Luella had an ELMO themed party. She LOVES Elmo's World. An entire episode of Sesame Street can be on and she'll only run to the room when she hears "La la la la, la la la la, Elmo's World...." I had lots of fun with the Elmo theme!
For those that know me, you know I LOVE to decorate cakes. Since Luella is on the LGIT diet I had to be creative in a different way. No regular cake and frosting here today. I researched and decided on a low-carb cheesecake - no frosting or ice cream to deal with either! I made a sample last weekend and Luella gobbled it right up. It was okay but when you know what a big piece of rich cheesecake tastes like it didn't quite measure up. I decided to make regular cheesecake for the rest of us and Luella had her low-carb version. I used some paper crafts to decorate the cake - one from Esty.com and one made by me. To top off our cheesecake we had fresh fruit in the shape of ELMO! For fun I added a platter of Sugar-Free Jello Jigglers in the shape of number 3s. The fruit and Jello were okay for Luella to eat too.
It was a little difficult to keep her focused on her gifts, she wanted to run off and play! She got lots of fun things!
After the party wrapped up we had supper and then started getting kids ready for bed. And there it was - another seizure!! :( So sad that she couldn't have the entire day seizure-free. This seizure was a little more then the unresponsive ones she's had more of lately. Her arms were stiff out to the side and slightly twitching. The good thing - only one dose of midazolam and it stopped FAST! Actually my geeky hubby informed me this was the shortest seizure she's had in over a year! (Yeah, we keep very detailed records.) She didn't want to sleep long and was crying, very restless and wanting to sit up even though she couldn't since she was so dopey. I took her upstairs and got her ready for bed. After a book and a few songs she was out. Hopefully tomorrow she will be feeling better. Thanks for all your prayers and well wishes for a seizure-free birthday - it wasn't meant to be I guess. At least it happened at the end of the day and didn't take away her fun!!! I still find myself struggling with "why" sometimes. I know I need to trust God and just believe that all of this is for a reason. It's really hard sometimes though.... I just wish I knew.
We appreciate your continued prayers for Luella and for our whole family as we deal with Luella's seizures, diet and so many unknowns. Thank you!
I'll leave you with some pictures from Luella's special day...
|Giant Elmo balloon.|
|Elmo fruit tray - low-glycemic fruit for Luella!|
|Daddy, Mommy and Luella|
|How Luella ended her day - postictal from a seizure. :(|