Luella had another seizure tonight around 7:30. I gave her two doses of Midazolam intramuscularly (with a needle) and it did not stop the seizure so Jim rushed her to the ER. The seizure did end up stopping shortly after getting to the ER. Jim said they were pretty sure it was done but when Luella started singing "Twinkle Twinkle Little Star" in her tiny little voice with her eyes still closed he knew she was okay. At the ER they found that she has an ear infection. I had just taken her in on Friday to get checked out - just to make sure she didn't have an ear infection or strep or something. She hasn't been sleeping well again after having almost a week of really good sleep so we wanted to make sure there wasn't something else going on. At that time her ears were okay. :( It would have been nice to catch it before a seizure... but short of taking her to the doctor daily I guess there is no way to always catch things before a seizure strikes.
I mentioned Luella's bad nights of sleep again lately... Last weekend I held Luella during church and she slept for about 30 minutes and during those 30 minutes she twitched and jerked quite a bit. We haven't seen any twitching for quite some time. Last summer and fall it was bad but then the twitches went away with some of the new drugs she started. Now it has started again. :( I really hate feeling her twitch and jerk! All the twitches are really affecting her sleep. She doesn't even want to be in her crib. I have to rock her to sleep to even have a chance of laying her down or she just screams.
We are looking to make some more medication changes again to see if we can eliminate the twitches without losing all the progress we've made in other areas (eating, balance, her mood, etc..). And speaking of eating, Luella was weighed on Friday and she has gained a pound back!!! She isn't eating "normally" yet but she is eating MUCH better!!
Please pray that these sleeping twitches and jerks will go away!!! And that Luella can get a peaceful and restful night's sleep once again! (And mommy and daddy can sleep too!) Thanks everyone!