Luella had a fabulous time celebrating 2 years of seizure freedom on Tuesday! We had food and ice cream at JJs in Luverne while about 40 people stopped by to say hello! Our one hour celebration turned into three hours! It was so fun to see everyone - some that we haven't seen in quite awhile too! There were several people that wished they could have been there and sent messages, flowers and gifts throughout the day. Thank you everyone for helping to make this a special day for Luella. We hope that we can keep adding seizure free days and maybe celebrate again in a year!
Celebration Video: https://youtu.be/xsBH3ffcKQs
Luella is excited to be getting ready to enter MIDDLE SCHOOL!! She will be heading back to in-person school in September after a year of online school. She is very anxious and ready to see her friends again! We will be taking a few extra precautions initially until she can be fully vaccinated. I'm not excited for her to be turning 12 in October... I'm not sure how my baby grew up so fast, but I am glad she will be able to be more protected from COVID. We are praying that the COVID cases will go down and all of our kids can enjoy a more normal school year.
I've been asked if I feel like I can let down my guard a bit now that Luella has gone 2 years without a seizure? And yes, to a point I can. We don't watch over her 24/7. She has more freedom to be outside with friends or alone in her room reading or drawing. If we are somewhere right in town I don't always take her rescue meds with me - I know I can be home in just a few minutes. When school starts she will not have a para following her around and no special bus aide to be with her on the bus - just a sibling and a bus driver with us on speed dial. The last three seizures she's had going back to almost four years ago have all been after going to bed at night. That first 30 minutes after falling asleep, especially if she's been sick or not feeling well are the times when I'm more on guard. That being said, Luella had a pretty bad summer-time cold a few weeks ago and she even ran some some fevers up to 101 and she did NOT have a seizure! We are just so grateful for how well she is doing!
She could be seizure-free for 10 years and I'd probably still not completely feel at ease, but we are happy with where she is now and I'm glad she can live a more typical life without seizures disrupting her. Thank you for all the prayers!
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