I have been having a sad day today thinking about another little Dravet girl. Clover is about four months older than Luella and has been having a very difficult time over the past week. She has had many many seizures and a particularly long one also. Basically they are unable to get the seizures to stop even though she is so full of drugs at the moment. Her mom posted on our Dravet Support Group that Clover's MRI showed extensive brain damage and they don't even know if she will be able to breathe on her own when she wakes up. I'm asking all of you to pray for God to work a miracle in Clover and heal her little body. Her family is at a loss right now and needs our prayers.
Dravet Syndrome is such an ugly thing. Even given the best care possible, Dravet can take a turn for the worse and sometimes there is nothing you can do.
Clover has a CaringBridge site if you are interested in reading more details - http://www.caringbridge.org/visit/cloverdohman.