Her seizure did stop after 6 - 8 minutes. It's hard to know if the Midazolam is stopping these seizures or if the Stiripentol is making them that short. We were able to talk to the doctor today and we decided to add Clobazam to Luella's drug list. Clobazam, thankfully just got FDA approval within the last few weeks. It won't be available in the US until after January so we will have to import it for 2 - 3 months. Clobazam, Depakote and Stiripentol are three drugs that are most often given to Dravet kids and they are supposed to work well together.
Luella has been teething as I mentioned before, but also has a cold - runny nose and just yesterday started coughing now too. Being sick is not a good thing when you have Dravet! We are hoping this new combination of drugs will help get us back in the running to beat our record of 10 weeks without a seizure!!
|What a pose! Luella is ready for candy!|
|Luella was our little Lady "Love" Bug for Halloween. Her baby doll even dressed to match!|