November happens to be Epilepsy Awareness month. We think Epilepsy in general needs attention, but more specifically we want a cure for Dravet Syndrome!! There is currently a fundraising effort to benefit the Dravet Syndrome Foundation (DSF) and two anonymous donors have agreed to match funds up to $10,000 until midnight November 20th. That's $20,000 to benefit Dravet research!!
We hope and pray for a cure for Luella and the DSF is working towards that. Please, if you are able to make any kind of a donation - no matter the size - please go here and make a donation in honor of Luella and the cure we pray for!
Thank you so much for your continued prayers and support! Luella has gone a week now without a seizure. We pray that is the start of another record run... let's beat 10 weeks!!
More about the Dravet Syndrome Foundation (from their website)
"The Dravet Syndrome Foundation is a volunteer-based, non-profit organization dedicated to aggressively raising research funds for Dravet syndrome, a rare and catastrophic form of epilepsy beginning in childhood, and related conditions. By offering research grants for syndrome-specific research with a novel approach, the DSF can move researchers and the medical community forward to find better treatments and a cure while assisting afflicted individuals and their families.
The Dravet Syndrome Foundation has awarded over $800,000 in research grants for Dravet-specific research - more than any other nonprofit organization. We have also awarded over $15,000 to families through our International Patient Assistance Grant Program."