That post title got your attention, didn't it?!? Just a summary of what follows...
Luella woke up Friday afternoon from her nap with a runny nose! It's been constantly running today and tonight right as we were getting ready to eat supper she had another seizure. Jim had just changed her diaper and went to throw it out and I was in the kitchen getting supper ready. Luella had walked from the playroom to the living room and was laying on her tummy with her knees pulled up under her and her face to one side.
When Jim came in he saw her laying there, looked at her closely and noticed her eyes shifting. As much as I hate tonic clonic (grand mal) seizures, at least you notice them! These partial seizures are so awful! So easy to overlook if you don't stay tuned into her. I just feel like I can't leave her side ever! Especially since Luella's seizures don't ever stop on their own. We always have to give a rescue med. I've heard too many stories about kids who have had prolonged seizures and then suffered brain damage. I pray that I will always know when she is seizing and don't ever miss it!!
Luella's kidney ultrasound went well yesterday. Her kidneys look good and healthy despite the reflux. From the nuclear test she had done in the spring they could tell that the right side has improved but the left is still refluxing pretty badly. We will repeat the nuclear test again in one year. That will give the left side more time to hopefully correct itself and maybe then we can go off the antibiotic.
I always write about Luella but today the older three kids (Burke, Ashlyn and Ryker) were able to participate in a Sibshop event in Sioux Falls. Sibshops provide an opportunity for children who have a brother or sister with a disability or chronic health concern to get together and share experiences, make new friends, learn and have fun. Today's event was held at the Outdoor Campus in Sioux Falls and the kids got to have a lot of fun with nature and share a little about Luella. They took a nature walk and Ashlyn was thrilled to find a snake skin!! :-)
Please pray for Luella's cold to get out of her system quickly and for no more seizures!!