"The Lord himself goes before you and will be with you; he will never leave you nor forsake you.
   Do not be afraid; do not be discouraged.”
Deuteronomy 31:8

Sunday, May 23, 2021

 

This year is my EIGHTH ANNUAL “a cake 4 a cure” fundraiser to raise money for the Dravet Syndrome Foundation to help find a cure for this rare form of epilepsy!! How can it be EIGHT years already!? Every year we do this we are so amazed by all the "regulars" who continue to support Luella and our quest for a CURE! If this is your first time donating, we appreciate YOU too!! We could not do this without all of you!

Please visit the fundraising website (GoFundMe) to make a donation.
https://www.gofundme.com/f/uvy2xf-dravet-syndrome-awareness-for-luella

More details on the raffle can be found on this post below! PLEASE NOTE: There won't be anything about the raffle on the donation site at GoFundMe - that is strictly a place to donate. I will keep track of what you donated to make sure you have the correct number of entries in the drawing.

The donation site will close on June 23rd and 
a winner will be announced on June 24th! 

ALL money will be donated to the Dravet Syndrome Foundation 
in honor of Luella and to help find a cure!  
 
Over the past 7 years we've sent OVER $10,000 to the 
Dravet Syndrome Foundation!! 
THANK YOU!!!


Last year's winner was David from Delaware!
YES! You CAN win if you live far away! 
You won't get a cake, but I WILL ship you some awesome cookies!!



So, how does this fundraising raffle work?
Each entry into the drawing is $5. If you donate $50 - you will get 10 entries into the drawing. Please note if you live far away you will not win a cake but I will ship 2 dozen cookies (decorated sugar cookies or chocolate chip cookies)! I will deliver a cake to the winner in Luverne, Sioux Falls or Estelline, SD areas OR you may arrange to pick up the cake in Luverne.

Please visit GoFundMe to make a donation 
or cash or checks (made out to DSF) 
can be given to Heather or Jim!! 

**Now for the fine print... 

Sugar cookie example of what I could SHIP!!
1. I will only deliver to Luverne MN, Sioux Falls SD or Estelline SD areas or areas in between OR you may arrange to pick up the cake in Luverne. NOTE – If you live outside these areas, you may still donate but you will NOT be eligible for a cake UNLESS YOU pick up or you may choose the cookies that I can ship.  

2. The cake will be a 10" round cake (or equivalent). This would be a great sized cake for a birthday with 20-25 guests! 

3. No wedding cakes. Level of detail is to my discretion.


4. Cake must be “ordered” at least 4 weeks in advance. I will try to be available, although please understand that we get busy at times and may have travel planned. I would ask that you be flexible and maybe have another occasion in mind. 


5. The donation website will close down at midnight on June 23rd and a winner will be announced on Luella's blog on June 24th!! 

If you'd like to follow Luella's Blog please visit: http://littleluella.blogspot.com/

If you'd like to learn more about Dravet syndrome or the Dravet Syndrome Foundation, please visit: http://www.dravetfoundation.org/

To find out more about my little cake/cookie hobby, check out Embellished Luv on facebook! You can see some of the fun cakes and cookies I've made in the past.  PLEASE NOTE: I'm currently NOT taking orders. I'm busy with other things these days, BUT the winner of the raffle will definitely get a cake!! (or cookies!)

Thank you!!! I can't wait to announce this year's winner!!


Please share!!
Luella on the first Dravet Syndrome Awareness Day in 2014. June 23rd is all about her!

 
     

Get your purple ready for June 23rd!
Share pictures of you wearing purple!
If you bought a hat, please wear it!!
 





Luella celebrated 500 days seizure free 
in December and she keeps going!! 
She is currently OVER 650 days seizure free. 


THANK YOU EVERYONE!!




Friday, May 14, 2021

Did you get a hat?

 

Did you get a Dravet Syndrome hat?



If you got a hat when we did the Hat Fundraiser for DSF a few weeks ago, we’d love to see your pictures. Dravet Syndrome Awareness Day is coming up on June 23 and I’d love to share a photo collage of all those awesome hats out there. 


If you missed out and still want a hat, let me know - I did order a few extra! 

Also, we are super excited to share that Luella is 
650 days seizure free today!!! 

We are so grateful for each and every day enjoyed without a seizure. Luella has many Dravet friends that do not get to experience seizure freedom. Many struggle every day and face so many challenges. Sadly, some don’t make it. We’ve had a few in our Dravet community just recently lose their warriors to this awful battle. We know that Luella’s future is uncertain too. In just over a week I’ll be launching my EIGHTH Annual “a cake 4 a cure” fundraiser. We hope to raise more money to help DSF find a CURE. IN THE PAST 7 years we’ve raised over $10,000 for DSF to fund research for a cure! Be watching for more details!

I’ll leave you with Luella playing “Für Elise” for her virtual spring piano recital. 






Thank you!