As you tuck your little one into bed you shouldn't have to worry about a seizure gripping their little body and taking their breath away. You shouldn't have to listen to that same little one moments earlier praying to God to keep her safe and to take her seizures away. We are not guaranteed a perfect life in this lifetime... free from the pains of the world. Only when we are with our Father in Heaven can we be free of these worries and fears and all we can do in the meantime is just trust that God's will be done.
Last night literally just minutes after I left Luella's room, a nasty seizure gripped her and took her breath away. I prayed and just rubbed and rubbed her chest and back to stimulate a breath. Thankfully she did take a breath but she was struggling and the seizure wasn't stopping. We put the oxygen on her and after 2 doses of midazolam the seizure finally did stop. After several more minutes her breathing returned to normal and she slept the rest of the night peacefully.
This morning Jim got Luella up and ready for the day while I got ready. I asked him if he told her about the seizure. He hadn't. She was perky, happy, and anxious for the day. She didn't know about the scary seizure. We decided not to tell her. She has already started worrying about seizures herself... sometimes wanting us to be with her while she's brushing her teeth or just a room away... saying "but what if I have a seizure?" We assure her that we are always close enough to hear her and are still keeping a close eye on her. We don't want her to fear going to sleep at night. Some kids are scared of the dark, Luella isn't. No kid should have to be scared of a seizure after falling asleep.
It's been just over 2 weeks since her last seizure - the night she got her cast. We are praying this pattern won't continue and we can once again enjoy longer seizure-free stretches, especially as school is starting in just a couple days. This little lady is going to be in 1st grade!! Please pray for a great year of school and fewer seizures. Love and thanks to you all!