Luella has had a couple of seizures in the last week. One on Saturday morning - Jim was gone then but the other kids were great helpers and Luella came through it pretty well. She also had a seizure last night (Wed) after supper. Jim was home but wasn't nearby and once again the kids were great helpers. While two seizures in a week's time is more than we'd like for Luella, we also want to remember that so many little ones are dealing with SO much more. When you keep Luella in your prayers, please pray for little Regan (she has Dravet also). She's had over 300 tonic clonic (grand mal) seizures in the last week! It's just heartbreaking!
Another "big girl" thing is being able to swallow a pill! We wanted to try time-released melatonin for Luella to see if it would help her sleep better through the night. We've been dealing with some rough nights lately... well, mostly daddy has been dealing with them. Jim is great and lets me sleep! Mostly because I'm a softy and can't let her fuss or cry! Last night she was up for five hours straight!! Anyway, the melatonin is little tablet and she is able to swallow it just fine! We had a couple nights that it was pulverized, but now she does great! Sadly, it isn't helping her sleep. :-( But since she took that just fine we tried giving her one of her other meds as a whole capsule tonight and she got it right down!! This will make giving her meds SO much faster/easier!!
Luella was scheduled for her neuropsych evaluation today but since we got so much ice and then snow we had to reschedule it for a couple weeks from now. While it's been sad so see so many trees going down in our town, the snow was perfect for making a snowman and the kids had fun collecting icicles today! Luella was able to be out for about an hour and a half and had so much fun playing in the snow!! And NO seizure!