"The Lord himself goes before you and will be with you; he will never leave you nor forsake you.
   Do not be afraid; do not be discouraged.”
Deuteronomy 31:8

Sunday, October 4, 2015

She is showing us all!

Well, lately Luella has really been showing us all just how strong and determined she is! Today, this little lady is riding a BICYCLE WITHOUT TRAINING WHEELS! Wow!! If you had asked me during that first year or two when she was having many, many seizures if I thought she'd ever ride a bicycle I probably would have said, "I doubt it." But Luella had other plans and this past week that plan was to master riding a bicycle and she has it about perfected! Thank you Lord for gifts like these!

Video on YouTube of Luella riding a bike: https://youtu.be/TuByQ-Tpv-U

In other news, we had an IEP meeting at school last week to review some new resent testing that Luella had done after school started. She is THRIVING at school!! She has tested out of DAPE (Developmentally Adapted Physcial Education)! She has met all her goals and is right in line with what her peers are doing!! So amazing! She will still be doing OT and Speech but doesn't haven't far to go before she will met those goals as well! When school first started she was in the Special Education room for 30 minutes every day. Well, they are running out of things to work on in there! She is getting most of her work done right in the classroom so her Special Ed time will be reduced to only 20 minutes just three days a week!! How amazing is that?!? We feel SO blessed at the progress Luella has made and continues to make. She is just amazing us all by what she is accomplishing! School has been such a great thing for her and she loves it!

I tried to work with Luella all summer to write her name in title case. She fought me and just wanted to write it all caps. During the first month of school she went from writing her name like this... to this! 

And her coloring has improved from this... to this! 

We are SO grateful for the dedicated people who spend time with Luella during that day and have helped her grow so much during the first six weeks of school!

Thankfully Luella hasn't had any seizures at school although she continues to have about a seizure a month. Her last seizure was September 25th, the one before that was August 26th. We focus on the positive in that these seizures are now about every four weeks verses one a week about a year ago and almost daily back in the summer of 2011, and also that she is still showing Dravet syndrome who is boss by bouncing back so quickly and LEARNING TO RIDE A BICYCLE!!! WOOHOO!! 


  1. This is so exciting Heather!!!
    It's wonderful to see she is doing so well :)!