Luella made it to
ONE YEAR SEIZURE FREE again!!
Hurray! Last year the all-time record was ONE year and ELEVEN days.... and
we are on our way! She has been doing amazing so I believe we will keep
trucking past that record! If we get to August 14th we'll have a new record!
365 DAYS SEIZURE FREE!! (from Pizza Ranch celebration last year) |
Luella was remembering celebrating last year at Pizza Ranch with so many
friends and family! That was amazing! She absolutely loved that! Sadly, the
current conditions will keep us from celebrating with others... but if we
get there, we'll definitely do something special at home!!
Luella with one of her 4-H craft projects for the "virtual" County
Fair this year! Made from rocks and sticks in our landscaping. |
This picture was taken just a couple days before her 1st seizure |
Every year as we get into August, I'm reminded of Luella's first ever
seizure... on August 8, 2010 - TEN YEARS ago!!
So crazy how time flies. I look back at those ten years as two time
periods... the first five years being the real struggle. The really hard
time. Lots of seizures. Lots of ER runs and hospital stays. Many helicopter
rides. Medications, changes in diet. Disrupted plans, over and over. REALLY
hard times. And then she turned 5 and we tried a new medication and it
worked wonders! She was coming to that age when many Dravet kids see a
natural decline in seizures. We could do more things. Relax... a little. And
she took off. Doing so much! Accomplishing more than I thought she would! We
are SO blessed to have her doing so well.
As she continues to grow... in ways I don't appreciate so much - she is now
taller than me, I'm reminded to keep things in perspective and not let down
my guard. Growing up can be a challenge for these kids. I continue to pray
that God will protect Luella and we thank you all for your continued prayers
too!
Where did LITTLE Luella go?!?!?! |
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