"The Lord himself goes before you and will be with you; he will never leave you nor forsake you.
   Do not be afraid; do not be discouraged.”
Deuteronomy 31:8

Sunday, November 24, 2013

A seizure tonight.... Watch "The Doctors" on Monday ... and various other links

First of all Luella had a seizure tonight - ending a 17 day seizure-free run. We so rarely have that many days between seizures. We were kind of waiting for it to happen... but you just never know when. We took the kids to a movie this afternoon. It happened just before the movie and then she slept and missed all of it... woke up in time for the credits. :-( Such a bummer. We had to give her midazolam to stop this seizure and she chewed up her tongue pretty bad again too.

Charlotte Figi - a little girl from Colorado with Dravet will have a segment on "The Doctors" TV show on Monday. Charlotte was featured in the CNN special "Weed" a couple months ago. She has seen amazing results from using medical marijuana.  http://www.thedoctorstv.com/main/show_page/D6071

And... another great YouTube video with Josh Stanley explaining the special marijuana they grow for Charlotte. This is a GREAT one to watch!! I haven't linked to this one before: http://youtu.be/ciQ4ErmhO7g

If you missed the CNN "Weed" special from a couple months ago, you can watch it on YouTube here:

Dr. Demirci won the $100,000 Bright Futures Prize for his project "Taking Control of Epilepsy"!!! Thank you to all who took the time to vote! http://bwhresearchday.partners.org/the-winner-of-the-100000-bright-futures-prize-is/

1 comment:

  1. Thanks for all the great links Heather. I will definitely be checking them out.
    Ben just ended a long streak of no seizures as well. He went 11 days without one so we knew one was coming. It's sad, but almost a relief when it finally comes because then we can relax a little afterward, well, not really, but kind of :)