I was going to write a post tonight about how tomorrow is the last day in November and it's the end of Epilepsy Awareness Month. My post was going to be all about the statistics and reasons why we need a cure. Instead I'm writing about ONE reason we need a cure. The ONE with epilepsy we love the most. OUR Dravet warrior - Luella. She had another seizure tonight. A big old grand mal, tonic-clonic, full-body shaking, nasty, fall off the chair, send your glasses flying and chew up your tongue so bad you have a pool of blood forming on the floor under your head - SEIZURE. Sadly, I've seen hundreds of these. We used to have great seizure control and now... not so much. What is changing? Growing, hormones, Dravet evolving? Triggers? Needing more meds? So many questions and no definitive answers. All we can do is just keep going. Trusting that God has control of this and we just need to be here for her. We will KEEP FIGHTING for that CURE! She is our WARRIOR!
If you feel so compelled to gift a donation to the Dravet Syndrome Foundation this Christmas season, please visit - https://dravetfoundation.org/donate/
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| Recovering from a nasty seizure. |
