't had an awake seizure for over a year and a half! I'm not sure what kind of illness we are dealing with but I'm praying this will be the end of the seizures.

On a more positive note... WE HAD 150 DAYS SEIZURE FREE!! Last record was 174, so we didn't beat a record but Luella had a great 150 days.... Swimming at lakes and pools, doing fireworks, jumping on the trampoline... AND driving a REAL go-cart at Thunder Road!!!! Mom was a bit nervous about that last one but she only crashed a couple of times... LOL!!

Swimming and playing in the sand at Little Boy Lake.

Losing her front 2 teeth...

At Thunder Road with Ryker.

Ready to drive her OWN go-cart!! YIKES!?!

Racing with Ryker!

Bungy Jumping

Racing in a big go-cart with mom!!

1 comment:

  1. Cute pictures. We're just a phone call away this week.