This year is my EIGHTH ANNUAL “a cake 4 a cure” fundraiser to raise money for the Dravet Syndrome Foundation to help find a cure for this rare form of epilepsy!! How can it be EIGHT years already!? Every year we do this we are so amazed by all the "regulars" who continue to support Luella and our quest for a CURE! If this is your first time donating, we appreciate YOU too!! We could not do this without all of you!

Please visit the fundraising website (GoFundMe) to make a donation.
https://www.gofundme.com/f/uvy2xf-dravet-syndrome-awareness-for-luella

More details on the raffle can be found on this post below! PLEASE NOTE: There won't be anything about the raffle on the donation site at GoFundMe - that is strictly a place to donate. I will keep track of what you donated to make sure you have the correct number of entries in the drawing.

The donation site will close on June 23rd and 

a winner will be announced on June 24th! 

ALL money will be donated to the Dravet Syndrome Foundation 

in honor of Luella and to help find a cure!  

 

Over the past 7 years we've sent OVER $10,000 to the 

Dravet Syndrome Foundation!! 

THANK YOU!!!

Last year's winner was David from Delaware!

YES! You CAN win if you live far away! 

You won't get a cake, but I WILL ship you some awesome cookies!!

So, how does this fundraising raffle work?
Each entry into the drawing is $5. If you donate $50 - you will get 10 entries into the drawing. Please note if you live far away you will not win a cake but I will ship 2 dozen cookies (decorated sugar cookies or chocolate chip cookies)! I will deliver a cake to the winner in Luverne, Sioux Falls or Estelline, SD areas OR you may arrange to pick up the cake in Luverne.

Please visit GoFundMe to make a donation 
or cash or checks (made out to DSF) 
can be given to Heather or Jim!! 

https://www.gofundme.com/f/uvy2xf-dravet-syndrome-awareness-for-luella

 

 

 

**Now for the fine print... 

Sugar cookie example of what I could SHIP!!

1. I will only deliver to Luverne MN, Sioux Falls SD or Estelline SD areas or areas in between OR you may arrange to pick up the cake in Luverne. NOTE – If you live outside these areas, you may still donate but you will NOT be eligible for a cake UNLESS YOU pick up or you may choose the cookies that I can ship.  

2. The cake will be a 10" round cake (or equivalent). This would be a great sized cake for a birthday with 20-25 guests! 

3. No wedding cakes. Level of detail is to my discretion.

4. Cake must be “ordered” at least 4 weeks in advance. I will try to be available, although please understand that we get busy at times and may have travel planned. I would ask that you be flexible and maybe have another occasion in mind. 

5. The donation website will close down at midnight on June 23rd and a winner will be announced on Luella's blog on June 24th!! 

If you'd like to follow Luella's Blog please visit: http://littleluella.blogspot.com/

If you'd like to learn more about Dravet syndrome or the Dravet Syndrome Foundation, please visit: http://www.dravetfoundation.org/

To find out more about my little cake/cookie hobby, check out Embellished Luv on facebook! You can see some of the fun cakes and cookies I've made in the past.  PLEASE NOTE: I'm currently NOT taking orders. I'm busy with other things these days, BUT the winner of the raffle will definitely get a cake!! (or cookies!)

Thank you!!! I can't wait to announce this year's winner!!

Please share!!

Luella on the first Dravet Syndrome Awareness Day in 2014. June 23rd is all about her!

 

 

 

 

 

 

Get your purple ready for June 23rd!
Share pictures of you wearing purple!

If you bought a hat, please wear it!!

 

 

Luella celebrated 500 days seizure free 

in December and she keeps going!! 

She is currently OVER 650 days seizure free. 

THANK YOU EVERYONE!!

Did you get a hat?

 

Did you get a Dravet Syndrome hat?

If you got a hat when we did the Hat Fundraiser for DSF a few weeks ago, we’d love to see your pictures. Dravet Syndrome Awareness Day is coming up on June 23 and I’d love to share a photo collage of all those awesome hats out there. 

If you missed out and still want a hat, let me know - I did order a few extra! 

Also, we are super excited to share that Luella is 

650 days seizure free today!!! 

We are so grateful for each and every day enjoyed without a seizure. Luella has many Dravet friends that do not get to experience seizure freedom. Many struggle every day and face so many challenges. Sadly, some don’t make it. We’ve had a few in our Dravet community just recently lose their warriors to this awful battle. We know that Luella’s future is uncertain too. In just over a week I’ll be launching my EIGHTH Annual “a cake 4 a cure” fundraiser. We hope to raise more money to help DSF find a CURE. IN THE PAST 7 years we’ve raised over $10,000 for DSF to fund research for a cure! Be watching for more details!

I’ll leave you with Luella playing “Für Elise” for her virtual spring piano recital. 

https://fb.watch/5tBBr4jZyd/

Thank you!

Wear a HAT, Raise Awareness!

Today we launched a hat campaign for the Dravet Syndrome Foundation! We hope you will participate and buy a hat to help us raise awareness and support DSF's fundraising to help find a CURE! These are awesome, great quality hats! I ordered a sample and they are really nice. They fit Jim's head and adjust nicely to fit me comfortably as well! There are several colors you can choose from. ALL proceeds go directly to DSF from Custom Ink in honor of Luella! We are SOO happy she continues to be seizure-free! God-willing, when this campaign ends on April 4th she will be 610 days seizure-free! That's a lot of days to enjoy without a disruption from having a seizure. We pray that she can continue down this road of seizure freedom and enjoy all the wonderful things along the way!

If you are interested in ordering a hat, click the link below and place your order. If you are local you can select local pick up and I'll let you know when they arrive, probably around April 20th. 

https://www.customink.com/fundraising/dravet-hat

Luella enjoying some outside time with Charles!

Record Setting Days Continue into Epilepsy Awareness Month

 Luella is on roll! We are past 450 days seizure-free and STILL COUNTING! Thanking God for all those days EVERY day! And now we into November and Epilepsy Awareness Month. We hope you all will do something to help us spread awareness for epilepsy. Wear some purple, wear your awareness shirts or bracelets or share a post on Facebook with some epilepsy facts - watch my Facebook feed for things you can share! 

Luella turned 11 in October and because of covid we just had a very small family party at home with Grandpa and Grandma J. Luella usually has a pretty fun friend party so she was bummed to not get to celebrate with her friends. She had a few friends do some special extras to make the day fun and we are SO grateful to them for helping her celebrate!

Birthday ZOOMING!

Birthday Scavenger Hunt!!

Birthday CAKE!! It's good to be 11!!

Halloween was a fun and a way to get out of the house and see some friends while walking the neighborhood! Her friends may not have recognized HER though!! The kids have gotten into watching "Invader Zim" cartoons and we DIYed some fun costumes this year!! Luella is the one in the middle, "Gir."

 Remember to wear purple in November! Share a picture with us! 

I'll leave you with this little clip of "Gir" doing a little dance!
Watch on Youtube: https://youtu.be/q5_rsMVeoY4