It's YEAR 11!!!
Last
year alone we raised over $10,000. You guys rocked!! It was year ten
and I had big goals. I'm being more conservative this year and my goal
is $2,000 but I'd love to go above and beyond!
Our fundraising site has been set up by the Dravet Syndrome Foundation and you can donate directly to DSF here: acake4acure.com
If
you'd like to donate cash or a check, please give your donation
directly to Jim or Heather. Checks can be made out to "Dravet Syndrome
Foundation." Please contact me if you have any questions. If you'd like to donate but do NOT want to be included in the drawing, let me know.
More details on the raffle can be found on this post below!
DONATE HERE!! acake4acure.com
A Little About Luella Update....
Luella
had four seizures last year and she's already had three this year.
Having epilepsy when you are 14 and always having to have someone around
you is annoying to Luella. We are currently working to get her an Apple
watch with the SeizAlarm app to help alert us of daytime seizures. We
are hopeful it works well to give her a little more independence. She's
come SO far from the early days with Dravet and we are so grateful for
your support over the years! All updates about Luella are now posted in our private Facebook group - A Little About Luella. It helps us control who is allowed in the group and for us to not be SUPER public about Luella - she likes a little more privacy these days and we are honoring her wishes.
The new group can be found here if you are interested in keeping up with Luella: https://www.facebook.com/groups/1343460006378305/
So, how does this work exactly?
Every $5 you donate gets you one entry into the drawing. I will keep track of the number of entries you get. Please note if you live far away you will not win a cake but I will ship 2 dozen cookies
(decorated sugar cookies or chocolate chip cookies)! I
will deliver a cake to the winner within a 100 mile radius of Luverne,
MN - or you may choose to pick up your cake. If donate and you don't
want to be included in the drawing please let me know.
1. I will only deliver within 100 miles of Luverne MN OR you may arrange to pick up the cake in Luverne. NOTE – If you live outside these areas, you may still donate but you will NOT be eligible for a cake UNLESS YOU pick up or you may choose cookies that I can ship.
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| The winner from 2020 had cookies shipped!! |
3. Level of detail is to my discretion but we'll coordinate on the design.
4. Cake must be “ordered” at least 4 weeks in advance. I will try to be available, although please understand that we might be busy. I would ask that you be flexible and have another occasion in mind.
5. The donation website will close down at noon on June 23rd and the winners will be announced on Luella's blog later that evening!!
If you'd like to learn more about Dravet syndrome or the Dravet Syndrome Foundation, please visit: http://www.dravetfoundation.org/
To find out more about my little cake/cookie hobby, check out Embellished Luv on facebook! You can see some of the fun cakes and cookies I've made in the past. PLEASE NOTE: I'm currently NOT taking orders. I'm busy with other things these days, BUT the winner of the raffle will definitely get a cake!! (or cookies!) This is about the only baking I do for non-family!
Thank you!!! I can't wait to announce this year's winner!!
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| Luella on the first Dravet Syndrome Awareness Day in 2014. |
