"The Lord himself goes before you and will be with you; he will never leave you nor forsake you.
   Do not be afraid; do not be discouraged.”
Deuteronomy 31:8

Monday, October 15, 2012

A fun weekend but nervous...

Well, it was a fun weekend! We decided to take the kids to Sioux Falls on Saturday afternoon to a fundraising event at the Sertoma Butterfly House... they had the Star Wars characters there! The kids knew where we were going but we didn't tell them the Star Wars detail. They were sure curious about why the line was so long and why some of the kids were wearing Star Wars costumes?! They were all excited to see Storm Troopers, Princess Leia and Darth Vader inside!! Luella even recognized them!

I was a little on edge the whole trip. Before the Butterfly House Jim dropped Luella and I off to pick up a couple things while he and the other kids made another stop. Of course I had her meds and oxygen with me and a fully charged cell phone, but I was constantly watching her and asking if she was okay. It had been a week since the last seizure so she was "due".  I hate it when something catches her eye and she stares and doesn't move. I'm sure she gets tired of me asking, "Are you okay Luella?"

She was fine. ALL DAY! I was concerned in the aquarium part of the Butterfly House with all the brightly lit fish tanks and water, but she did great! She had a lot of fun petting a baby shark and checking out the sting rays. She loved the butterflies too! I even researched the nutritional info for Culver's so we could eat supper in Sioux Falls and Luella did great there too!

Touching a baby shark.


So the seizure didn't come on Saturday but on Sunday instead. Sunday night actually. After eating and playing with siblings before bed around 7pm she had a seizure. Jim was in the kitchen and I was kind of all over getting things ready for bedtime. Ryker and Ashlyn were playing with Luella and Ryker spotted it first but then pretty much everyone was saying "I think Luella is having a seizure!" I'm so glad they are in-tune with her and can help us keep her safe!

Only one dose of midazolam and then she slept for awhile. She woke up to "kind of" watch an old Garfield Halloween special and then was very ready for bed. She slept so restlessly all night and I was constantly watching her on the monitor. I was so tired and finally I decided that I needed to trust God that she would be fine and put the monitor over by Jim so I could sleep without hearing every little move. She woke up feeling great this morning and had a great day. She even got to play outside for about three hours today! I'm so thankful that despite these persistent seizures she can still have some "normal" kid time too! Thanks for your prayers.

Playing in the leaves with big sister Ashlyn.

1 comment:

  1. I love that picture of you and Luella looking at the butterfly.
    I totally know that feeling of not daring to go to sleep and finally deciding I just need to trust the Lord that He will let me know if Ben needs me.
    Bless you!