"The Lord himself goes before you and will be with you; he will never leave you nor forsake you.
   Do not be afraid; do not be discouraged.”
Deuteronomy 31:8

Saturday, January 19, 2013

2 More Seizures Today

Just a quick post to let you know that Luella is struggling with an illness and to ask for specific prayers that she can get through this quickly. She's now had 4 seizures in 2 days. She woke up having a seizure this morning and had another one tonight around 5:30. Both stopped on their own without a rescue med. She's had a fever up to 103 and keeps running a temp off and on. Jim took her to ER this morning to check all the usual things - ears, urine, influenza, strep - all negative. Whatever she has will have to run its course. She's coughing and congested since this morning. We've never experienced this many seizures so close together. She's already feeling run down by this cold but then having to deal with all the seizure too - it's taking a lot out of our little Luella!


  1. I've been thinking of you today...Sending prayers your way.

  2. Hi Heather. I just wanted to introduce myself to you. Our daughter, Elissa, also has Dravet syndrome. I know the anxiety that goes along with anticipating the next seizure during times of illness and I hope now that Luella is feeling better and the seizures have stopped.

    I actually found out about your blog through a person who visited my booth at a craft fair this past fall that was for the benefit of Dravet syndrome research. She said that she read about your family in her hometown newspaper and kindly took the time to send me the link.

    Just wanted to reach out and let you know that your family is in our prayers.

    With warmest regards, Lynne

    1. Hi Lynne! Thanks for your message. Are you in MN too? I'd love to get in touch with you. Please feel free to email me at heather.m.johnson@gmail.com. I pray Elissa is doing well! What a small world!!