Little Luella: March 2019

Saturday, March 30, 2019

250

250 DAYS of Seizure FREEDOM!!!

Such an awesome number to celebrate!! We are grateful for so many answered prayers! I wasn't sure if Luella would get to 250 today as she had a stomach bug on Monday / Tuesday this week with fevers up to 100.9...

thankfully God answered prayers and got her through it!

Our little WARRIOR on day 250!!

Monday, March 25, 2019

Purple Day - March 26

There are a few different specific days to raise awareness for epilepsy during the year and tomorrow - March 26th is one of those days! It's PURPLE DAY for Epilepsy Awareness! Help us raise awareness and show support to Luella and
65 million people around the world!!

This is a great time to wear those Luella shirts... Luella is currently 245 days SEIZURE FREE!! On Saturday it'll be 250!! Record-breaking days - every. single. day! We are SO blessed and thankful for how well she is doing! Cheer her on!!
Wear your purple and share a picture with us! If you'd like one of the newer "Team Luella" t-shirts I designed last summer, PLEASE let me know!! I have a few extra on hand and might have your size!! ($15 each)

About Me

My name is Heather and I am mom to Luella and three other children - Burke, Ashlyn and Ryker. Luella is our youngest and in August of 2010, when Luella was only 9 1/2 months old she had her first seizure. We were told it was probably just due to the UTI they discovered and she may or may not have another seizure. She did have another and went on to have almost 50 in the next year. Through constant doctoring we found out in July 2011 that Luella has Dravet Syndrome. This was hard news for us to hear. We are praying for the best possible outcome for Luella and we ask for your prayers as well.