"The Lord himself goes before you and will be with you; he will never leave you nor forsake you.
   Do not be afraid; do not be discouraged.”
Deuteronomy 31:8

Sunday, September 9, 2012

Yes another one.

Luella did have another seizure tonight. Thankfully it was short and only took one dose of midazolam. She didn't even sleep that long right after the seizure. And although really drowsey, she was able to have her normal bedtime routine and went right to bed tonight. I hate those seizures and seeing her turning blue!! Of course I'm ready with the oxygen but thankfully we didn't need it this time.

Busy week this week with developmental evalutions and a meeting with a speech therapist. Luella will also be going to "school" starting on Thursday... actually ECFE (Early Childhood Family Education) with mommy! The real BIG STEP here is that I will only be with her part of the time, then the parents break up to a separate room for a parent topic. I met with the staff at school last week to educate them on what Luella's seizures are like and I feel confident that she will be well cared for. It's still  going to be difficult for me though. We also might try the library Lap Time Storytime on Fridays. Luella will have a busy week!

I wanted to leave you with a precious picture of Luella with her cousin Lucia. They visited last weekend and the girls had so much fun. Luella is a year older than Lucia and they only get to see each other a couple times during the summer then they live far away during the rest of the year. It was fun to see them together!

Cousins - Lucia and Luella


  1. ECFE sounds like a neat program...I've never heard of it before. I wish you the best with that. And what an adorable picture!

  2. Hi Heather!
    Thanks for your comment...since you're a "noreplycomment" blogger I couldn't respond directly so I thought I'd just leave a comment on your blog.
    No, the staff can't do the rescue meds...so luckily I was available when they called. But we have a plan set up in case I can't be reached or if I'm too far away.
    Hope all is well with you guys....take care!