Angela Nolz
And thanks again to EVERYONE who
contributed to this fundraising effort!!
We have some AMAZING supporters and we are
SO VERY GRATEFUL to ALL of you!!
It's YEAR 11!!!
It's year 11 and we've raised over $23,000 for the Dravet Syndrome Foundation (DSF) in honor of Luella to help find a CURE!Last
year alone we raised over $10,000. You guys rocked!! It was year ten
and I had big goals. I'm being more conservative this year and my goal
is $2,000 but I'd love to go above and beyond!
Our fundraising site has been set up by the Dravet Syndrome Foundation and you can donate directly to DSF here: acake4acure.com
If
you'd like to donate cash or a check, please give your donation
directly to Jim or Heather. Checks can be made out to "Dravet Syndrome
Foundation." Please contact me if you have any questions. If you'd like to donate but do NOT want to be included in the drawing, let me know.
More details on the raffle can be found on this post below!
DONATE HERE!! acake4acure.com
A Little About Luella Update....
Luella
had four seizures last year and she's already had three this year.
Having epilepsy when you are 14 and always having to have someone around
you is annoying to Luella. We are currently working to get her an Apple
watch with the SeizAlarm app to help alert us of daytime seizures. We
are hopeful it works well to give her a little more independence. She's
come SO far from the early days with Dravet and we are so grateful for
your support over the years! All updates about Luella are now posted in our private Facebook group - A Little About Luella. It helps us control who is allowed in the group and for us to not be SUPER public about Luella - she likes a little more privacy these days and we are honoring her wishes.
The new group can be found here if you are interested in keeping up with Luella: https://www.facebook.com/groups/1343460006378305/
So, how does this work exactly?
Every $5 you donate gets you one entry into the drawing. I will keep track of the number of entries you get. Please note if you live far away you will not win a cake but I will ship 2 dozen cookies
(decorated sugar cookies or chocolate chip cookies)! I
will deliver a cake to the winner within a 100 mile radius of Luverne,
MN - or you may choose to pick up your cake. If donate and you don't
want to be included in the drawing please let me know.
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The winner from 2020 had cookies shipped!! |
Luella on the first Dravet Syndrome Awareness Day in 2014. |