Little Luella: It's Dravet Syndrome Awareness Day AND your LAST day to donate!

Wednesday, June 23, 2021

It's Dravet Syndrome Awareness Day AND your LAST day to donate!

Today is Dravet Syndrome Awareness Day and your last chance to donate to "a cake 4 a cure!"

Donate now and help us to make it to $1500! If you need more details on the fundraiser, visit our previous blog post for more info: https://littleluella.blogspot.com/2021/05/this-year-is-my-eighth-annual-cake-4.html

Are you wearing purple today? Send us your pictures! A few months ago we did our Dravet Hat fundraiser and several people shared pictures in their hats! Thank you all for your support of Luella and DSF and helping us raise awareness!!

https://youtu.be/1bMqWkRvdME

Stay tuned tomorrow to hear the official
"a cake 4 a cure" winner announcement!!

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About Me

My name is Heather and I am mom to Luella and three other children - Burke, Ashlyn and Ryker. Luella is our youngest and in August of 2010, when Luella was only 9 1/2 months old she had her first seizure. We were told it was probably just due to the UTI they discovered and she may or may not have another seizure. She did have another and went on to have almost 50 in the next year. Through constant doctoring we found out in July 2011 that Luella has Dravet Syndrome. This was hard news for us to hear. We are praying for the best possible outcome for Luella and we ask for your prayers as well.