It's year THIRTEEN and you've
helped us raise nearly
$30,000
for the Dravet Syndrome Foundation (DSF)
in honor of Luella to help find a CURE!
Our fundraising site has been set up by the Dravet Syndrome Foundation and you can donate directly to DSF here: acake4acure.com
If
you'd like to donate cash or a check, please give your donation
directly to Jim or Heather. Checks can be made out to "Dravet Syndrome
Foundation." Please contact me if you have any questions. If you'd like to donate but do NOT want to be included in the drawing, let me know.
More details on the raffle can be found on this post below!
DONATE HERE!! acake4acure.com
An Update on Luella....
Unfortunately Luella's seizures have increased substantially over the last year. In September she had a seizure and fell on the tennis court at school. She suffered a concussion and multiple stitches. From then on things kind of spiraled. The increase in seizures qualified her for a clinical trial at the Mayo Clinic in Rochester, Minnesota. We are hopeful that she is getting the actual drug (and not the placebo). She will be in the trial about a year and then will have access to the drug (if she wasn't already getting it). Her first dose in the trial was in April and she has another one coming up in June. This is delivered via lumber puncture so it's more of a process than just popping a new pill. Please join us in praying that this will reduce her seizures and give her some more freedom.
Luella updates can be found in our private Facebook group - you can request to join here: https://www.facebook.com/groups/1343460006378305/
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Last year we more than DOUBLED the goal of $2,000 so I said I'd pick two winners... a local winner and a far away winner. The local winner was Jill Wolf and I got to make a special confirmation cake for her son. The far away winner was Meghan Wilson and I got to ship her some fun Day of the Dead cookies for a special party! | |
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So, how does this work exactly?
Every $5 you donate gets you one entry into the drawing. I will keep track of the number of entries you get. Please note if you live far away you will not win a cake but I will ship 2 dozen cookies
(decorated sugar cookies or chocolate chip cookies)! I
will deliver a cake to the winner within a 100 mile radius of Luverne,
MN - or you may choose to pick up your cake. If donate and you don't
want to be included in the drawing please let me know.
1. I will only deliver within 100 miles of Luverne MN OR you may arrange to pick up the cake in Luverne. NOTE – If you live outside these areas, you may still donate but you will NOT be eligible for a cake UNLESS YOU pick up or you may choose cookies that I can ship.
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| The winner from 2020 had cookies shipped!! |
3. Level of detail is to my discretion but we'll coordinate on the design.
4. Cake must be “ordered” at least 4 weeks in advance. I will try to be available, although please understand that we might be busy. I would ask that you be flexible and have another occasion in mind.
5. The donation website will close down at noon on June 23rd and the winners will be announced on Luella's blog later that evening!!
If you'd like to learn more about Dravet syndrome or the Dravet Syndrome Foundation, please visit: http://www.dravetfoundation.org/
To find out more about my little cake/cookie hobby, check out Embellished Luv on facebook! You can see some of the fun cakes and cookies I've made in the past. PLEASE NOTE: I'm currently NOT taking orders. I'm busy with other things these days, BUT the winner of the raffle will definitely get a cake!! (or cookies!) This is about the only baking I do for non-family!
Thank you!!! I can't wait to announce this year's winner!!
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| Luella on the first Dravet Syndrome Awareness Day in 2014. |
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