"The Lord himself goes before you and will be with you; he will never leave you nor forsake you.
   Do not be afraid; do not be discouraged.”
Deuteronomy 31:8

Monday, May 25, 2015

Good News, Bad News

I'll actually jump to the bad news first since I want to leave you on a happy note....

The bad news is... Luella has had two seizures so far this month. Kind of throwing off her average of one per month but we'll see where we go from here. The seizure earlier in the month was on May 8th just after falling asleep at bedtime. She ended up having a fever. Thankfully whatever illness she had was short lived and she only had that one seizure. Then this past Saturday she had a seizure while playing outside. Both seizures stopped on their own which was great especially with the seizure while sleeping because those are usually harder to stop. We are praying to get back to one seizure every 4-5 weeks or LONGER!!

AND... the good news is Luella has had one week of swimming lessons with NO seizures while swimming!! She started lessons on the 18th and is doing great! She is in an actual class and I'm right there with her. There are five kids in her group and I can be right there beside her in case she has a seizure while the instructor is out working with one of the other kids. Last year she had a one-on-one teacher and pretty much had the whole baby pool to herself. It was constant activity and with all that excitement she had a seizure on the first day of lessons. This year most her time is spent sitting on the edge of the pool waiting her turn so she really doesn't get overly excited. It is going great except that she really doesn't like sitting there waiting - she'd rather be in the water "swimming"! The last 5 minutes of every lesson is free time and she REALLY enjoys that!! She's also gotten to jump off the diving board on two of the days last week. She LOVES it!! Luella is not scared of anything! This will be her last week of lessons and we pray that she will have continue to have fun without any seizures.

No fear in jumping off the diving board!

We had a lovely gift given to our family from some very generous anonymous person! The gift of a summer family pool membership!! I still can't believe it! Someone wanted Luella (and our family) to have as much fun as possible this summer! We took advantage of this special gift and went swimming on Sunday afternoon. I was concerned that with the constant activity Luella may have a seizure... but she DIDN'T!!! She swam for an hour and a half and had the BEST time!! We are SO grateful to whoever gave us this special gift! We hope to use it many times this summer!! God Bless You!!

One happy little swimmer at lessons!!

Also, just a reminder that my fundraiser - a cake 4 a cure - is happening NOW! Please help me reach my goal of $1,000 for the Dravet Syndrome Foundation.
Read the blog about it here
http://littleluella.blogspot.com/2015/05/second-annual-cake-4-cure-fundraiser.html or visit the fundraising page - http://www.youcaring.com/acake4acure/!
I'm anxious to draw a winner and make another cake!!

No comments:

Post a Comment