Well the segments about medical marijuana finally aired on NBC last week. The one on the Nightly News was shortened a bit. The one the next day on The Today Show was a little longer and I think did a little better job at giving a positive perspective about kids using medical marijuana. Here are the links if you missed them last week.
The Nightly News with Brian Williams: http://www.nbcnews.com/video/nightly-news/52434789#52434789
The Today Show: http://www.nbcnews.com/health/medical-marijuana-can-help-sick-kids-some-worry-about-risks-6C10506407
A few weeks ago a reporter from Mint Press News contacted Jim for an interview about Luella and our desire to have medical marijuana legalized in Minnesota. They talked to a few other families as well, all have kids with Dravet Syndrome. We Dravet parents are VERY interested in getting access to this potentially life-changing treatment option!! Luella's bit is toward the end of the article.
I would also like to ask you to please sign/send a letter to New Jersey Governor Christie to ask him to pass a bill that would make it much easier for little Vivian to get the medical marijuana she needs! You don't need to live in NJ, anyone can send a letter and it literally takes just 30 seconds!! We met Vivian's mom during the Dravet Conference last summer. http://www.lettersforvivian.org/