How about helping us celebrate?!?!

Hey everyone! So.... after Luella's last seizure - on New Year's Eve, I decided to stop counting days and making Luella so aware of "records" etc... She was sad last time that we missed setting a new record by a couple weeks. We haven't been counting days and I haven't told her what is coming up VERY soon!! If we continue on this seizure-free path... on Sunday, June 24th... the day AFTER Dravet Syndrome Awareness Day, Luella will have a NEW SEIZURE-FREE record of 175 days!! I'm so hopeful that she will get there this time and every day after that will be a new record! It's amazing how well she is doing and we are SO GRATEFUL for all your love and support! Luella doesn't know about this record and won't know unless she gets there on Sunday!!!

We are SO CLOSE to a new record!!!!

In celebration of Luella and Dravet Syndrome Awareness Day we'd love for you to consider a donation to the Dravet Syndrome Foundation as part of my "a cake 4 a cure" fundraiser! We have a goal of $1500 and we are just a little over half way there with only a few days left (June 23). You don't have to be local to donate... I will pick a winner from all donations and if you happen to be far away I will make you specialty sugar cookies and ship them!

Even though Luella is doing SO well right now... she still has Dravet and she will have Dravet her whole life. She needs a CURE. As she gets a little older we anticipate more seizures as her body changes and hormones take over. That time could be especially bad for her and all the fundraising we do now can help!

Remember to wear PURPLE on Saturday, June 23rd - Dravet Syndrome Awareness Day!! And share your pictures!! The new "Team Luella" shirts are DONE and I'll be picking them up on Monday... so if you ordered, get in touch with me and we'll get you your shirts before the weekend!! I hope to ship the far away ones right away on Tuesday so you should have those too!! Let's make the world PURPLE on Saturday!!

Get those donations in soon!! I'll take checks or cash any time too. (Checks can be made directly to DSF!)

Thanks everyone!! 

Donate HERE!

https://www.youcaring.com/2018acake4acure

In honor of the amazing dad Luella has on this Father's Day! Jim has helped me on this journey with Luella SO much... I could NOT have done this alone!