|Luella getting herself ready for our garage sale!!|
Dr. Wical brought up the Ketogenic Diet during our visit. She thinks it would be something very beneficial to try if we can't get the meds to control her seizures better and/or if we continue dealing with negative side effects. She would like us to try a simpler diet to start with, something called the Low Glycemic Index Diet. It is a more simple diet to start with - at least not as rigid as the Ketogenic Diet, and can often give people seizure control as well. This diet doesn't require a hospital stay to begin (with Keto you are in the hospital 4-5 days to start it) and you aren't weighing food in grams, although you do need to watch portions and count carbs. We aren't starting the diet yet but if we don't see some improvements soon we will probably do it and if it works there is a good chance that the Keto would work even better. So, just some things for us to consider.
Thanks again for your continued prayers. This has been quite a journey for Luella and our family. Prayers keep us focused and we are thankful for how well Luella is doing, many with Dravet are not so lucky!
Oh, and Luella is 2 1/2 now!! (As of Saturday)