Gazebo Gallop (and a seizure)

Last night our hometown of Estelline, SD held its annual Gazebo Gallop - a 5K or 1 mile fun run/walk. This year they turned it into an event to support Luella and Ty (the son of another EHS Alumna who is battling Leukemia). We had a great turn out! It was so wonderful to see all of those who came to support both Luella and Ty. I want to thank all of our families and friends who were there - it meant SO MUCH to see you!

My family (parents, sisters and their babies) with us ready to walk!

 Poor little Ty couldn't be there last night as he was just admitted to the hopsital for another run of chemo! And Luella was having such a fun time running around in the Gazebo just before the start of the walk/run... and then another seizure!! Once again 2 doses of midazolam and oxygen to get her levels back up. Definitely not how I wanted to start the walk. We tucked her into the stroller and decided to do the walk anyway since she was sleeping. Two seizures this week - Monday and Friday. :(

How Luella spent the walk.

So many people have children who are sick. It doesn't seem fair that these little angels should have to suffer like they do. For whatever reason, God gave Luella to us with Dravet Syndrome. We know that there IS a reason and that God is always with us helping us along the way. We feel truly blessed to have Luella in our lives and we thank you all for your continued prayers and support!