"The Lord himself goes before you and will be with you; he will never leave you nor forsake you.
   Do not be afraid; do not be discouraged.”
Deuteronomy 31:8

Friday, November 2, 2018

Update and Epilepsy Awareness Month

I'm not quite sure how I let FOUR months go by without a post! I guess life got busy... So the last post ended Luella's super long seizure-free streak of 180 days. She did have another seizure about a month later on July 23. We were on vacation and she had a seizure just after falling asleep... this time NO fever though. We haven't seen a seizure without a fever for quite a long time. We figured it was due to poor sleep over the previous 5 nights while on vacation... to bed late, up early. She hasn't had one since so we are at 102 days!

We are SO SO fortunate that she is doing so well! She is really thriving. She started THIRD grade in September and tuned NINE last month! She is doing great at school. She is pretty much in the typical classroom all the time. She can check in with her special education teacher if needed but for the most part she is getting her work done in the classroom with her peers. She's a smart little lady - reading at grade level, loves math, learning cursive writing... everything a typical third-grader should be doing!

At the beginning of every school year I stop by all the sections of Luella's grade and visit with the kids about epilepsy and seizures. Most of the kids have heard the same thing for four years now but there are always new students along the way and it's a good refresher for all the kids. I've read them books in the past about epilepsy but they didn't always apply to Luella 100%. This year I made my own Shutterfly book  about Luella and took it to read to the kids. They LOVED it! It was fun to showcase photos of Luella and how epilepsy specifically affects her. We always have a question time at the end and as the kids have gotten older I've been so impressed by the questions they have asked. It's great helping them learn and bringing more awareness to epilepsy!! Which brings me to the fact that November is Epilepsy Awareness Month!!

If you feel inclined to wear some purple this month to spread awareness for epilepsy, we'd love for you to share a photo - email me or tag me on facebook!

Also, I do still have a few (various sizes) of the newer "Team Luella" shirts I designed this summer. If you'd like one, let me know!!
The birthday girl!! NINE already!!

If you'd like to read the Luella's epilepsy book yourself, I've shared it on Google Photos -
I put this together very quickly so there are a few typos and if I print it again, I'd change a few things.... but I think it's a cute book and I hope you like it... maybe you'll learn something new too!

Click to view Luella's epilepsy book!