Well, I didn't get a chance to post about Luella's last seizure on July 6th. We had a lot of family in town helping Jim's parents get settled in after their move. It was so hot!! On that Friday we decided to head to Rock Rapids to the pool with Jim's brother and family. Luella was only in the water about 5 minutes and had a seizure. Boo! I so wanted her to be able to enjoy the time cooling off and playing with her siblings and cousins.
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| Luella and her new sunglasses!! |
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We decided to try polarized sunglasses (recommended by other Dravet parents). I ordered a couple of pair just in time for our weekend trip to Okoboji this past weekend. What a great vacation destination for a little girl who seems to have seizures around water and sun!! It was planned though and we had the sunglasses to try and she did GREAT!!!! No seizures at all!!! Prayers answered! Luella kept her sunglasses on perfectly and swam at the lake, the campground indoor pool AND the little kiddie pool outside!! Bright, sunny and FUN!! It was great to see her enjoying herself and laughing. It was wonderful!
We plan to test the waters (HA!) and go back to the pool in Rock Rapids sometime this week to see how she does there too. I've been avoiding pools this summer for fear of seizures but it would be great if the sunglasses would continue working. We know that her Dravet Syndrome will continue changing and eventually the sunglasses might not work, but for now we are going to try to enjoy the water!!! Hope you are all keeping cool!! Let's pray for some rain soon too!
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| Modeling another style of polarized sunglasses. |
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| Luella having so much fun in the water! | |
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| Luella and Ashlyn keeping cool! |
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| Luella enjoying the beach at the lake. |
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