"The Lord himself goes before you and will be with you; he will never leave you nor forsake you.
   Do not be afraid; do not be discouraged.”
Deuteronomy 31:8

Friday, June 24, 2016

2016 a cake 4 a cure Winner!!

I couldn't wait to see who the winner was this year!! I had a lofty goal of $1,500 this year. Things started out slow but WOW you guys rallied and put me over the top!!


We ended up raising $1,630!!! 


All of that money will be sent to the Dravet Syndrome Foundation to help find a CURE!! Thank you so much to everyone that contributed!! You are all amazing!! To see what DSF has been working on you can see some of the current research here - http://www.dravetfoundation.org/research/dsf-funded-research.

Time for the BIG announcement!!




The winner is..... Vicki Murra!!!! 
I'm so excited to make you a special cake Vicki!!! YAY!!!

I took a video of me doing the drawing so you'd know it was done far and square!! :-) So many friends and family are included in the drawing and I didn't want anyone to think I was playing favorites!! :-)

Here's a video of the drawing...
https://youtu.be/IuXpZuM19_A


Thanks again everyone for all your support!! We are SO BLESSED to have such an amazing network of friends and family to support Luella!!


THANK YOU!!! 


Monday, June 20, 2016

Wear Your Purple on Thursday

Thursday is the 3rd Annual Dravet Syndrome Awareness Day - June 23rd! Please wear something purple and share a picture with me. We LOVE to see all the purple people out there!! Also Thursday will be the LAST day to get a chance to win a cake in my "a cake 4 a cure" fundraiser / raffle. I'm super excited to announce the winner on Friday!! Thank you to everyone who has donated!!

Wear your purple!! 


More details on a cake 4 a cure can be found on this blog post - http://littleluella.blogspot.com/2016/05/third-annual-cake-4-cure-fundraiser.html.

You can donate online herehttps://www.youcaring.com/acake4acure


Luella - 2 years ago on the 1st Dravet Day! June 24, 2014

Friday, June 17, 2016

Luella got her cake... do you want one?

Well, on Monday we celebrated Luella's 100 Days of Seizure Freedom (and we are still counting!!)!!! She of course wanted to celebrate with a cake. I decided to do a watercolor buttercream cake. She LOVED it!! And now your chance to win a fun cake made by me is winding down. Only SEVEN DAYS LEFT to get your donation in for the Dravet Syndrome Foundation and earn one entry for every $5 you donate! Sadly, I'm still far from my goal of $1,500. All the money goes directly to the Dravet Syndrome Foundation in honor of Luella to help find a CURE!! Help us celebrate her with a donation!!

More details on a cake 4 a cure can be found on this blog post - http://littleluella.blogspot.com/2016/05/third-annual-cake-4-cure-fundraiser.html.

You can donate online herehttps://www.youcaring.com/acake4acure

Luella's fun cake to celebrate 100 DAYS!!



Monday, June 13, 2016

100 Days Hooray!!

Luella is 100 DAYS SEIZURE FREE!! Luella surpassed her all time longest seizure free run of 90 days on June 3rd and we were just waiting to see if she could make it to 100 and share the exciting news with all of you!! She is excited to be celebrating today... we are honoring many of her special requests... including chicken strips and macaroni and cheese for supper tonight!! Oh... and maybe a cake too! ;-)

We are amazed and blessed at all she continues to do! Thank you so much for all your continued prayers and support!!

We are celebrating!!