It was a great night to watch Burke, Ashlyn and Ryker play soccer tonight. Luella was having fun trying to run out on the field. It was also pretty warm. So a mix of running and the heat?? Whatever it was, Luella had another seizure. :( One dose of midazolam and it did eventually stop. She slept through the rest of the game and then we went out for ice cream. She was awake enough by that time to eat most of a baby ice cream cone. After a quick bath she was very much ready for bed.
I was hoping we'd see longer lengths of time between seizures after increasing the stiripentol. It's only been 3 days since the increase, we'll probably hold at this dose a bit longer to see what happens. Please pray that we can start counting weeks or months between seizures, not just days.
Praying for that sweet girl!
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